Understanding the experience of compensatory and restorative memory rehabilitation

A qualitative study of stroke survivors

Toni D. Withiel, Vanessa L. Sharp, Dana Wong, Jennie L. Ponsford, Narelle Warren, Renerus J. Stolwyk

Research output: Contribution to journalArticleResearchpeer-review

5 Citations (Scopus)

Abstract

Memory impairment is common following stroke. Memory skills groups (MSGs) utilising compensatory strategies and computerised cognitive training (CCT) are two rehabilitation approaches available to improve memory function; however, there is no consensus as to which is more effective following stroke. This study aimed to explore and contrast the qualitative experiences of 20 stroke survivors (Mage = 61.90, SD = 10.48, range: 34–77 years) who received six weeks’ training in MSG (manualised memory skills group, n = 10) or individual-CCT (LumosityTM, n = 10). Using semi-structured interviews, data were collected and analysed thematically, adopting a critical realist approach. Six themes were identified: (1) Facilitators and barriers to intervention engagement, (2) Improving knowledge and understanding, (3) Connecting with others, (4) Perception of the intervention, (5) Impact on everyday memory and (6) Impact on emotions and sense of purpose. Encouragingly, most participants valued and enjoyed participating in the memory interventions, irrespective of rehabilitation approach. MSG participants reported learning and sharing with similar others as important to the experience and described everyday memory improvements. CCT participants described enjoyment of its game-like nature, yet reported frustration associated with game-specific characteristics, and did not report everyday memory improvements.

Original languageEnglish
Number of pages20
JournalNeuropsychological Rehabilitation
DOIs
Publication statusAccepted/In press - 7 Jun 2018

Keywords

  • Cognitive training
  • Compensatory strategies
  • Memory rehabilitation
  • Memory skills group
  • Qualitative analysis
  • Stroke rehabilitation

Cite this

@article{1ae30feefe4548288d98be5589bc12ce,
title = "Understanding the experience of compensatory and restorative memory rehabilitation: A qualitative study of stroke survivors",
abstract = "Memory impairment is common following stroke. Memory skills groups (MSGs) utilising compensatory strategies and computerised cognitive training (CCT) are two rehabilitation approaches available to improve memory function; however, there is no consensus as to which is more effective following stroke. This study aimed to explore and contrast the qualitative experiences of 20 stroke survivors (Mage = 61.90, SD = 10.48, range: 34–77 years) who received six weeks’ training in MSG (manualised memory skills group, n = 10) or individual-CCT (LumosityTM, n = 10). Using semi-structured interviews, data were collected and analysed thematically, adopting a critical realist approach. Six themes were identified: (1) Facilitators and barriers to intervention engagement, (2) Improving knowledge and understanding, (3) Connecting with others, (4) Perception of the intervention, (5) Impact on everyday memory and (6) Impact on emotions and sense of purpose. Encouragingly, most participants valued and enjoyed participating in the memory interventions, irrespective of rehabilitation approach. MSG participants reported learning and sharing with similar others as important to the experience and described everyday memory improvements. CCT participants described enjoyment of its game-like nature, yet reported frustration associated with game-specific characteristics, and did not report everyday memory improvements.",
keywords = "Cognitive training, Compensatory strategies, Memory rehabilitation, Memory skills group, Qualitative analysis, Stroke rehabilitation",
author = "Withiel, {Toni D.} and Sharp, {Vanessa L.} and Dana Wong and Ponsford, {Jennie L.} and Narelle Warren and Stolwyk, {Renerus J.}",
year = "2018",
month = "6",
day = "7",
doi = "10.1080/09602011.2018.1479275",
language = "English",
journal = "Neuropsychological Rehabilitation",
issn = "0960-2011",
publisher = "Taylor & Francis",

}

TY - JOUR

T1 - Understanding the experience of compensatory and restorative memory rehabilitation

T2 - A qualitative study of stroke survivors

AU - Withiel, Toni D.

AU - Sharp, Vanessa L.

AU - Wong, Dana

AU - Ponsford, Jennie L.

AU - Warren, Narelle

AU - Stolwyk, Renerus J.

PY - 2018/6/7

Y1 - 2018/6/7

N2 - Memory impairment is common following stroke. Memory skills groups (MSGs) utilising compensatory strategies and computerised cognitive training (CCT) are two rehabilitation approaches available to improve memory function; however, there is no consensus as to which is more effective following stroke. This study aimed to explore and contrast the qualitative experiences of 20 stroke survivors (Mage = 61.90, SD = 10.48, range: 34–77 years) who received six weeks’ training in MSG (manualised memory skills group, n = 10) or individual-CCT (LumosityTM, n = 10). Using semi-structured interviews, data were collected and analysed thematically, adopting a critical realist approach. Six themes were identified: (1) Facilitators and barriers to intervention engagement, (2) Improving knowledge and understanding, (3) Connecting with others, (4) Perception of the intervention, (5) Impact on everyday memory and (6) Impact on emotions and sense of purpose. Encouragingly, most participants valued and enjoyed participating in the memory interventions, irrespective of rehabilitation approach. MSG participants reported learning and sharing with similar others as important to the experience and described everyday memory improvements. CCT participants described enjoyment of its game-like nature, yet reported frustration associated with game-specific characteristics, and did not report everyday memory improvements.

AB - Memory impairment is common following stroke. Memory skills groups (MSGs) utilising compensatory strategies and computerised cognitive training (CCT) are two rehabilitation approaches available to improve memory function; however, there is no consensus as to which is more effective following stroke. This study aimed to explore and contrast the qualitative experiences of 20 stroke survivors (Mage = 61.90, SD = 10.48, range: 34–77 years) who received six weeks’ training in MSG (manualised memory skills group, n = 10) or individual-CCT (LumosityTM, n = 10). Using semi-structured interviews, data were collected and analysed thematically, adopting a critical realist approach. Six themes were identified: (1) Facilitators and barriers to intervention engagement, (2) Improving knowledge and understanding, (3) Connecting with others, (4) Perception of the intervention, (5) Impact on everyday memory and (6) Impact on emotions and sense of purpose. Encouragingly, most participants valued and enjoyed participating in the memory interventions, irrespective of rehabilitation approach. MSG participants reported learning and sharing with similar others as important to the experience and described everyday memory improvements. CCT participants described enjoyment of its game-like nature, yet reported frustration associated with game-specific characteristics, and did not report everyday memory improvements.

KW - Cognitive training

KW - Compensatory strategies

KW - Memory rehabilitation

KW - Memory skills group

KW - Qualitative analysis

KW - Stroke rehabilitation

UR - http://www.scopus.com/inward/record.url?scp=85048361631&partnerID=8YFLogxK

U2 - 10.1080/09602011.2018.1479275

DO - 10.1080/09602011.2018.1479275

M3 - Article

JO - Neuropsychological Rehabilitation

JF - Neuropsychological Rehabilitation

SN - 0960-2011

ER -