Patients’ perceived needs of osteoarthritis health information

A systematic scoping review

Louisa Chou, Lisa Ellis, Michelle Papandony, K. L. D. Maheeka Seneviwickrama, Flavia M. Cicuttini, Kaye Sullivan, Andrew J. Teichtahl, Yuanyuan Wang, Andrew M. Briggs, Anita E. Wluka

Research output: Contribution to journalReview ArticleResearchpeer-review

4 Citations (Scopus)

Abstract

Background Optimal management of osteoarthritis requires active patient participation. Understanding patients’ perceived health information needs is important in order to optimize health service delivery and health outcomes in osteoarthritis. We aimed to review the existing literature regarding patients’ perceived health information needs for OA. Methods A systematic scoping review was performed of publications in MEDLINE, EMBASE, CINAHL and PsycINFO (1990–2016). Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Aggregates of patients’ perceived needs of osteoarthritis health information were categorized. Results 30 studies from 2876 were included: 16 qualitative, 11 quantitative and 3 mixed-methods studies. Three areas of perceived need emerged: (1) Need for clear communication: terms used were misunderstood or had unintended connotations. Patients wanted clear explanations. (2) Need for information from various sources: patients wanted accessible health professionals with specialist knowledge of arthritis. The Internet, whilst a source of information, was acknowledged to have dubious reliability. Print media, television, support groups, family and friends were utilised to fulfil diverse information needs. (3) Needs of information content: patients desired more information about diagnosis, prognosis, management and prevention. Conclusions Patients desire more information regarding the diagnosis of osteoarthritis, its impact on daily life and its long-term prognosis. They want more information not only about pharmacological management options, but also non-pharmacological options to help them manage their symptoms. Also, patients wanted this information to be delivered in a clear manner from multiple sources of health information. To address these gaps, more effective communication strategies are required. The use of a variety of sources and modes of delivery may enable the provision of complementary material to provide information more successfully, resulting in better patient adherence to guidelines and improved health outcomes.

Original languageEnglish
Article numbere0195489
Number of pages24
JournalPLoS ONE
Volume13
Issue number4
DOIs
Publication statusPublished - 1 Apr 2018

Cite this

Chou, Louisa ; Ellis, Lisa ; Papandony, Michelle ; Maheeka Seneviwickrama, K. L. D. ; Cicuttini, Flavia M. ; Sullivan, Kaye ; Teichtahl, Andrew J. ; Wang, Yuanyuan ; Briggs, Andrew M. ; Wluka, Anita E. / Patients’ perceived needs of osteoarthritis health information : A systematic scoping review. In: PLoS ONE. 2018 ; Vol. 13, No. 4.
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title = "Patients’ perceived needs of osteoarthritis health information: A systematic scoping review",
abstract = "Background Optimal management of osteoarthritis requires active patient participation. Understanding patients’ perceived health information needs is important in order to optimize health service delivery and health outcomes in osteoarthritis. We aimed to review the existing literature regarding patients’ perceived health information needs for OA. Methods A systematic scoping review was performed of publications in MEDLINE, EMBASE, CINAHL and PsycINFO (1990–2016). Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Aggregates of patients’ perceived needs of osteoarthritis health information were categorized. Results 30 studies from 2876 were included: 16 qualitative, 11 quantitative and 3 mixed-methods studies. Three areas of perceived need emerged: (1) Need for clear communication: terms used were misunderstood or had unintended connotations. Patients wanted clear explanations. (2) Need for information from various sources: patients wanted accessible health professionals with specialist knowledge of arthritis. The Internet, whilst a source of information, was acknowledged to have dubious reliability. Print media, television, support groups, family and friends were utilised to fulfil diverse information needs. (3) Needs of information content: patients desired more information about diagnosis, prognosis, management and prevention. Conclusions Patients desire more information regarding the diagnosis of osteoarthritis, its impact on daily life and its long-term prognosis. They want more information not only about pharmacological management options, but also non-pharmacological options to help them manage their symptoms. Also, patients wanted this information to be delivered in a clear manner from multiple sources of health information. To address these gaps, more effective communication strategies are required. The use of a variety of sources and modes of delivery may enable the provision of complementary material to provide information more successfully, resulting in better patient adherence to guidelines and improved health outcomes.",
author = "Louisa Chou and Lisa Ellis and Michelle Papandony and {Maheeka Seneviwickrama}, {K. L. D.} and Cicuttini, {Flavia M.} and Kaye Sullivan and Teichtahl, {Andrew J.} and Yuanyuan Wang and Briggs, {Andrew M.} and Wluka, {Anita E.}",
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Chou, L, Ellis, L, Papandony, M, Maheeka Seneviwickrama, KLD, Cicuttini, FM, Sullivan, K, Teichtahl, AJ, Wang, Y, Briggs, AM & Wluka, AE 2018, 'Patients’ perceived needs of osteoarthritis health information: A systematic scoping review', PLoS ONE, vol. 13, no. 4, e0195489. https://doi.org/10.1371/journal.pone.0195489

Patients’ perceived needs of osteoarthritis health information : A systematic scoping review. / Chou, Louisa; Ellis, Lisa; Papandony, Michelle; Maheeka Seneviwickrama, K. L. D.; Cicuttini, Flavia M.; Sullivan, Kaye; Teichtahl, Andrew J.; Wang, Yuanyuan; Briggs, Andrew M.; Wluka, Anita E.

In: PLoS ONE, Vol. 13, No. 4, e0195489, 01.04.2018.

Research output: Contribution to journalReview ArticleResearchpeer-review

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T2 - A systematic scoping review

AU - Chou, Louisa

AU - Ellis, Lisa

AU - Papandony, Michelle

AU - Maheeka Seneviwickrama, K. L. D.

AU - Cicuttini, Flavia M.

AU - Sullivan, Kaye

AU - Teichtahl, Andrew J.

AU - Wang, Yuanyuan

AU - Briggs, Andrew M.

AU - Wluka, Anita E.

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N2 - Background Optimal management of osteoarthritis requires active patient participation. Understanding patients’ perceived health information needs is important in order to optimize health service delivery and health outcomes in osteoarthritis. We aimed to review the existing literature regarding patients’ perceived health information needs for OA. Methods A systematic scoping review was performed of publications in MEDLINE, EMBASE, CINAHL and PsycINFO (1990–2016). Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Aggregates of patients’ perceived needs of osteoarthritis health information were categorized. Results 30 studies from 2876 were included: 16 qualitative, 11 quantitative and 3 mixed-methods studies. Three areas of perceived need emerged: (1) Need for clear communication: terms used were misunderstood or had unintended connotations. Patients wanted clear explanations. (2) Need for information from various sources: patients wanted accessible health professionals with specialist knowledge of arthritis. The Internet, whilst a source of information, was acknowledged to have dubious reliability. Print media, television, support groups, family and friends were utilised to fulfil diverse information needs. (3) Needs of information content: patients desired more information about diagnosis, prognosis, management and prevention. Conclusions Patients desire more information regarding the diagnosis of osteoarthritis, its impact on daily life and its long-term prognosis. They want more information not only about pharmacological management options, but also non-pharmacological options to help them manage their symptoms. Also, patients wanted this information to be delivered in a clear manner from multiple sources of health information. To address these gaps, more effective communication strategies are required. The use of a variety of sources and modes of delivery may enable the provision of complementary material to provide information more successfully, resulting in better patient adherence to guidelines and improved health outcomes.

AB - Background Optimal management of osteoarthritis requires active patient participation. Understanding patients’ perceived health information needs is important in order to optimize health service delivery and health outcomes in osteoarthritis. We aimed to review the existing literature regarding patients’ perceived health information needs for OA. Methods A systematic scoping review was performed of publications in MEDLINE, EMBASE, CINAHL and PsycINFO (1990–2016). Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Aggregates of patients’ perceived needs of osteoarthritis health information were categorized. Results 30 studies from 2876 were included: 16 qualitative, 11 quantitative and 3 mixed-methods studies. Three areas of perceived need emerged: (1) Need for clear communication: terms used were misunderstood or had unintended connotations. Patients wanted clear explanations. (2) Need for information from various sources: patients wanted accessible health professionals with specialist knowledge of arthritis. The Internet, whilst a source of information, was acknowledged to have dubious reliability. Print media, television, support groups, family and friends were utilised to fulfil diverse information needs. (3) Needs of information content: patients desired more information about diagnosis, prognosis, management and prevention. Conclusions Patients desire more information regarding the diagnosis of osteoarthritis, its impact on daily life and its long-term prognosis. They want more information not only about pharmacological management options, but also non-pharmacological options to help them manage their symptoms. Also, patients wanted this information to be delivered in a clear manner from multiple sources of health information. To address these gaps, more effective communication strategies are required. The use of a variety of sources and modes of delivery may enable the provision of complementary material to provide information more successfully, resulting in better patient adherence to guidelines and improved health outcomes.

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Chou L, Ellis L, Papandony M, Maheeka Seneviwickrama KLD, Cicuttini FM, Sullivan K et al. Patients’ perceived needs of osteoarthritis health information: A systematic scoping review. PLoS ONE. 2018 Apr 1;13(4). e0195489. https://doi.org/10.1371/journal.pone.0195489