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The (Re)-emerging and ePidemic Infectious Diseases (RAPID) Stigma Scales: a cross-outbreak scale development and psychometric validation study

  • Amy Paterson
  • , Kondwani K. Mughogho
  • , Ashleigh Cheyne
  • , Olive Kabajaasi
  • , Tonmoy Sarkar
  • , Kkunsa Hadson Dimitrios
  • , Harun Tulunay
  • , Frances N. Adiukwu
  • , Saad S. Alatrany
  • , Ebrahim Aliafsari Mamaghani
  • , Lorena G. Barberia
  • , He Bu
  • , Precious Chikura-Dlamini
  • , Jake Dunning
  • , Ernesto R. Gregorio
  • , Md Zakiul Hassan
  • , Mohammad B. Hossain
  • , Euzebiusz Jamrozik
  • , Sabuj Kanti Mistry
  • , Gerald A. Mwima
  • Surapon Nochaiwong, Will Nutland, Chloe Orkin, Dewan I. Rahman, Keetie Roelen, Soomin Ryu, Stefan Schilling, Hafsa L. Sentongo, Musoke T. Sekikongo, Anne L. Stangl, Yasin Ssewankambo, Evi Sukmaningrum, Rayner K.J. Tan, Steven Taylor, Thiago S. Torres, Samuel Tomczyk, Xiaomin Wang, Benjamin Jones, Kamal I.A. Chowdhury, Md Sharful I. Khan, Wasik R. Aquib, Syed M. Satter, Nathan Kenya-Mugisha, Jeni Stolow, Nina Gobat, Piero Olliaro, Amanda Rojek

Research output: Contribution to journalReview ArticleResearchpeer-review

Abstract

Reducing stigma during infectious disease outbreaks is crucial for delivering an effective response. However, no validated stigma scales exist for use across outbreaks, and outbreak-specific scales are developed too slowly to guide timely interventions. To enable more real-time monitoring and mitigation of stigma across outbreak contexts, we developed and validated the (Re)-emerging and ePidemic Infectious Diseases (RAPID) Stigma Scales. Field testing and psychometric validation were conducted in communities affected by Ebola disease in Uganda, mpox in the UK, and Nipah virus disease in Bangladesh. Content validity was established through cognitive interviews and expert Delphi scoring. 1008 respondents were included across the three countries. The final RAPID Community Stigma Scale (12 items) captures initial social stigma, provider or authority-related stigma, structural stigma, and enduring social stigma. The RAPID Self Stigma Scale (4 items) is unidimensional. Both scales were found to have robust psychometric properties, including content validity, structural validity (factor loadings ≥0·6), and reliability (ordinal alphas 0·79–0·92). High scores on both scales predicted an increased hesitancy to report symptoms and seek care. The RAPID Stigma Scales are validated tools for real-time assessment of stigma across outbreak settings, enabling responders to design targeted interventions to improve health outcomes and promote equitable care.

Original languageEnglish
Pages (from-to)e635-e644
Number of pages10
JournalThe Lancet Infectious Diseases
Volume25
Issue number11
DOIs
Publication statusPublished - Nov 2025

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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