TY - JOUR
T1 - 'No one here's helping me, what do you do?'
T2 - Addressing patient need for support and advice about stem cell treatments
AU - Tanner, Claire Elizabeth
AU - Petersen, Alan Robert
AU - Munsie, Megan
PY - 2017/10
Y1 - 2017/10
N2 - Aim: This article examines how those who contemplate purported stem cell treatments (SCTs) negotiate available information sources and the adequacy of current approaches to guidance and support. Materials & methods: Qualitative interviews undertaken with people who had contemplated or undergone purported SCTs for a range of conditions (n = 24 and n = 27, respectively), as well as professionals who are frequently asked about SCTs (n = 20) were analyzed. Results: Our findings reveal the difficulties for individuals in discriminating between different sources of information on SCTs and the limitations of current responses. Conclusion: In the context of contending information about SCTs informal ('accidental') advisors potentially play a crucial role in supporting patients. Additional approaches are also required to better address patients' needs.
AB - Aim: This article examines how those who contemplate purported stem cell treatments (SCTs) negotiate available information sources and the adequacy of current approaches to guidance and support. Materials & methods: Qualitative interviews undertaken with people who had contemplated or undergone purported SCTs for a range of conditions (n = 24 and n = 27, respectively), as well as professionals who are frequently asked about SCTs (n = 20) were analyzed. Results: Our findings reveal the difficulties for individuals in discriminating between different sources of information on SCTs and the limitations of current responses. Conclusion: In the context of contending information about SCTs informal ('accidental') advisors potentially play a crucial role in supporting patients. Additional approaches are also required to better address patients' needs.
KW - advisor
KW - empirical research
KW - patient need
KW - professional responsibility
KW - stem cell treatments
UR - http://www.scopus.com/inward/record.url?scp=85033562069&partnerID=8YFLogxK
U2 - 10.2217/rme-2017-0056
DO - 10.2217/rme-2017-0056
M3 - Article
C2 - 29115901
AN - SCOPUS:85033562069
SN - 1746-0751
VL - 12
SP - 791
EP - 801
JO - Regenerative Medicine
JF - Regenerative Medicine
IS - 7
ER -