Abstract
Background: Care that is patient-centred is more likely to be sustainable and associated with improved health outcomes. This approach to care requires an understanding of patients' health service needs, yet few studies have directly investigated the perceived health service needs of people with inflammatory arthritis. Objectives: To systematically identify the existing literature relating to patient perceived health service needs for inflammatory arthritis. Methods: A systematic review of MEDLINE, EMBASE, CINAHL, and PsycINFO was conducted (1990-2016). Studies examining patients' perceived needs relating to health services for inflammatory arthritis were identified. Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Findings were collated and categorized thematically. Results: In total, 27 of 1405 (16 qualitative, 9 quantitative, and 2 mixed-methods) studies were relevant. The main areas of perceived need related to (1) Communication: consumers wanted clear, empathic communication, and to be involved with decision-making. (2) Characteristics of ongoing care: adequate consultation length with continuity and timely care were valued. (3) Factors influencing care-seeking included individual attitudes, disease severity, finances and family expectations. (4) Allied health and complementary and alternative medicines (CAM) were perceived as useful by many. The reporting of CAM use to doctors was variable, with several factors contributing to under-reporting. Conclusions: This review identified patients' perceived needs for better communication with their health providers, the heterogeneity of influences determining when care is sought and preferences regarding non-pharmacologic therapies. Aligning patients' perceived needs with evidence-based therapy for people with inflammatory arthritis will be important in optimizing patient outcomes.
| Original language | English |
|---|---|
| Pages (from-to) | 765-777 |
| Number of pages | 13 |
| Journal | Seminars in Arthritis and Rheumatism |
| Volume | 47 |
| Issue number | 6 |
| DOIs | |
| Publication status | Published - Jun 2018 |
Keywords
- Ankylosing spondylitis
- Complementary and alternative medicines
- Health services
- Inflammatory arthritis
- Patient-centered care
- Rheumatoid arthritis
- Systematic review
Cite this
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Patient-perceived health service needs in inflammatory arthritis : A systematic scoping review. / Segan, Julian D.; Briggs, Andrew M.; Chou, Louisa; Connelly, Kathryn L.; Seneviwickrama, Maheeka; Sullivan, Kaye; Cicuttini, Flavia M.; Wluka, Anita E.
In: Seminars in Arthritis and Rheumatism, Vol. 47, No. 6, 06.2018, p. 765-777.Research output: Contribution to journal › Article › Research › peer-review
TY - JOUR
T1 - Patient-perceived health service needs in inflammatory arthritis
T2 - A systematic scoping review
AU - Segan, Julian D.
AU - Briggs, Andrew M.
AU - Chou, Louisa
AU - Connelly, Kathryn L.
AU - Seneviwickrama, Maheeka
AU - Sullivan, Kaye
AU - Cicuttini, Flavia M.
AU - Wluka, Anita E.
PY - 2018/6
Y1 - 2018/6
N2 - Background: Care that is patient-centred is more likely to be sustainable and associated with improved health outcomes. This approach to care requires an understanding of patients' health service needs, yet few studies have directly investigated the perceived health service needs of people with inflammatory arthritis. Objectives: To systematically identify the existing literature relating to patient perceived health service needs for inflammatory arthritis. Methods: A systematic review of MEDLINE, EMBASE, CINAHL, and PsycINFO was conducted (1990-2016). Studies examining patients' perceived needs relating to health services for inflammatory arthritis were identified. Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Findings were collated and categorized thematically. Results: In total, 27 of 1405 (16 qualitative, 9 quantitative, and 2 mixed-methods) studies were relevant. The main areas of perceived need related to (1) Communication: consumers wanted clear, empathic communication, and to be involved with decision-making. (2) Characteristics of ongoing care: adequate consultation length with continuity and timely care were valued. (3) Factors influencing care-seeking included individual attitudes, disease severity, finances and family expectations. (4) Allied health and complementary and alternative medicines (CAM) were perceived as useful by many. The reporting of CAM use to doctors was variable, with several factors contributing to under-reporting. Conclusions: This review identified patients' perceived needs for better communication with their health providers, the heterogeneity of influences determining when care is sought and preferences regarding non-pharmacologic therapies. Aligning patients' perceived needs with evidence-based therapy for people with inflammatory arthritis will be important in optimizing patient outcomes.
AB - Background: Care that is patient-centred is more likely to be sustainable and associated with improved health outcomes. This approach to care requires an understanding of patients' health service needs, yet few studies have directly investigated the perceived health service needs of people with inflammatory arthritis. Objectives: To systematically identify the existing literature relating to patient perceived health service needs for inflammatory arthritis. Methods: A systematic review of MEDLINE, EMBASE, CINAHL, and PsycINFO was conducted (1990-2016). Studies examining patients' perceived needs relating to health services for inflammatory arthritis were identified. Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Findings were collated and categorized thematically. Results: In total, 27 of 1405 (16 qualitative, 9 quantitative, and 2 mixed-methods) studies were relevant. The main areas of perceived need related to (1) Communication: consumers wanted clear, empathic communication, and to be involved with decision-making. (2) Characteristics of ongoing care: adequate consultation length with continuity and timely care were valued. (3) Factors influencing care-seeking included individual attitudes, disease severity, finances and family expectations. (4) Allied health and complementary and alternative medicines (CAM) were perceived as useful by many. The reporting of CAM use to doctors was variable, with several factors contributing to under-reporting. Conclusions: This review identified patients' perceived needs for better communication with their health providers, the heterogeneity of influences determining when care is sought and preferences regarding non-pharmacologic therapies. Aligning patients' perceived needs with evidence-based therapy for people with inflammatory arthritis will be important in optimizing patient outcomes.
KW - Ankylosing spondylitis
KW - Complementary and alternative medicines
KW - Health services
KW - Inflammatory arthritis
KW - Patient-centered care
KW - Rheumatoid arthritis
KW - Systematic review
UR - http://www.scopus.com/inward/record.url?scp=85034970767&partnerID=8YFLogxK
U2 - 10.1016/j.semarthrit.2017.10.019
DO - 10.1016/j.semarthrit.2017.10.019
M3 - Article
VL - 47
SP - 765
EP - 777
JO - Seminars in Arthritis and Rheumatism
JF - Seminars in Arthritis and Rheumatism
SN - 0049-0172
IS - 6
ER -