The Victorian Lung Cancer Registry

Annual Report 2015

R Stirling, M Brand, R Scarborough, J McNeil, S Evans, S Ahern, A Earnest, B Pellegrini, J Zalcberg, Victorian Lung Cancer Registry

Research output: Book/ReportOther ReportOther

Abstract

Lung cancer is the fifth most commonly diagnosed
cancer in Australia.1 The risk of lung cancer
increases with age; it is estimated that the
probability of an Australian being diagnosed with
lung cancer by their 85th birthday is 1 in 17 (1 in
13 males and 1 in 22 females)1
. In Victoria, lung
cancer is the largest cause of cancer-related death,
killing more than 2000 Victorians per year, and
representing 19% of all cancer deaths.2
Research that leads to earlier detection of lung
cancer and new, more effective treatments will
improve patient outcomes in the future, but for
those already diagnosed, it is important to optimise
the use of existing diagnostic and therapeutic
options. Ensuring that all patients receive timely and
appropriate diagnosis and treatment has significant
potential to improve patient outcomes, usually without
increasing health care costs. The VLCR aims to help
health services to identify areas for improvement,
by collecting consistent data across multiple health
services and reporting on key process and outcome
measures of the patient pathway. This enables regional
and longitudinal performance evaluation. Importantly,
these measures are risk-adjusted to account for
differences in patient groups, and benchmarked,
so that each participating health service can assess
their performance relative to that of other providers.
Benchmarked reporting from clinical quality registries
has been demonstrated both nationally and
internationally to improve quality of care by identifying
gaps, facilitating planning and evaluating change
The VLCR is housed at Monash University in the
Department of Epidemiology and Preventive Medicine,
which acts as the custodian of the VLCR. Governance
is provided by the VLCR Steering Committee, a group
comprised of consumer representatives, clinical and
technical expert advisors, participating clinicians and
representatives from the State Department of Health,
The Victorian Cancer Registry, Biogrid, Biobank and
Monash University. Funding for this Registry comes
from government, public and private sources.
The VLCR aims to recruit all newly diagnosed primary
lung cancer cases over the age of 18 years attending
participating hospitals. Data are collected at time of
diagnosis, and at six months, two and five years post
diagnosis. In 2015, eight hospitals participated in the
Registry of which six were metropolitan, two regional;
five public and three private. This comprised a total of
846 eligible and consented new Registry patients for
2015, bringing total VLCR recruitment to 2,878 patients
since 2011.
Future initiatives for VLCR include expanding the
VLCR across Victoria, with a goal to achieve statewide
inclusion and ultimately, a national lung cancer
registry; continued refinement of quality indicators,
development of additional indicators related to
molecular treatment strategies; increased use
of Registry data in new research initiatives;
and publication of analysed patient-reported
outcome data.
Original languageEnglish
Place of PublicationMelbourne Victoria
PublisherMonash University
Number of pages40
VolumeReport No 1
Publication statusPublished - Dec 2015

Keywords

  • patient outcomes
  • primary lung cancer
  • clinical benchmarking

Cite this

Stirling, R., Brand, M., Scarborough, R., McNeil, J., Evans, S., Ahern, S., ... Victorian Lung Cancer Registry (2015). The Victorian Lung Cancer Registry: Annual Report 2015. Melbourne Victoria: Monash University.
Stirling, R ; Brand, M ; Scarborough, R ; McNeil, J ; Evans, S ; Ahern, S ; Earnest, A ; Pellegrini, B ; Zalcberg, J ; Victorian Lung Cancer Registry. / The Victorian Lung Cancer Registry : Annual Report 2015. Melbourne Victoria : Monash University, 2015. 40 p.
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Stirling, R, Brand, M, Scarborough, R, McNeil, J, Evans, S, Ahern, S, Earnest, A, Pellegrini, B, Zalcberg, J & Victorian Lung Cancer Registry 2015, The Victorian Lung Cancer Registry: Annual Report 2015. vol. Report No 1, Monash University, Melbourne Victoria.

The Victorian Lung Cancer Registry : Annual Report 2015. / Stirling, R; Brand, M; Scarborough, R; McNeil, J; Evans, S; Ahern, S; Earnest, A; Pellegrini, B; Zalcberg, J; Victorian Lung Cancer Registry.

Melbourne Victoria : Monash University, 2015. 40 p.

Research output: Book/ReportOther ReportOther

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AU - Victorian Lung Cancer Registry

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N2 - Lung cancer is the fifth most commonly diagnosedcancer in Australia.1 The risk of lung cancerincreases with age; it is estimated that theprobability of an Australian being diagnosed withlung cancer by their 85th birthday is 1 in 17 (1 in13 males and 1 in 22 females)1. In Victoria, lungcancer is the largest cause of cancer-related death,killing more than 2000 Victorians per year, andrepresenting 19% of all cancer deaths.2Research that leads to earlier detection of lungcancer and new, more effective treatments willimprove patient outcomes in the future, but forthose already diagnosed, it is important to optimisethe use of existing diagnostic and therapeuticoptions. Ensuring that all patients receive timely andappropriate diagnosis and treatment has significantpotential to improve patient outcomes, usually withoutincreasing health care costs. The VLCR aims to helphealth services to identify areas for improvement,by collecting consistent data across multiple healthservices and reporting on key process and outcomemeasures of the patient pathway. This enables regionaland longitudinal performance evaluation. Importantly,these measures are risk-adjusted to account fordifferences in patient groups, and benchmarked,so that each participating health service can assesstheir performance relative to that of other providers.Benchmarked reporting from clinical quality registrieshas been demonstrated both nationally andinternationally to improve quality of care by identifyinggaps, facilitating planning and evaluating changeThe VLCR is housed at Monash University in theDepartment of Epidemiology and Preventive Medicine,which acts as the custodian of the VLCR. Governanceis provided by the VLCR Steering Committee, a groupcomprised of consumer representatives, clinical andtechnical expert advisors, participating clinicians andrepresentatives from the State Department of Health,The Victorian Cancer Registry, Biogrid, Biobank andMonash University. Funding for this Registry comesfrom government, public and private sources.The VLCR aims to recruit all newly diagnosed primarylung cancer cases over the age of 18 years attendingparticipating hospitals. Data are collected at time ofdiagnosis, and at six months, two and five years postdiagnosis. In 2015, eight hospitals participated in theRegistry of which six were metropolitan, two regional;five public and three private. This comprised a total of846 eligible and consented new Registry patients for2015, bringing total VLCR recruitment to 2,878 patientssince 2011.Future initiatives for VLCR include expanding theVLCR across Victoria, with a goal to achieve statewideinclusion and ultimately, a national lung cancerregistry; continued refinement of quality indicators,development of additional indicators related tomolecular treatment strategies; increased useof Registry data in new research initiatives;and publication of analysed patient-reportedoutcome data.

AB - Lung cancer is the fifth most commonly diagnosedcancer in Australia.1 The risk of lung cancerincreases with age; it is estimated that theprobability of an Australian being diagnosed withlung cancer by their 85th birthday is 1 in 17 (1 in13 males and 1 in 22 females)1. In Victoria, lungcancer is the largest cause of cancer-related death,killing more than 2000 Victorians per year, andrepresenting 19% of all cancer deaths.2Research that leads to earlier detection of lungcancer and new, more effective treatments willimprove patient outcomes in the future, but forthose already diagnosed, it is important to optimisethe use of existing diagnostic and therapeuticoptions. Ensuring that all patients receive timely andappropriate diagnosis and treatment has significantpotential to improve patient outcomes, usually withoutincreasing health care costs. The VLCR aims to helphealth services to identify areas for improvement,by collecting consistent data across multiple healthservices and reporting on key process and outcomemeasures of the patient pathway. This enables regionaland longitudinal performance evaluation. Importantly,these measures are risk-adjusted to account fordifferences in patient groups, and benchmarked,so that each participating health service can assesstheir performance relative to that of other providers.Benchmarked reporting from clinical quality registrieshas been demonstrated both nationally andinternationally to improve quality of care by identifyinggaps, facilitating planning and evaluating changeThe VLCR is housed at Monash University in theDepartment of Epidemiology and Preventive Medicine,which acts as the custodian of the VLCR. Governanceis provided by the VLCR Steering Committee, a groupcomprised of consumer representatives, clinical andtechnical expert advisors, participating clinicians andrepresentatives from the State Department of Health,The Victorian Cancer Registry, Biogrid, Biobank andMonash University. Funding for this Registry comesfrom government, public and private sources.The VLCR aims to recruit all newly diagnosed primarylung cancer cases over the age of 18 years attendingparticipating hospitals. Data are collected at time ofdiagnosis, and at six months, two and five years postdiagnosis. In 2015, eight hospitals participated in theRegistry of which six were metropolitan, two regional;five public and three private. This comprised a total of846 eligible and consented new Registry patients for2015, bringing total VLCR recruitment to 2,878 patientssince 2011.Future initiatives for VLCR include expanding theVLCR across Victoria, with a goal to achieve statewideinclusion and ultimately, a national lung cancerregistry; continued refinement of quality indicators,development of additional indicators related tomolecular treatment strategies; increased useof Registry data in new research initiatives;and publication of analysed patient-reportedoutcome data.

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BT - The Victorian Lung Cancer Registry

PB - Monash University

CY - Melbourne Victoria

ER -

Stirling R, Brand M, Scarborough R, McNeil J, Evans S, Ahern S et al. The Victorian Lung Cancer Registry: Annual Report 2015. Melbourne Victoria: Monash University, 2015. 40 p.