TY - JOUR
T1 - Tackling Dementia Together via The Australian Dementia Network (ADNeT)
T2 - A Summary of Initiatives, Progress and Plans
AU - Naismith, Sharon L.
AU - Michaelian, Johannes C.
AU - Santos, Cherry
AU - Mehrani, Inga
AU - Robertson, Joanne
AU - Wallis, Kasey
AU - Lin, Xiaoping
AU - Ward, Stephanie A.
AU - Martins, Ralph
AU - Masters, Colin L.
AU - Breakspear, Michael
AU - Ahern, Susannah
AU - Fripp, Jurgen
AU - Schofield, Peter R.
AU - Sachdev, Perminder S.
AU - Rowe, Christopher C.
N1 - Funding Information:
Authors SLN, SW, RM, CM, MB, SA, PRS, PSS and CCR are Investigators of the NHMRC Boosting Dementia Grant ‘The Australian Dementia Network (ADNeT): Bringing together Australia’s dementia stakeholders’ (Grant number: APP1152623). JCM, IM, JR, CS, SW, KW and XL receive salary funds from the ADNeT NHMRC grant.
Funding Information:
In July 2018, the Australian Dementia Network (ADNeT) [] was founded as a result of a competitive grant funding process of the National Health and Medical Research Council of Australia (NHMRC). The investment of AU$18 million over 5 years represented 9% of the total NHMRC National Institute for Dementia Research (NNIDR) budget and was the single largest grant. ADNeT was created to address research fragmentation and bring together some of Australia’s leading researchers with clinicians and people with living experience, and thereby establish a powerful network for dementia prevention, treatment, and care. A further AU$2 million was provided to ADNeT by philanthropic donors, the Yulgilbar Foundation and the Wicking Trust.
Funding Information:
Authors SLN, SW, RM, CM, MB, SA, PRS, PSS and CCR are Investigators of the NHMRC Boosting Dementia Grant ‘The Australian Dementia Network (ADNeT): Bringing together Australia’s dementia stakeholders’ (Grant number: APP1152623). JCM, IM, JR, CS, SW, KW and XL receive salary funds from the ADNeT NHMRC grant.
Publisher Copyright:
© 2023 – The authors. Published by IOS Press.
PY - 2023/11/21
Y1 - 2023/11/21
N2 - In 2018, the Australian Dementia Network (ADNeT) was established to bring together Australia’s leading dementia researchers, people with living experience and clinicians to transform research and clinical care in the field. To address dementia diagnosis, treatment, and care, ADNeT has established three core initiatives: the Clinical Quality Registry (CQR), Memory Clinics, and Screening for Trials. Collectively, the initiatives have developed an integrated clinical and research community, driving practice excellence in this field, leading to novel innovations in diagnostics, clinical care, professional development, quality and harmonization of healthcare, clinical trials, and translation of research into practice. Australia now has a national Registry for Mild Cognitive Impairment and dementia with 55 participating clinical sites, an extensive map of memory clinic services, national Memory and Cognition Clinic Guidelines and specialized screening for trials sites in five states. This paper provides an overview of ADNeT’s achievements to date and future directions. With the increase in dementia cases expected over coming decades, and with recent advances in plasma biomarkers and amyloid lowering therapies, the nationally coordinated initiatives and partnerships ADNeT has established are critical for increased national prevention efforts, co-ordinated implementation of emerging treatments for Alzheimer’s disease, innovation of early and accurate diagnosis, driving continuous improvements in clinical care and patient outcome and access to post-diagnostic support and clinical trials. For a heterogenous disorder such as dementia, which is now the second leading cause of death in Australia following cardiovascular disease, the case for adequate investment into research and development has grown even more compelling.
AB - In 2018, the Australian Dementia Network (ADNeT) was established to bring together Australia’s leading dementia researchers, people with living experience and clinicians to transform research and clinical care in the field. To address dementia diagnosis, treatment, and care, ADNeT has established three core initiatives: the Clinical Quality Registry (CQR), Memory Clinics, and Screening for Trials. Collectively, the initiatives have developed an integrated clinical and research community, driving practice excellence in this field, leading to novel innovations in diagnostics, clinical care, professional development, quality and harmonization of healthcare, clinical trials, and translation of research into practice. Australia now has a national Registry for Mild Cognitive Impairment and dementia with 55 participating clinical sites, an extensive map of memory clinic services, national Memory and Cognition Clinic Guidelines and specialized screening for trials sites in five states. This paper provides an overview of ADNeT’s achievements to date and future directions. With the increase in dementia cases expected over coming decades, and with recent advances in plasma biomarkers and amyloid lowering therapies, the nationally coordinated initiatives and partnerships ADNeT has established are critical for increased national prevention efforts, co-ordinated implementation of emerging treatments for Alzheimer’s disease, innovation of early and accurate diagnosis, driving continuous improvements in clinical care and patient outcome and access to post-diagnostic support and clinical trials. For a heterogenous disorder such as dementia, which is now the second leading cause of death in Australia following cardiovascular disease, the case for adequate investment into research and development has grown even more compelling.
KW - ADNeT
KW - Alzheimer’s disease
KW - Australian Dementia Network
KW - clinical quality registry
KW - clinical trials
KW - dementia
KW - diagnosis
KW - health services
KW - memory clinic
KW - mild cognitive impairment
UR - http://www.scopus.com/inward/record.url?scp=85177975340&partnerID=8YFLogxK
U2 - 10.3233/JAD-230854
DO - 10.3233/JAD-230854
M3 - Review Article
C2 - 37927266
AN - SCOPUS:85177975340
SN - 1387-2877
VL - 96
SP - 913
EP - 925
JO - Journal of Alzheimer's Disease
JF - Journal of Alzheimer's Disease
IS - 3
ER -