Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage?

Patrick Cheong-Iao Pang; Meredith Temple-Smith; Clare Bellhouse; Van-Hau Trieu; Litza Kiropoulos; Helen Williams; Arri Coomarasamy; Jane Brewin; Amanda Bowles; Jade Bilardi

doi:10.3233/978-1-61499-890-7-118

Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage?

Patrick Cheong-Iao Pang, Meredith Temple-Smith, Clare Bellhouse, Van-Hau Trieu, Litza Kiropoulos, Helen Williams, Arri Coomarasamy, Jane Brewin, Amanda Bowles, Jade Bilardi

Melbourne Sexual Health Centre

Research output: Chapter in Book/Report/Conference proceeding › Conference Paper › Research › peer-review

17 Citations (Scopus)

Abstract

One in four pregnancies ends in miscarriage, a distressing event which can cause significant psychosocial impacts for many women, and yet often remains unseen and unspoken. Many would-be mothers turn to the internet for information and emotional support, and to share their experiences. In this paper, we present the results from 12 semi-structured interviews with women, investigating how and what online information they searched for at the time of miscarriage. We found that women are passive information seekers, searching for causes and preventive strategies to inform future pregnancies. Women want information presented in an easy to understand manner that is not overly clinical, and informed by credible sources. Women also seek psychological support and emotional relief through reading about others' experiences and sharing their stories online. The findings from this study provide a unique insight into the support and information needs of women, and will be used to guide the content, design and functionality of web-based technologies for women experiencing miscarriage.

Original language	English
Title of host publication	Connecting the System to Enhance the Practitioner and Consumer Experience in Healthcare
Subtitle of host publication	Selected Papers from the 26th Australian National Health Informatics Conference (HIC 2018)
Publisher	IOS Press
Pages	118-125
Number of pages	8
ISBN (Electronic)	9781614998907
ISBN (Print)	9781614998891
DOIs	https://doi.org/10.3233/978-1-61499-890-7-118
Publication status	Published - 1 Jan 2018
Event	National Health Informatics Conference 2018 - Sydney, Australia Duration: 29 Jul 2018 → 1 Aug 2018 Conference number: 26th https://ebooks.iospress.nl/volume/connecting-the-system-to-enhance-the-practitioner-and-consumer-experience-in-healthcare-selected-papers-from-the-26th-australian-national-health-informatics-con

Publication series

Name	Studies in Health Technology and Informatics
Publisher	IOS Press
Volume	252
ISSN (Print)	0926-9630

Conference

Conference	National Health Informatics Conference 2018
Abbreviated title	HIC 2018
Country/Territory	Australia
City	Sydney
Period	29/07/18 → 1/08/18
Internet address	https://ebooks.iospress.nl/volume/connecting-the-system-to-enhance-the-practitioner-and-consumer-experience-in-healthcare-selected-papers-from-the-26th-australian-national-health-informatics-con

Keywords

health information-seeking behaviour
information needs
Miscarriage
online
pregnancy loss

Access to Document

10.3233/978-1-61499-890-7-118

Cite this

Pang, P. C.-I., Temple-Smith, M., Bellhouse, C., Trieu, V.-H., Kiropoulos, L., Williams, H., Coomarasamy, A., Brewin, J., Bowles, A., & Bilardi, J. (2018). Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage? In Connecting the System to Enhance the Practitioner and Consumer Experience in Healthcare: Selected Papers from the 26th Australian National Health Informatics Conference (HIC 2018) (pp. 118-125). (Studies in Health Technology and Informatics; Vol. 252). IOS Press. https://doi.org/10.3233/978-1-61499-890-7-118

Pang, Patrick Cheong-Iao ; Temple-Smith, Meredith ; Bellhouse, Clare et al. / Online Health Seeking Behaviours : What Information Is Sought by Women Experiencing Miscarriage?. Connecting the System to Enhance the Practitioner and Consumer Experience in Healthcare: Selected Papers from the 26th Australian National Health Informatics Conference (HIC 2018). IOS Press, 2018. pp. 118-125 (Studies in Health Technology and Informatics).

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title = "Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage?",

abstract = "One in four pregnancies ends in miscarriage, a distressing event which can cause significant psychosocial impacts for many women, and yet often remains unseen and unspoken. Many would-be mothers turn to the internet for information and emotional support, and to share their experiences. In this paper, we present the results from 12 semi-structured interviews with women, investigating how and what online information they searched for at the time of miscarriage. We found that women are passive information seekers, searching for causes and preventive strategies to inform future pregnancies. Women want information presented in an easy to understand manner that is not overly clinical, and informed by credible sources. Women also seek psychological support and emotional relief through reading about others' experiences and sharing their stories online. The findings from this study provide a unique insight into the support and information needs of women, and will be used to guide the content, design and functionality of web-based technologies for women experiencing miscarriage.",

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url = "https://ebooks.iospress.nl/volume/connecting-the-system-to-enhance-the-practitioner-and-consumer-experience-in-healthcare-selected-papers-from-the-26th-australian-national-health-informatics-con",

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Pang, PC-I, Temple-Smith, M, Bellhouse, C, Trieu, V-H, Kiropoulos, L, Williams, H, Coomarasamy, A, Brewin, J, Bowles, A & Bilardi, J 2018, Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage? in Connecting the System to Enhance the Practitioner and Consumer Experience in Healthcare: Selected Papers from the 26th Australian National Health Informatics Conference (HIC 2018). Studies in Health Technology and Informatics, vol. 252, IOS Press, pp. 118-125, National Health Informatics Conference 2018, Sydney, New South Wales, Australia, 29/07/18. https://doi.org/10.3233/978-1-61499-890-7-118

Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage? / Pang, Patrick Cheong-Iao; Temple-Smith, Meredith; Bellhouse, Clare et al.
Connecting the System to Enhance the Practitioner and Consumer Experience in Healthcare: Selected Papers from the 26th Australian National Health Informatics Conference (HIC 2018). IOS Press, 2018. p. 118-125 (Studies in Health Technology and Informatics; Vol. 252).

Research output: Chapter in Book/Report/Conference proceeding › Conference Paper › Research › peer-review

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AU - Bellhouse, Clare

AU - Trieu, Van-Hau

AU - Kiropoulos, Litza

AU - Williams, Helen

AU - Coomarasamy, Arri

AU - Brewin, Jane

AU - Bowles, Amanda

AU - Bilardi, Jade

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N2 - One in four pregnancies ends in miscarriage, a distressing event which can cause significant psychosocial impacts for many women, and yet often remains unseen and unspoken. Many would-be mothers turn to the internet for information and emotional support, and to share their experiences. In this paper, we present the results from 12 semi-structured interviews with women, investigating how and what online information they searched for at the time of miscarriage. We found that women are passive information seekers, searching for causes and preventive strategies to inform future pregnancies. Women want information presented in an easy to understand manner that is not overly clinical, and informed by credible sources. Women also seek psychological support and emotional relief through reading about others' experiences and sharing their stories online. The findings from this study provide a unique insight into the support and information needs of women, and will be used to guide the content, design and functionality of web-based technologies for women experiencing miscarriage.

AB - One in four pregnancies ends in miscarriage, a distressing event which can cause significant psychosocial impacts for many women, and yet often remains unseen and unspoken. Many would-be mothers turn to the internet for information and emotional support, and to share their experiences. In this paper, we present the results from 12 semi-structured interviews with women, investigating how and what online information they searched for at the time of miscarriage. We found that women are passive information seekers, searching for causes and preventive strategies to inform future pregnancies. Women want information presented in an easy to understand manner that is not overly clinical, and informed by credible sources. Women also seek psychological support and emotional relief through reading about others' experiences and sharing their stories online. The findings from this study provide a unique insight into the support and information needs of women, and will be used to guide the content, design and functionality of web-based technologies for women experiencing miscarriage.

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Pang PCI, Temple-Smith M, Bellhouse C, Trieu VH, Kiropoulos L, Williams H et al. Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage? In Connecting the System to Enhance the Practitioner and Consumer Experience in Healthcare: Selected Papers from the 26th Australian National Health Informatics Conference (HIC 2018). IOS Press. 2018. p. 118-125. (Studies in Health Technology and Informatics). doi: 10.3233/978-1-61499-890-7-118

Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage?

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