Online Health Seeking Behaviours: What Information Is Sought by Women Experiencing Miscarriage?

Patrick Cheong-Iao Pang, Meredith Temple-Smith, Clare Bellhouse, Van-Hau Trieu, Litza Kiropoulos, Helen Williams, Arri Coomarasamy, Jane Brewin, Amanda Bowles, Jade Bilardi

Research output: Chapter in Book/Report/Conference proceedingConference PaperResearchpeer-review

13 Citations (Scopus)


One in four pregnancies ends in miscarriage, a distressing event which can cause significant psychosocial impacts for many women, and yet often remains unseen and unspoken. Many would-be mothers turn to the internet for information and emotional support, and to share their experiences. In this paper, we present the results from 12 semi-structured interviews with women, investigating how and what online information they searched for at the time of miscarriage. We found that women are passive information seekers, searching for causes and preventive strategies to inform future pregnancies. Women want information presented in an easy to understand manner that is not overly clinical, and informed by credible sources. Women also seek psychological support and emotional relief through reading about others' experiences and sharing their stories online. The findings from this study provide a unique insight into the support and information needs of women, and will be used to guide the content, design and functionality of web-based technologies for women experiencing miscarriage.

Original languageEnglish
Title of host publicationConnecting the System to Enhance the Practitioner and Consumer Experience in Healthcare
Subtitle of host publicationSelected Papers from the 26th Australian National Health Informatics Conference (HIC 2018)
PublisherIOS Press
Number of pages8
ISBN (Electronic)9781614998907
ISBN (Print)9781614998891
Publication statusPublished - 1 Jan 2018
EventNational Health Informatics Conference 2018 - Sydney, Australia
Duration: 29 Jul 20181 Aug 2018
Conference number: 26th

Publication series

NameStudies in Health Technology and Informatics
PublisherIOS Press
ISSN (Print)0926-9630


ConferenceNational Health Informatics Conference 2018
Abbreviated titleHIC 2018
Internet address


  • health information-seeking behaviour
  • information needs
  • Miscarriage
  • online
  • pregnancy loss

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