Neurodegeneration and the intersubjectivities of care

Narelle Warren, Dikaios Sakellariou

Research output: Contribution to journalArticleResearchpeer-review

12 Citations (Scopus)


Caring for a family member or friend with a serious health condition is a common feature of social life. Often, such care is framed as a burden, an unwelcome rupture in the fabric of everyday life. We draw on research conducted in Australia and the UK to examine care in the everyday lives of people living with and caring for neurodegenerative diseases and to trouble care as a burden. Participants in our studies mobilized practices of care to collaboratively produce a “good life”. We argue that above all, care is a relational, enacted practice requiring examination in its local context.

Original languageEnglish
Pages (from-to)1-15
Number of pages15
JournalMedical Anthropology
Issue number1
Publication statusPublished - 2020


  • Australia
  • care practices
  • informal care
  • intersubjectivity
  • Motor Neuron Disease
  • Parkinson’s disease
  • United Kingdom

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