Abstract
Background and aims: Behaviours of Concern (BoC) are a debilitating consequence of Traumatic Brain Injury (TBI). Whilst perspectives of clinicians, carers and family members on BoC have been previously explored, few qualitative studies have included individuals with TBI. The aim of this study was to explore the lived experience of BoC in individuals with TBI, their close others and clinicians. Method: Eleven males with TBI and BoC were recruited and 25 semi-structured qualitative interviews were conducted (9 individuals with TBI, 9 close others, 7 clinicians). A six-phase thematic analysis approach was utilised. Results: Frequent and persistent BoC were reported and the key themes identified included the brain injury, control, environment, mood, identity, social relationships, and meaningful participation. Whilst the brain injury contributed to BoC in all cases, the way the other themes manifested and interacted was variable. Conclusions: This study enriches our understanding of factors associated with BoC. Themes emerging from this study will inform interventions designed to reduce BoC and ultimately maximise quality of life for individuals with TBI and their families.
| Original language | English |
|---|---|
| Pages (from-to) | 376-394 |
| Number of pages | 19 |
| Journal | Neuropsychological Rehabilitation |
| Volume | 29 |
| Issue number | 3 |
| DOIs | |
| Publication status | Published - 2019 |
Keywords
- behaviours of concern
- challenging behaviour
- community rehabilitation
- qualitative design
- Traumatic brain injury
Cite this
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The lived experience of behaviours of concern : A qualitative study of men with traumatic brain injury. / Gould, Kate Rachel; Hicks, Amelia J.; Hopwood, Malcolm; Kenardy, Justin; Krivonos, Iveta; Warren, Narelle; Ponsford, Jennie L.
In: Neuropsychological Rehabilitation, Vol. 29, No. 3, 2019, p. 376-394.Research output: Contribution to journal › Article › Research › peer-review
TY - JOUR
T1 - The lived experience of behaviours of concern
T2 - A qualitative study of men with traumatic brain injury
AU - Gould, Kate Rachel
AU - Hicks, Amelia J.
AU - Hopwood, Malcolm
AU - Kenardy, Justin
AU - Krivonos, Iveta
AU - Warren, Narelle
AU - Ponsford, Jennie L.
PY - 2019
Y1 - 2019
N2 - Background and aims: Behaviours of Concern (BoC) are a debilitating consequence of Traumatic Brain Injury (TBI). Whilst perspectives of clinicians, carers and family members on BoC have been previously explored, few qualitative studies have included individuals with TBI. The aim of this study was to explore the lived experience of BoC in individuals with TBI, their close others and clinicians. Method: Eleven males with TBI and BoC were recruited and 25 semi-structured qualitative interviews were conducted (9 individuals with TBI, 9 close others, 7 clinicians). A six-phase thematic analysis approach was utilised. Results: Frequent and persistent BoC were reported and the key themes identified included the brain injury, control, environment, mood, identity, social relationships, and meaningful participation. Whilst the brain injury contributed to BoC in all cases, the way the other themes manifested and interacted was variable. Conclusions: This study enriches our understanding of factors associated with BoC. Themes emerging from this study will inform interventions designed to reduce BoC and ultimately maximise quality of life for individuals with TBI and their families.
AB - Background and aims: Behaviours of Concern (BoC) are a debilitating consequence of Traumatic Brain Injury (TBI). Whilst perspectives of clinicians, carers and family members on BoC have been previously explored, few qualitative studies have included individuals with TBI. The aim of this study was to explore the lived experience of BoC in individuals with TBI, their close others and clinicians. Method: Eleven males with TBI and BoC were recruited and 25 semi-structured qualitative interviews were conducted (9 individuals with TBI, 9 close others, 7 clinicians). A six-phase thematic analysis approach was utilised. Results: Frequent and persistent BoC were reported and the key themes identified included the brain injury, control, environment, mood, identity, social relationships, and meaningful participation. Whilst the brain injury contributed to BoC in all cases, the way the other themes manifested and interacted was variable. Conclusions: This study enriches our understanding of factors associated with BoC. Themes emerging from this study will inform interventions designed to reduce BoC and ultimately maximise quality of life for individuals with TBI and their families.
KW - behaviours of concern
KW - challenging behaviour
KW - community rehabilitation
KW - qualitative design
KW - Traumatic brain injury
UR - http://www.scopus.com/inward/record.url?scp=85017206494&partnerID=8YFLogxK
U2 - 10.1080/09602011.2017.1307767
DO - 10.1080/09602011.2017.1307767
M3 - Article
VL - 29
SP - 376
EP - 394
JO - Neuropsychological Rehabilitation
JF - Neuropsychological Rehabilitation
SN - 0960-2011
IS - 3
ER -