Stroke survivor follow-up in a national registry: Lessons learnt from respondents who completed telephone interviews

Karen M. Barclay-Moss, Natasha A. Lannin, Brenda Grabsch, Monique Kilkenny, Dominique A. Cadilhac

Research output: Contribution to journalArticleOtherpeer-review

1 Citation (Scopus)


The Australian Stroke Clinical Registry (AuSCR) collects patient-reported outcomes at 90–180 days post-stroke. During telephone interviews, stroke survivors or their carers/family members often explain why they did not respond to a previously mailed survey. This feedback is useful to explore respondents’ experiences of the follow-up process. Three main reasons for not returning surveys included: health-related time constraints, confusion about survey questions, and stroke denial. Such information is helpful in improving procedures for clinical quality disease registries and researchers using postal questionnaires.

Original languageEnglish
Pages (from-to)112-114
Number of pages3
JournalInternational Journal of Stroke
Issue number2
Publication statusPublished - 1 Feb 2019


  • clinical registry
  • Follow-up
  • quality improvement
  • stroke
  • survey methods

Cite this