Persuasive bodies

Testimonies of deep brain stimulation and Parkinson's on YouTube

John Gardner, Narelle Warren, Courtney Addison, Gabby Samuel

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Contemporary publics actively engage with diverse forms of media when seeking health-related information. The hugely popular digital media platform YouTube has become one means by which people share their experiences of healthcare. In this paper, we examine amateur YouTube videos featuring people receiving Deep Brain Stimulation (DBS) for the treatment of Parkinson's disease. DBS has become a widely implemented treatment, and it is surrounded by high expectations that can create difficulty for clinicians, patients and their families. We examine how DBS, Parkinson's disease, and DBS recipients themselves, are delineated within these YouTube videos. The videos, we demonstrate, contain common compositional and stylistic elements that collectively represent DBS as a technological fix, and which accentuate the autonomy of the DBS recipient. The relational, interpersonal dimensions of chronic illness, and the complex impact of DBS on family dynamics, are elided. We therefore shed light on the means by which high expectations regarding DBS are sustained and circulated, and more generally, we illustrate how potentially powerful representations of medical technologies can emerge from the intersection of social media platforms, afflicted bodies and patient narratives.

Original languageEnglish
Pages (from-to)44-51
Number of pages8
JournalSocial Science and Medicine
Volume222
DOIs
Publication statusPublished - 2019

Keywords

  • Chronic illness
  • Digital health
  • Narrative
  • Neurostimulation
  • Social media
  • Technology

Cite this

@article{52245bba729b4e4c8e6bfb858a41f5e5,
title = "Persuasive bodies: Testimonies of deep brain stimulation and Parkinson's on YouTube",
abstract = "Contemporary publics actively engage with diverse forms of media when seeking health-related information. The hugely popular digital media platform YouTube has become one means by which people share their experiences of healthcare. In this paper, we examine amateur YouTube videos featuring people receiving Deep Brain Stimulation (DBS) for the treatment of Parkinson's disease. DBS has become a widely implemented treatment, and it is surrounded by high expectations that can create difficulty for clinicians, patients and their families. We examine how DBS, Parkinson's disease, and DBS recipients themselves, are delineated within these YouTube videos. The videos, we demonstrate, contain common compositional and stylistic elements that collectively represent DBS as a technological fix, and which accentuate the autonomy of the DBS recipient. The relational, interpersonal dimensions of chronic illness, and the complex impact of DBS on family dynamics, are elided. We therefore shed light on the means by which high expectations regarding DBS are sustained and circulated, and more generally, we illustrate how potentially powerful representations of medical technologies can emerge from the intersection of social media platforms, afflicted bodies and patient narratives.",
keywords = "Chronic illness, Digital health, Narrative, Neurostimulation, Social media, Technology",
author = "John Gardner and Narelle Warren and Courtney Addison and Gabby Samuel",
year = "2019",
doi = "10.1016/j.socscimed.2018.12.036",
language = "English",
volume = "222",
pages = "44--51",
journal = "Social Science and Medicine",
issn = "0277-9536",
publisher = "Pergamon",

}

Persuasive bodies : Testimonies of deep brain stimulation and Parkinson's on YouTube. / Gardner, John; Warren, Narelle; Addison, Courtney; Samuel, Gabby.

In: Social Science and Medicine, Vol. 222, 2019, p. 44-51.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Persuasive bodies

T2 - Testimonies of deep brain stimulation and Parkinson's on YouTube

AU - Gardner, John

AU - Warren, Narelle

AU - Addison, Courtney

AU - Samuel, Gabby

PY - 2019

Y1 - 2019

N2 - Contemporary publics actively engage with diverse forms of media when seeking health-related information. The hugely popular digital media platform YouTube has become one means by which people share their experiences of healthcare. In this paper, we examine amateur YouTube videos featuring people receiving Deep Brain Stimulation (DBS) for the treatment of Parkinson's disease. DBS has become a widely implemented treatment, and it is surrounded by high expectations that can create difficulty for clinicians, patients and their families. We examine how DBS, Parkinson's disease, and DBS recipients themselves, are delineated within these YouTube videos. The videos, we demonstrate, contain common compositional and stylistic elements that collectively represent DBS as a technological fix, and which accentuate the autonomy of the DBS recipient. The relational, interpersonal dimensions of chronic illness, and the complex impact of DBS on family dynamics, are elided. We therefore shed light on the means by which high expectations regarding DBS are sustained and circulated, and more generally, we illustrate how potentially powerful representations of medical technologies can emerge from the intersection of social media platforms, afflicted bodies and patient narratives.

AB - Contemporary publics actively engage with diverse forms of media when seeking health-related information. The hugely popular digital media platform YouTube has become one means by which people share their experiences of healthcare. In this paper, we examine amateur YouTube videos featuring people receiving Deep Brain Stimulation (DBS) for the treatment of Parkinson's disease. DBS has become a widely implemented treatment, and it is surrounded by high expectations that can create difficulty for clinicians, patients and their families. We examine how DBS, Parkinson's disease, and DBS recipients themselves, are delineated within these YouTube videos. The videos, we demonstrate, contain common compositional and stylistic elements that collectively represent DBS as a technological fix, and which accentuate the autonomy of the DBS recipient. The relational, interpersonal dimensions of chronic illness, and the complex impact of DBS on family dynamics, are elided. We therefore shed light on the means by which high expectations regarding DBS are sustained and circulated, and more generally, we illustrate how potentially powerful representations of medical technologies can emerge from the intersection of social media platforms, afflicted bodies and patient narratives.

KW - Chronic illness

KW - Digital health

KW - Narrative

KW - Neurostimulation

KW - Social media

KW - Technology

UR - http://www.scopus.com/inward/record.url?scp=85059177436&partnerID=8YFLogxK

U2 - 10.1016/j.socscimed.2018.12.036

DO - 10.1016/j.socscimed.2018.12.036

M3 - Article

VL - 222

SP - 44

EP - 51

JO - Social Science and Medicine

JF - Social Science and Medicine

SN - 0277-9536

ER -