Patient Preferences for Time and Location of Infusible Therapies in Multiple Sclerosis and Neuroimmunologic Disorders: Preferred time and location of infusible therapies 1 in Multiple Sclerosis and Neuroimmunological disorders

Louise Rath, Pia Campagna, Jim Stankovich, Julian Ellis, Vilija Jokubaitis, Denise McCarthy, Cassie Nesbitt, Wei Zhen Yeh, Michael Ling Xiao Zhong, Robb Wesselingh, Mastura Monif, Janene Richards, Viet Bui, Olga Skibina, Helmut Butzkueven, Anneke Van Der Walt

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Background: People with multiple sclerosis and neuroimmunologic disorders (herein referred to as patients) are increasingly treated with infusible monoclonal antibodies. This rise in demand has placed increased loads on current infusion services and mandates careful strategic planning. This study examined patient preferences for the timing and location of infusions and their association with demographic and disease variables to facilitate patient-focused strategic planning. Methods: Ninety-one patients receiving an infusible therapy at an infusion service during March 2019 were asked to complete a questionnaire exploring eight domains, including preferences for time of infusions and location of infusion centers. Potential access to home-based treatment was included as an option. Unstructured (free-text) feedback on current service was also obtained. Results: Eighty-three patients completed the survey (mean age, 42 years; 75% women). Infusions were predominantly natalizumab (66%) and ocrelizumab (25%). Of these patients, 71% were engaged in some form of work or study, and 83% of this group had to arrange time off from work or study to attend treatment. Seventy percent of patients would prefer their infusion before noon, and 60% would consider home-based infusions. Most used a car as their transport to the infusion service. Conclusions: These results suggest that patients are more likely to prefer infusible treatment in the morning and are open to home-based infusions. This study provides information for health services to target service delivery at peak preference times and consider alternate ways of delivering infusible treatments. Int J MS Care. 2021;23:114-118.

Original languageEnglish
Pages (from-to)114-118
Number of pages5
JournalInternational Journal of MS Care
Volume23
Issue number3
DOIs
Publication statusPublished - May 2021

Keywords

  • Multiple Sclerosis
  • Infusion service
  • Patient engagement
  • Patient preference
  • Strategic planning
  • Health delivery
  • Ambulatory care

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