Long term outcomes data for the Burns Registry of Australia and New Zealand: Is it feasible?

Belinda Jane Gabbe, Heather J Cleland, Dina Michelle Watterson, Rebecca Schrale, Sally McRae, Christine Parker, Susan B Taggart, Dale Wesley Edgar

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6 Citations (Scopus)

Abstract

Background: Incorporating routine and standardised collection of long term outcomes following burn into burn registries would improve the capacity to quantify burn burden and evaluate care. Aims: To evaluate methods for collecting the long term functional and quality of life outcomes of burns patients and establish the feasibility of implementing these outcomes into a multi-centre burns registry. Methods: Five Burns Registry of Australia and New Zealand (BRANZ) centres participated in this prospective, longitudinal study. Patients admitted to the centres between November 2009 and November 2010 were followed-up at 1, 6, 12 and 24-months after injury using measures of burn specific health, health status, fatigue, itch and return to work. Participants in the study were compared to BRANZ registered patients at the centres over the study timeframe to identify participation bias, predictors of successful follow-up were established using a Generalised Estimating Equation model, and the completion rates by mode of administration were assessed. Results: 463 patients participated in the study, representing 24 of all BRANZ admissions in the same timeframe. Compared to all BRANZ patients in the same timeframe, the median TBSA and hospital length of stay was greater in the study participants. The follow-up rates were 63 at 1-month, 47 at 6-months; 40 at 12-months, and 21 at 24-months after injury, and there was marked variation in follow-up rates between the centres. Increasing age, greater TBSA and opt-in centres were associated with greater follow-up. Centres which predominantly used one mode of administration experienced better follow-up rates. Conclusions: The low participation rates, high loss to follow-up and responder bias observed indicate that greater consideration needs to be given to alternative models for follow-up, including tailoring the follow-up protocol to burn severity or type.
Original languageEnglish
Pages (from-to)1732 - 1740
Number of pages9
JournalBurns : Journal of the International Society for Burn Injuries
Volume41
Issue number8
DOIs
Publication statusPublished - 2015

Cite this

Gabbe, Belinda Jane ; Cleland, Heather J ; Watterson, Dina Michelle ; Schrale, Rebecca ; McRae, Sally ; Parker, Christine ; Taggart, Susan B ; Edgar, Dale Wesley. / Long term outcomes data for the Burns Registry of Australia and New Zealand: Is it feasible?. In: Burns : Journal of the International Society for Burn Injuries. 2015 ; Vol. 41, No. 8. pp. 1732 - 1740.
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abstract = "Background: Incorporating routine and standardised collection of long term outcomes following burn into burn registries would improve the capacity to quantify burn burden and evaluate care. Aims: To evaluate methods for collecting the long term functional and quality of life outcomes of burns patients and establish the feasibility of implementing these outcomes into a multi-centre burns registry. Methods: Five Burns Registry of Australia and New Zealand (BRANZ) centres participated in this prospective, longitudinal study. Patients admitted to the centres between November 2009 and November 2010 were followed-up at 1, 6, 12 and 24-months after injury using measures of burn specific health, health status, fatigue, itch and return to work. Participants in the study were compared to BRANZ registered patients at the centres over the study timeframe to identify participation bias, predictors of successful follow-up were established using a Generalised Estimating Equation model, and the completion rates by mode of administration were assessed. Results: 463 patients participated in the study, representing 24 of all BRANZ admissions in the same timeframe. Compared to all BRANZ patients in the same timeframe, the median TBSA and hospital length of stay was greater in the study participants. The follow-up rates were 63 at 1-month, 47 at 6-months; 40 at 12-months, and 21 at 24-months after injury, and there was marked variation in follow-up rates between the centres. Increasing age, greater TBSA and opt-in centres were associated with greater follow-up. Centres which predominantly used one mode of administration experienced better follow-up rates. Conclusions: The low participation rates, high loss to follow-up and responder bias observed indicate that greater consideration needs to be given to alternative models for follow-up, including tailoring the follow-up protocol to burn severity or type.",
author = "Gabbe, {Belinda Jane} and Cleland, {Heather J} and Watterson, {Dina Michelle} and Rebecca Schrale and Sally McRae and Christine Parker and Taggart, {Susan B} and Edgar, {Dale Wesley}",
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doi = "10.1016/j.burns.2015.09.005",
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Long term outcomes data for the Burns Registry of Australia and New Zealand: Is it feasible? / Gabbe, Belinda Jane; Cleland, Heather J; Watterson, Dina Michelle; Schrale, Rebecca; McRae, Sally; Parker, Christine; Taggart, Susan B; Edgar, Dale Wesley.

In: Burns : Journal of the International Society for Burn Injuries, Vol. 41, No. 8, 2015, p. 1732 - 1740.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Long term outcomes data for the Burns Registry of Australia and New Zealand: Is it feasible?

AU - Gabbe, Belinda Jane

AU - Cleland, Heather J

AU - Watterson, Dina Michelle

AU - Schrale, Rebecca

AU - McRae, Sally

AU - Parker, Christine

AU - Taggart, Susan B

AU - Edgar, Dale Wesley

PY - 2015

Y1 - 2015

N2 - Background: Incorporating routine and standardised collection of long term outcomes following burn into burn registries would improve the capacity to quantify burn burden and evaluate care. Aims: To evaluate methods for collecting the long term functional and quality of life outcomes of burns patients and establish the feasibility of implementing these outcomes into a multi-centre burns registry. Methods: Five Burns Registry of Australia and New Zealand (BRANZ) centres participated in this prospective, longitudinal study. Patients admitted to the centres between November 2009 and November 2010 were followed-up at 1, 6, 12 and 24-months after injury using measures of burn specific health, health status, fatigue, itch and return to work. Participants in the study were compared to BRANZ registered patients at the centres over the study timeframe to identify participation bias, predictors of successful follow-up were established using a Generalised Estimating Equation model, and the completion rates by mode of administration were assessed. Results: 463 patients participated in the study, representing 24 of all BRANZ admissions in the same timeframe. Compared to all BRANZ patients in the same timeframe, the median TBSA and hospital length of stay was greater in the study participants. The follow-up rates were 63 at 1-month, 47 at 6-months; 40 at 12-months, and 21 at 24-months after injury, and there was marked variation in follow-up rates between the centres. Increasing age, greater TBSA and opt-in centres were associated with greater follow-up. Centres which predominantly used one mode of administration experienced better follow-up rates. Conclusions: The low participation rates, high loss to follow-up and responder bias observed indicate that greater consideration needs to be given to alternative models for follow-up, including tailoring the follow-up protocol to burn severity or type.

AB - Background: Incorporating routine and standardised collection of long term outcomes following burn into burn registries would improve the capacity to quantify burn burden and evaluate care. Aims: To evaluate methods for collecting the long term functional and quality of life outcomes of burns patients and establish the feasibility of implementing these outcomes into a multi-centre burns registry. Methods: Five Burns Registry of Australia and New Zealand (BRANZ) centres participated in this prospective, longitudinal study. Patients admitted to the centres between November 2009 and November 2010 were followed-up at 1, 6, 12 and 24-months after injury using measures of burn specific health, health status, fatigue, itch and return to work. Participants in the study were compared to BRANZ registered patients at the centres over the study timeframe to identify participation bias, predictors of successful follow-up were established using a Generalised Estimating Equation model, and the completion rates by mode of administration were assessed. Results: 463 patients participated in the study, representing 24 of all BRANZ admissions in the same timeframe. Compared to all BRANZ patients in the same timeframe, the median TBSA and hospital length of stay was greater in the study participants. The follow-up rates were 63 at 1-month, 47 at 6-months; 40 at 12-months, and 21 at 24-months after injury, and there was marked variation in follow-up rates between the centres. Increasing age, greater TBSA and opt-in centres were associated with greater follow-up. Centres which predominantly used one mode of administration experienced better follow-up rates. Conclusions: The low participation rates, high loss to follow-up and responder bias observed indicate that greater consideration needs to be given to alternative models for follow-up, including tailoring the follow-up protocol to burn severity or type.

UR - http://www.sciencedirect.com/science/article/pii/S0305417915002776

U2 - 10.1016/j.burns.2015.09.005

DO - 10.1016/j.burns.2015.09.005

M3 - Article

VL - 41

SP - 1732

EP - 1740

JO - Burns : Journal of the International Society for Burn Injuries

JF - Burns : Journal of the International Society for Burn Injuries

SN - 0305-4179

IS - 8

ER -