Preferences for health information and decision-making: development of the Health Information Wants (HIW) questionnaire

Bo Xie, Mo Wang, Robert Feldman

Research output: Chapter in Book/Report/Conference proceedingConference PaperOtherpeer-review

12 Citations (Scopus)


The Health Information Wants (HIW) Questionnaire was developed to measure 1) a broad range of the types and amount of each type of information health consumers want to have in dealing with health-related issues; and 2) the degree to which health consumers want to participate in each type of decision-making in each corresponding area. With parallel items in each corresponding area of information and decision-making, this instrument can reveal the relationship between information and decision-making preferences in each area. This paper reports the multi-stage development process of this instrument that lasted for over two years. This process included: 1) a grounded theory-driven exploratory study that identified the core framework; 2) initial item development based on the literature and the exploratory study; 3) content validity testing; 4) cognitive testing; and 5) a pilot study testing the psychometrics of the instrument.

Original languageEnglish
Title of host publicationiConference '11
Subtitle of host publicationProceedings of the 2011 iConference
Place of PublicationNew York NY USA
PublisherAssociation for Computing Machinery (ACM)
Number of pages8
ISBN (Print)9781450301213
Publication statusPublished - 18 Mar 2011
Externally publishedYes
EventiConference 2011: Inspiration, Integrity, and Intrepidity - Seattle USA, Seattle, United States of America
Duration: 8 Feb 201111 Feb 2011 (conference program)


ConferenceiConference 2011
Country/TerritoryUnited States of America
Internet address


  • Decision-making
  • Health information
  • Health information wants (HIW)
  • Instrument development

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