Research priorities in health communication and participation

International survey of consumers and other stakeholders

Anneliese Synnot, Peter Bragge, Dianne Lowe, Jack S. Nunn, Molly O'Sullivan, Lidia Horvat, Allison Tong, Debra Kay, Davina Ghersi, Steve McDonald, Naomi Poole, Noni Bourke, Natasha Lannin, Danny Vadasz, Sandy Oliver, Karen Carey, Sophie J. Hill

Research output: Contribution to journalArticleResearchpeer-review

8 Citations (Scopus)

Abstract

Objective To identify research priorities of consumers and other stakeholders to inform Cochrane Reviews in 'health communication and participation' (including such concepts as patient experience, shared decision-making and health literacy). Setting International. Participants We included anyone with an interest in health communication and participation. Up to 151 participants (18-80 years; 117 female) across 12 countries took part, including 48 consumers (patients, carers, consumer representatives) and 75 professionals (health professionals, policymakers, researchers) (plus 25 people who identified as both). Design Survey. Methods We invited people to submit their research ideas via an online survey open for 4 weeks. Using inductive thematic analysis, we generated priority research topics, then classified these into broader themes. Results Participants submitted 200 research ideas, which we grouped into 21 priority topics. Key research priorities included: Insufficient consumer involvement in research (19 responses), 'official' health information is contradictory and hard to understand (18 responses), communication/coordination breakdowns in health services (15 responses), health information provision a low priority for health professionals (15 responses), insufficient eliciting of patient preferences (14 responses), health services poorly understand/implement patient-centred care (14 responses), lack of holistic care impacting healthcare quality and safety (13 responses) and inadequate consumer involvement in service design (11 responses). These priorities encompassed acute and community health settings, with implications for policy and research. Priority populations of interest included people from diverse cultural and linguistic backgrounds, carers, and people with low educational attainment, or mental illness. Most frequently suggested interventions focused on training and cultural change activities for health services and health professionals. Conclusions Consumers and other stakeholders want research addressing structural and cultural challenges in health services (eg, lack of holistic, patient-centred, culturally safe care) and building health professionals' communication skills. Solutions should be devised in partnership with consumers, and focus on the needs of vulnerable groups.

Original languageEnglish
Article numbere019481
Number of pages10
JournalBMJ Open
Volume8
Issue number5
DOIs
Publication statusPublished - 1 May 2018

Keywords

  • Cochrane
  • communication
  • consumers
  • patient preference
  • research priorities
  • stakeholders

Cite this

Synnot, Anneliese ; Bragge, Peter ; Lowe, Dianne ; Nunn, Jack S. ; O'Sullivan, Molly ; Horvat, Lidia ; Tong, Allison ; Kay, Debra ; Ghersi, Davina ; McDonald, Steve ; Poole, Naomi ; Bourke, Noni ; Lannin, Natasha ; Vadasz, Danny ; Oliver, Sandy ; Carey, Karen ; Hill, Sophie J. / Research priorities in health communication and participation : International survey of consumers and other stakeholders. In: BMJ Open. 2018 ; Vol. 8, No. 5.
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abstract = "Objective To identify research priorities of consumers and other stakeholders to inform Cochrane Reviews in 'health communication and participation' (including such concepts as patient experience, shared decision-making and health literacy). Setting International. Participants We included anyone with an interest in health communication and participation. Up to 151 participants (18-80 years; 117 female) across 12 countries took part, including 48 consumers (patients, carers, consumer representatives) and 75 professionals (health professionals, policymakers, researchers) (plus 25 people who identified as both). Design Survey. Methods We invited people to submit their research ideas via an online survey open for 4 weeks. Using inductive thematic analysis, we generated priority research topics, then classified these into broader themes. Results Participants submitted 200 research ideas, which we grouped into 21 priority topics. Key research priorities included: Insufficient consumer involvement in research (19 responses), 'official' health information is contradictory and hard to understand (18 responses), communication/coordination breakdowns in health services (15 responses), health information provision a low priority for health professionals (15 responses), insufficient eliciting of patient preferences (14 responses), health services poorly understand/implement patient-centred care (14 responses), lack of holistic care impacting healthcare quality and safety (13 responses) and inadequate consumer involvement in service design (11 responses). These priorities encompassed acute and community health settings, with implications for policy and research. Priority populations of interest included people from diverse cultural and linguistic backgrounds, carers, and people with low educational attainment, or mental illness. Most frequently suggested interventions focused on training and cultural change activities for health services and health professionals. Conclusions Consumers and other stakeholders want research addressing structural and cultural challenges in health services (eg, lack of holistic, patient-centred, culturally safe care) and building health professionals' communication skills. Solutions should be devised in partnership with consumers, and focus on the needs of vulnerable groups.",
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Synnot, A, Bragge, P, Lowe, D, Nunn, JS, O'Sullivan, M, Horvat, L, Tong, A, Kay, D, Ghersi, D, McDonald, S, Poole, N, Bourke, N, Lannin, N, Vadasz, D, Oliver, S, Carey, K & Hill, SJ 2018, 'Research priorities in health communication and participation: International survey of consumers and other stakeholders', BMJ Open, vol. 8, no. 5, e019481. https://doi.org/10.1136/bmjopen-2017-019481

Research priorities in health communication and participation : International survey of consumers and other stakeholders. / Synnot, Anneliese; Bragge, Peter; Lowe, Dianne; Nunn, Jack S.; O'Sullivan, Molly; Horvat, Lidia; Tong, Allison; Kay, Debra; Ghersi, Davina; McDonald, Steve; Poole, Naomi; Bourke, Noni; Lannin, Natasha; Vadasz, Danny; Oliver, Sandy; Carey, Karen; Hill, Sophie J.

In: BMJ Open, Vol. 8, No. 5, e019481, 01.05.2018.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Research priorities in health communication and participation

T2 - International survey of consumers and other stakeholders

AU - Synnot, Anneliese

AU - Bragge, Peter

AU - Lowe, Dianne

AU - Nunn, Jack S.

AU - O'Sullivan, Molly

AU - Horvat, Lidia

AU - Tong, Allison

AU - Kay, Debra

AU - Ghersi, Davina

AU - McDonald, Steve

AU - Poole, Naomi

AU - Bourke, Noni

AU - Lannin, Natasha

AU - Vadasz, Danny

AU - Oliver, Sandy

AU - Carey, Karen

AU - Hill, Sophie J.

PY - 2018/5/1

Y1 - 2018/5/1

N2 - Objective To identify research priorities of consumers and other stakeholders to inform Cochrane Reviews in 'health communication and participation' (including such concepts as patient experience, shared decision-making and health literacy). Setting International. Participants We included anyone with an interest in health communication and participation. Up to 151 participants (18-80 years; 117 female) across 12 countries took part, including 48 consumers (patients, carers, consumer representatives) and 75 professionals (health professionals, policymakers, researchers) (plus 25 people who identified as both). Design Survey. Methods We invited people to submit their research ideas via an online survey open for 4 weeks. Using inductive thematic analysis, we generated priority research topics, then classified these into broader themes. Results Participants submitted 200 research ideas, which we grouped into 21 priority topics. Key research priorities included: Insufficient consumer involvement in research (19 responses), 'official' health information is contradictory and hard to understand (18 responses), communication/coordination breakdowns in health services (15 responses), health information provision a low priority for health professionals (15 responses), insufficient eliciting of patient preferences (14 responses), health services poorly understand/implement patient-centred care (14 responses), lack of holistic care impacting healthcare quality and safety (13 responses) and inadequate consumer involvement in service design (11 responses). These priorities encompassed acute and community health settings, with implications for policy and research. Priority populations of interest included people from diverse cultural and linguistic backgrounds, carers, and people with low educational attainment, or mental illness. Most frequently suggested interventions focused on training and cultural change activities for health services and health professionals. Conclusions Consumers and other stakeholders want research addressing structural and cultural challenges in health services (eg, lack of holistic, patient-centred, culturally safe care) and building health professionals' communication skills. Solutions should be devised in partnership with consumers, and focus on the needs of vulnerable groups.

AB - Objective To identify research priorities of consumers and other stakeholders to inform Cochrane Reviews in 'health communication and participation' (including such concepts as patient experience, shared decision-making and health literacy). Setting International. Participants We included anyone with an interest in health communication and participation. Up to 151 participants (18-80 years; 117 female) across 12 countries took part, including 48 consumers (patients, carers, consumer representatives) and 75 professionals (health professionals, policymakers, researchers) (plus 25 people who identified as both). Design Survey. Methods We invited people to submit their research ideas via an online survey open for 4 weeks. Using inductive thematic analysis, we generated priority research topics, then classified these into broader themes. Results Participants submitted 200 research ideas, which we grouped into 21 priority topics. Key research priorities included: Insufficient consumer involvement in research (19 responses), 'official' health information is contradictory and hard to understand (18 responses), communication/coordination breakdowns in health services (15 responses), health information provision a low priority for health professionals (15 responses), insufficient eliciting of patient preferences (14 responses), health services poorly understand/implement patient-centred care (14 responses), lack of holistic care impacting healthcare quality and safety (13 responses) and inadequate consumer involvement in service design (11 responses). These priorities encompassed acute and community health settings, with implications for policy and research. Priority populations of interest included people from diverse cultural and linguistic backgrounds, carers, and people with low educational attainment, or mental illness. Most frequently suggested interventions focused on training and cultural change activities for health services and health professionals. Conclusions Consumers and other stakeholders want research addressing structural and cultural challenges in health services (eg, lack of holistic, patient-centred, culturally safe care) and building health professionals' communication skills. Solutions should be devised in partnership with consumers, and focus on the needs of vulnerable groups.

KW - Cochrane

KW - communication

KW - consumers

KW - patient preference

KW - research priorities

KW - stakeholders

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U2 - 10.1136/bmjopen-2017-019481

DO - 10.1136/bmjopen-2017-019481

M3 - Article

VL - 8

JO - BMJ Open

JF - BMJ Open

SN - 2044-6055

IS - 5

M1 - e019481

ER -