TY - JOUR
T1 - Practical Guidance for Involving Stakeholders in Health Research
AU - Concannon, Thomas W.
AU - Grant, Sean
AU - Welch, Vivian
AU - Petkovic, Jennifer
AU - Selby, Joseph
AU - Crowe, Sally
AU - Synnot, Anneliese
AU - Greer-Smith, Regina
AU - Mayo-Wilson, Evan
AU - Tambor, Ellen
AU - Tugwell, Peter
AU - for the Multi Stakeholder Engagement (MuSE) Consortium
N1 - Funding Information:
The authors wish to thank Amanda Borsky, Angela Coulter, Zo? Gray, Jeanne-Marie Guise, Sophie Hill, Joan Powell, Laurel Pracht, Beverly Rogers, and Beverly Shea for sharing resources from a variety of countries and for their detailed reviews of an earlier version of this manuscript. We thank MuSE project manager Jennifer Vincent for keeping this work on track and RAND colleague Kristin Sereyko for preparing the manuscript for publication. This paper has not been presented at any previous conferences.
Publisher Copyright:
© 2018, Society of General Internal Medicine.
PY - 2019/3/15
Y1 - 2019/3/15
N2 - Stakeholder engagement is increasingly common in health research, with protocols for engaging multiple stakeholder groups becoming normative in patient-centered outcomes research. Previous work has focused on identifying relevant stakeholder groups with whom to work and on working with stakeholders in evidence implementation. This paper draws on the expertise of a team from four countries—Canada, Australia, the UK, and the USA—to provide researchers with practical guidance for carrying out multi-stakeholder–engaged projects: we present a list of questions to assist in selecting appropriate roles and modes of engagement; we introduce a matrix to help summarize engagement activities; and we provide a list of online resources. This guidance, matrix, and list of resources can assist researchers to consider more systematically which stakeholder groups to involve, in what study roles, and by what modes of engagement. By documenting how stakeholders are paired up with specific roles, the matrix also provides a potential structure for evaluating the impact of stakeholder engagement.
AB - Stakeholder engagement is increasingly common in health research, with protocols for engaging multiple stakeholder groups becoming normative in patient-centered outcomes research. Previous work has focused on identifying relevant stakeholder groups with whom to work and on working with stakeholders in evidence implementation. This paper draws on the expertise of a team from four countries—Canada, Australia, the UK, and the USA—to provide researchers with practical guidance for carrying out multi-stakeholder–engaged projects: we present a list of questions to assist in selecting appropriate roles and modes of engagement; we introduce a matrix to help summarize engagement activities; and we provide a list of online resources. This guidance, matrix, and list of resources can assist researchers to consider more systematically which stakeholder groups to involve, in what study roles, and by what modes of engagement. By documenting how stakeholders are paired up with specific roles, the matrix also provides a potential structure for evaluating the impact of stakeholder engagement.
KW - international health
KW - patient engagement
KW - patient-centered outcomes research
KW - research design
KW - stakeholder engagement
UR - http://www.scopus.com/inward/record.url?scp=85058950553&partnerID=8YFLogxK
U2 - 10.1007/s11606-018-4738-6
DO - 10.1007/s11606-018-4738-6
M3 - Review Article
C2 - 30565151
AN - SCOPUS:85058950553
SN - 0884-8734
VL - 34
SP - 458
EP - 463
JO - Journal of General Internal Medicine
JF - Journal of General Internal Medicine
IS - 3
ER -