TY - JOUR
T1 - Polycystic Ovary Syndrome Models of Care
T2 - A Review and Qualitative Evaluation of a Guideline-Recommended Integrated Care
AU - Tay, Chau Thien
AU - Pirotta, Stephanie
AU - Teede, Helena J.
AU - Moran, Lisa J.
AU - Robinson, Tracy
AU - Skouteris, Helen
AU - Joham, Anju E.
AU - Lim, Siew S.
N1 - Funding Information:
We are grateful to all women who participated in this study. This study received funding from the Collier Charitable Fund. C.T.T. holds a scholarship from the Centre of Research Excellence in PCOS and Research Training Program Scholarship from the Commonwealth of Australia. S.
Funding Information:
P. was funded by the Monash University Post-Graduate Stipend Scholarship and CRE PCOS PhD Scholarship Top-Up Fund. A.E.J. holds a NHMRC Early Career Fellowship. S. S.L. holds an NHMRC Early Career Fellowship. L.J.M. holds a National Heart Foundation Future Leader Fellowship. H. J.T. holds an NHMRC Medical Research Future Fund (MRFF) Fellowship.
Publisher Copyright:
© 2021. Thieme. All rights reserved.
Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.
PY - 2021/7
Y1 - 2021/7
N2 - Polycystic ovary syndrome (PCOS) is a heterogeneous disorder and many women are dissatisfied with their healthcare under the current fragmented health services. Here, we review existing literature on PCOS healthcare services and qualitatively evaluate an integrated PCOS service based on experiences of women with PCOS. Limited prior PCOS-dedicated services have been studied and their quantitative and efficacy-focused evaluations are summarized. Here, we also provide a broader PCOS service evaluation via semistructured interviews and surveys, with thematic analysis based on a predetermined evaluation framework. Fifteen women completed interviews and surveys. Overall the integrated, evidence-based PCOS service was well-received and women were generally satisfied with appropriateness, effectiveness, and reported positive health impact resulting from the service. Integrated care, tailored treatments, education, lifestyle support, and laser therapy were highly valued. Patients reported improvements on symptoms, understanding and confidence in managing PCOS, and emotional well-being. Elements of efficiency in the initial stages, awareness and communication, and the need for service expansion and tensions between evidence-based treatments and patient preferences were also captured to guide improvement. Further research into models of care is recommended to meet the needs of women with PCOS.
AB - Polycystic ovary syndrome (PCOS) is a heterogeneous disorder and many women are dissatisfied with their healthcare under the current fragmented health services. Here, we review existing literature on PCOS healthcare services and qualitatively evaluate an integrated PCOS service based on experiences of women with PCOS. Limited prior PCOS-dedicated services have been studied and their quantitative and efficacy-focused evaluations are summarized. Here, we also provide a broader PCOS service evaluation via semistructured interviews and surveys, with thematic analysis based on a predetermined evaluation framework. Fifteen women completed interviews and surveys. Overall the integrated, evidence-based PCOS service was well-received and women were generally satisfied with appropriateness, effectiveness, and reported positive health impact resulting from the service. Integrated care, tailored treatments, education, lifestyle support, and laser therapy were highly valued. Patients reported improvements on symptoms, understanding and confidence in managing PCOS, and emotional well-being. Elements of efficiency in the initial stages, awareness and communication, and the need for service expansion and tensions between evidence-based treatments and patient preferences were also captured to guide improvement. Further research into models of care is recommended to meet the needs of women with PCOS.
KW - evaluation
KW - healthcare service
KW - model of care
KW - polycystic ovary syndrome
KW - qualitative study
UR - http://www.scopus.com/inward/record.url?scp=85115280005&partnerID=8YFLogxK
U2 - 10.1055/s-0041-1727191
DO - 10.1055/s-0041-1727191
M3 - Review Article
C2 - 34187051
AN - SCOPUS:85115280005
SN - 1526-8004
VL - 39
SP - 133
EP - 142
JO - Seminars in Reproductive Medicine
JF - Seminars in Reproductive Medicine
IS - 03/04
ER -