TY - JOUR
T1 - Sequential research to evaluate the impact of patient and public involvement on cancer research outcomes
T2 - using interviews, stimulus material and a modified delphi technique
AU - Pandya-Wood, Raksha
N1 - Funding Information:
This article formed part of a PhD methodology. The PhD was funded by De Montfort University, England. During the time the research was taking place, Raksha also worked for the National Institute for Health Research, Research Design Service as a Senior Research Adviser on Patient and Public Involvement and was based at De Montfort University. Raksha relocated with her family to Malaysia in August 2020 and now works at Monash University Malaysia.
Publisher Copyright:
© The Author(s) 2022.
PY - 2022
Y1 - 2022
N2 - Evaluating patient and public involvement (PPI) in healthcare research continues to attract international interest. This article discusses how one exemplar study evaluated the impact of PPI on cancer research outcomes, with user involvement sewn into the design. The research aligned to interpretivist and pragmatist paradigms and resulted in a mixed methods sequential design. Phase 1 involved 23 in-depth interviews to explore perceptions of impact of PPI on cancer research outcomes with patients, researchers and stakeholders. Analysis from Phase 1 formed the basis of a ‘stimulus paper’ to use in Phase 2. Phase 2 adopted the modified Delphi technique with a virtual panel of 35 experts. This research found several factors shaped the impact of PPI on cancer research outcomes. However, the data itself are not the foci of this article, the methodological process, theoretical decisions, limitations and lessons learned across the research are.
AB - Evaluating patient and public involvement (PPI) in healthcare research continues to attract international interest. This article discusses how one exemplar study evaluated the impact of PPI on cancer research outcomes, with user involvement sewn into the design. The research aligned to interpretivist and pragmatist paradigms and resulted in a mixed methods sequential design. Phase 1 involved 23 in-depth interviews to explore perceptions of impact of PPI on cancer research outcomes with patients, researchers and stakeholders. Analysis from Phase 1 formed the basis of a ‘stimulus paper’ to use in Phase 2. Phase 2 adopted the modified Delphi technique with a virtual panel of 35 experts. This research found several factors shaped the impact of PPI on cancer research outcomes. However, the data itself are not the foci of this article, the methodological process, theoretical decisions, limitations and lessons learned across the research are.
KW - Delphi technique
KW - end user involvement
KW - GRIPP2
KW - in-depth interviews
KW - patient and public involvement evaluation
KW - qualitative mixed methods
KW - sequential designs
KW - stimulus material
UR - http://www.scopus.com/inward/record.url?scp=85125866409&partnerID=8YFLogxK
U2 - 10.1177/16094069221081606
DO - 10.1177/16094069221081606
M3 - Article
AN - SCOPUS:85125866409
SN - 1609-4069
VL - 21
SP - 1
EP - 15
JO - International Journal of Qualitative Methods
JF - International Journal of Qualitative Methods
ER -
