Realising opportunities for evidence-based cancer service delivery and research: linking cancer registry and administrative data in Australia

Murray D Roder, Kwun M Fong, Michael P Brown, John Raymond Zalcberg, Claire Wainwright

Research output: Contribution to journalLetterOther

Abstract

The traditional roles of Australian cancer registries have been incidence, mortality and survival surveillance although increasingly, roles are being broadened to include data support for health-service management and evaluation. In some Australian jurisdictions, cancer stage and other prognostic data are being included in registry databases and this is being facilitated by an increase in structured pathology reporting by pathology and haematology laboratories. Data linkage facilities are being extended across the country at national and jurisdictional level, facilitating data linkage between registry data and data extracts from administrative databases that include treatment, screening and vaccination data, and self-reported data from large population cohorts. Well-established linkage protocols exist to protect privacy. The aim is to gain better data on patterns of care, service outcomes and related performance indicators for health-service management and population health and health-services research, at a time of increasing cost pressures. Barriers include wariness among some data custodians towards releasing data and the need for clearance for data release from large numbers of research ethics committees. Progress is being made though, and proof of concept is being established.
Original languageEnglish
Pages (from-to)721 - 727
Number of pages7
JournalEuropean Journal of Cancer Care
Volume23
Issue number6
DOIs
Publication statusPublished - 2014

Cite this

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title = "Realising opportunities for evidence-based cancer service delivery and research: linking cancer registry and administrative data in Australia",
abstract = "The traditional roles of Australian cancer registries have been incidence, mortality and survival surveillance although increasingly, roles are being broadened to include data support for health-service management and evaluation. In some Australian jurisdictions, cancer stage and other prognostic data are being included in registry databases and this is being facilitated by an increase in structured pathology reporting by pathology and haematology laboratories. Data linkage facilities are being extended across the country at national and jurisdictional level, facilitating data linkage between registry data and data extracts from administrative databases that include treatment, screening and vaccination data, and self-reported data from large population cohorts. Well-established linkage protocols exist to protect privacy. The aim is to gain better data on patterns of care, service outcomes and related performance indicators for health-service management and population health and health-services research, at a time of increasing cost pressures. Barriers include wariness among some data custodians towards releasing data and the need for clearance for data release from large numbers of research ethics committees. Progress is being made though, and proof of concept is being established.",
author = "Roder, {Murray D} and Fong, {Kwun M} and Brown, {Michael P} and Zalcberg, {John Raymond} and Claire Wainwright",
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doi = "10.1111/ecc.12242",
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journal = "European Journal of Cancer Care",
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}

Realising opportunities for evidence-based cancer service delivery and research: linking cancer registry and administrative data in Australia. / Roder, Murray D; Fong, Kwun M; Brown, Michael P; Zalcberg, John Raymond; Wainwright, Claire.

In: European Journal of Cancer Care, Vol. 23, No. 6, 2014, p. 721 - 727.

Research output: Contribution to journalLetterOther

TY - JOUR

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AU - Roder, Murray D

AU - Fong, Kwun M

AU - Brown, Michael P

AU - Zalcberg, John Raymond

AU - Wainwright, Claire

PY - 2014

Y1 - 2014

N2 - The traditional roles of Australian cancer registries have been incidence, mortality and survival surveillance although increasingly, roles are being broadened to include data support for health-service management and evaluation. In some Australian jurisdictions, cancer stage and other prognostic data are being included in registry databases and this is being facilitated by an increase in structured pathology reporting by pathology and haematology laboratories. Data linkage facilities are being extended across the country at national and jurisdictional level, facilitating data linkage between registry data and data extracts from administrative databases that include treatment, screening and vaccination data, and self-reported data from large population cohorts. Well-established linkage protocols exist to protect privacy. The aim is to gain better data on patterns of care, service outcomes and related performance indicators for health-service management and population health and health-services research, at a time of increasing cost pressures. Barriers include wariness among some data custodians towards releasing data and the need for clearance for data release from large numbers of research ethics committees. Progress is being made though, and proof of concept is being established.

AB - The traditional roles of Australian cancer registries have been incidence, mortality and survival surveillance although increasingly, roles are being broadened to include data support for health-service management and evaluation. In some Australian jurisdictions, cancer stage and other prognostic data are being included in registry databases and this is being facilitated by an increase in structured pathology reporting by pathology and haematology laboratories. Data linkage facilities are being extended across the country at national and jurisdictional level, facilitating data linkage between registry data and data extracts from administrative databases that include treatment, screening and vaccination data, and self-reported data from large population cohorts. Well-established linkage protocols exist to protect privacy. The aim is to gain better data on patterns of care, service outcomes and related performance indicators for health-service management and population health and health-services research, at a time of increasing cost pressures. Barriers include wariness among some data custodians towards releasing data and the need for clearance for data release from large numbers of research ethics committees. Progress is being made though, and proof of concept is being established.

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