The validity of self-report of eye diseases in participants with vision loss in the National Eye Health Survey

Joshua Foreman, Jing Xie, Stuart Keel, Peter Van Wijngaarden, Hugh R. Taylor, Mohamed Dirani

Research output: Contribution to journalArticleResearchpeer-review

7 Citations (Scopus)

Abstract

We assessed the validity and reliability of self-report of eye disease in participants with unilateral vision loss (presenting visual acuity worse than 6/12 in the worse eye and equal to or better than 6/12 in the better eye) or bilateral vision loss (presenting visual acuity worse than 6/12 in the better eye) in Australia's National Eye Health Survey. In total, 1738 Indigenous Australians and 3098 non-Indigenous Australians were sampled from 30 sites. Participants underwent a questionnaire and self-reported their eye disease histories. A clinical examination identified whether participants had cataract, age-related macular degeneration, diabetic retinopathy and glaucoma. For those identified as having unilateral or bilateral vision loss (438 Indigenous Australians and 709 non-Indigenous Australians), self-reports were compared with examination results using validity and reliability measures. Reliability was poor for all four diseases (Kappa 0.06 to 0.37). Measures of validity of self-report were variable, with generally high specificities (93.7% to 99.2%) in all diseases except for cataract (63.9 to 73.1%) and low sensitivities for all diseases (7.6% in Indigenous Australians with diabetic retinopathy to 44.1% of non-Indigenous Australians with cataract). This study suggests that self-report is an unreliable population-based research tool for identifying eye disease in those with vision loss.

Original languageEnglish
Article number8757
Number of pages8
JournalScientific Reports
Volume7
Issue number1
DOIs
Publication statusPublished - Aug 2017
Externally publishedYes

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