TY - JOUR
T1 - Top 10 consumer and healthcare professional priorities for research in the field of quality use of medicines in people living with dementia
AU - Reeve, Emily
AU - Cowan, Katherine
AU - Kalisch Ellett, Lisa
AU - Sinclair, Ron
AU - Pietsch, Ann
AU - Pietsch, Timothy
AU - de la Perrelle, Lenore
AU - Deimel, Judy
AU - To, Josephine
AU - Daly, Stephanie
AU - Whitehead, Craig
AU - Hilmer, Sarah N.
AU - Chenoweth, Lynn
AU - Gilmartin-Thomas, Julia
AU - Sawan, Mouna
AU - Nguyen, Tuan Anh
AU - Tan, Edwin
AU - Sluggett, Janet K.
AU - Quirke, Lyntara S.
AU - McEvoy, Aisling M.
AU - Ailabouni, Nagham
N1 - Publisher Copyright:
© The Author(s) 2025. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
PY - 2025/9
Y1 - 2025/9
N2 - Background: People living with Alzheimer's disease and other types of dementia are vulnerable to medicine-related problems. More research is needed to support achieving quality use of medicines in people living with dementia. Objective: To determine the top 10 unanswered quality use of medicines questions for people living with dementia, as prioritized by Australians living with dementia, their carers, and healthcare professionals. Methods: The James Lind Alliance Priority Setting Partnership method was used. This manuscript reports the second half of the priority setting process. Using a quantitative survey, consumers (people living with dementia, their carers and family and friends) and healthcare professionals selected up to ten research questions about quality use of medicines that they felt were most important. The research questions were informed by a previous national qualitative survey and evidence checking process to identify those that were unanswered. An online workshop was then conducted with consumers and healthcare professionals to prioritize the unanswered questions, resulting in a top 10 list. Results: 171 consumers and 67 healthcare professionals completed the survey and the workshop included 17 participants. The top 10 priorities related to shared decision making, education of healthcare professionals, communication between healthcare professionals, reducing the use of unnecessary and harmful medicines, managing medicines safely at home, medicine reviews, residential aged care facilities and managing pain, behavioral changes, depression and anxiety. Conclusions: Targeting research efforts towards these identified consumer and healthcare professional priorities will ensure research funds are being directed to the most urgent areas of need in practice.
AB - Background: People living with Alzheimer's disease and other types of dementia are vulnerable to medicine-related problems. More research is needed to support achieving quality use of medicines in people living with dementia. Objective: To determine the top 10 unanswered quality use of medicines questions for people living with dementia, as prioritized by Australians living with dementia, their carers, and healthcare professionals. Methods: The James Lind Alliance Priority Setting Partnership method was used. This manuscript reports the second half of the priority setting process. Using a quantitative survey, consumers (people living with dementia, their carers and family and friends) and healthcare professionals selected up to ten research questions about quality use of medicines that they felt were most important. The research questions were informed by a previous national qualitative survey and evidence checking process to identify those that were unanswered. An online workshop was then conducted with consumers and healthcare professionals to prioritize the unanswered questions, resulting in a top 10 list. Results: 171 consumers and 67 healthcare professionals completed the survey and the workshop included 17 participants. The top 10 priorities related to shared decision making, education of healthcare professionals, communication between healthcare professionals, reducing the use of unnecessary and harmful medicines, managing medicines safely at home, medicine reviews, residential aged care facilities and managing pain, behavioral changes, depression and anxiety. Conclusions: Targeting research efforts towards these identified consumer and healthcare professional priorities will ensure research funds are being directed to the most urgent areas of need in practice.
KW - Alzheimer's disease
KW - caregivers
KW - clinical decision-making
KW - dementia
KW - deprescription
KW - health services research
KW - pharmacy research
KW - polypharmacy
UR - http://www.scopus.com/inward/record.url?scp=105013870940&partnerID=8YFLogxK
U2 - 10.1177/13872877251359984
DO - 10.1177/13872877251359984
M3 - Article
C2 - 40717450
AN - SCOPUS:105013870940
SN - 1387-2877
SP - 207
EP - 222
JO - Journal of Alzheimer's Disease
JF - Journal of Alzheimer's Disease
ER -
