Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer

David Kissane, Snehal G Patel, Raymond Baser, Rachel Bell, Maria Farberov, Jamie S Ostroff, Yuelin Li, Bhuvanesh Singh, Dennis H Kraus, Jatin P Shah

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Abstract

Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20-item SSS had a Cronbach s alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers
Original languageEnglish
Pages (from-to)172 - 183
Number of pages12
JournalHead & Neck
Volume35
Issue number2
DOIs
Publication statusPublished - 2013
Externally publishedYes

Cite this

Kissane, D., Patel, S. G., Baser, R., Bell, R., Farberov, M., Ostroff, J. S., ... Shah, J. P. (2013). Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer. Head & Neck, 35(2), 172 - 183. https://doi.org/10.1002/hed.22943
Kissane, David ; Patel, Snehal G ; Baser, Raymond ; Bell, Rachel ; Farberov, Maria ; Ostroff, Jamie S ; Li, Yuelin ; Singh, Bhuvanesh ; Kraus, Dennis H ; Shah, Jatin P. / Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer. In: Head & Neck. 2013 ; Vol. 35, No. 2. pp. 172 - 183.
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abstract = "Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20-item SSS had a Cronbach s alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers",
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Kissane, D, Patel, SG, Baser, R, Bell, R, Farberov, M, Ostroff, JS, Li, Y, Singh, B, Kraus, DH & Shah, JP 2013, 'Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer', Head & Neck, vol. 35, no. 2, pp. 172 - 183. https://doi.org/10.1002/hed.22943

Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer. / Kissane, David; Patel, Snehal G; Baser, Raymond; Bell, Rachel; Farberov, Maria; Ostroff, Jamie S; Li, Yuelin; Singh, Bhuvanesh; Kraus, Dennis H; Shah, Jatin P.

In: Head & Neck, Vol. 35, No. 2, 2013, p. 172 - 183.

Research output: Contribution to journalArticleResearchpeer-review

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T1 - Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer

AU - Kissane, David

AU - Patel, Snehal G

AU - Baser, Raymond

AU - Bell, Rachel

AU - Farberov, Maria

AU - Ostroff, Jamie S

AU - Li, Yuelin

AU - Singh, Bhuvanesh

AU - Kraus, Dennis H

AU - Shah, Jatin P

PY - 2013

Y1 - 2013

N2 - Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20-item SSS had a Cronbach s alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers

AB - Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20-item SSS had a Cronbach s alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers

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