The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Rachael A. Gordon, Yann Nguyen, Nathan Foulquier, Maxime Beydon, Tamer A. Gheita, Raouf Hajji, Ilfita Sahbudin, Alberta Hoi, Wan Fai Ng, Jose Alexandre Mendonça, Daniel J. Wallace, Beverley Shea, George AW Bruyn, Susan M. Goodman, Benjamin A. Fisher, Chiara Baldini, Karina D. Torralba, Hendrika Bootsma, Esen K. Akpek, Sezen KarakusAlan N. Baer, Soumya D. Chakravarty, Lene Terslev, Maria Antonietta D'Agostino, Xavier Mariette, Dana DiRenzo, Astrid Rasmussen, Athena Papas, Cristina Montoya, Suzanne Arends, Md Yuzaiful Md Yusof, Ionut Pintilie, Blake M. Warner, Katherine M. Hammitt, Vibeke Strand, Coralie Bouillot, Peter Tugwell, Nevsun Inanc, José Luis Andreu, Marie Wahren-Herlenius, Valerie Devauchelle-Pensec, Caroline H. Shiboski, Anas Benyoussef, Sharmila Masli, Adrian Y.S. Lee, Divi Cornec, Simon Bowman, Maureen Rischmueller, Sara S. McCoy, Raphaele Seror

Research output: Contribution to journalArticleResearchpeer-review

1 Citation (Scopus)

Abstract

Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.

Original languageEnglish
Article number152378
Number of pages6
JournalSeminars in Arthritis and Rheumatism
Volume65
DOIs
Publication statusPublished - Apr 2024

Keywords

  • Artificial intelligence
  • BIBOT
  • OMERACT
  • Review
  • Scoping literature review
  • Sjogren's disease

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