Projects per year
Abstract
PURPOSE:Understanding the relationship between health-related quality of life (HRQoL) and long-term unmet needs is important for guiding services to optimise life following stroke. We investigated whether HRQoL between 90 and 180 days following stroke was associated with long-term unmet needs.METHODS:Data from Australian Stroke Clinical Registry (AuSCR) registrants who participated in the Australian Stroke Survivor Needs Survey were used. Outcome data, including the EQ-5D, are routinely collected in AuSCR between 90 and 180 days post-stroke. Unmet needs were assessed at a median of 2 years and categorised into: health; everyday living; work/leisure; and support domains. Multivariable regression was used to determine associations between the EQ-5D dimensions and the likelihood of experiencing unmet needs and the visual analogue scale (VAS) (rating 0-100) and number of reported unmet needs.RESULTS:In total, 173 AuSCR registrants completed the Needs Survey (median age 69 years, 67 male; 77 ischaemic stroke). VAS scores were negatively associated with the number of reported long-term unmet needs [irr 0.98, (95 CI 0.97, 0 99) p <0.001]. Having EQ-5D activity limitations was associated with unmet living needs (aOR 4.5, 95 CI 1.1, 18.8). Requiring living supports at 90-180 days was associated with unmet health needs (aOR 4.9, 95 CI 1.5, 16.1). Those with pain at 90-180 days were less likely to report unmet health (aOR 0.09, 95 CI 0.02, 0.4) and support needs (aOR 0.2, 95 CI 0.06, 0.6).CONCLUSION:Routinely collected HRQoL data can identify survivors at risk of experiencing long-term unmet needs. This information is important for targeting service delivery to optimise outcomes following stroke.
Original language | English |
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Pages (from-to) | 2053-2062 |
Number of pages | 10 |
Journal | Quality of Life Research |
Volume | 25 |
Issue number | 8 |
DOIs | |
Publication status | Published - 2016 |
Keywords
- Health-related quality of life
- Stroke
- Unmet needs
- EQ-5D
- Long-term outcomes
- International Classification of Function
Projects
- 2 Finished
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Improving the quality, efficiency and outcomes of stroke care: transforming policy and practice
Cadilhac, D. (Primary Chief Investigator (PCI))
NHMRC - National Health and Medical Research Council (Australia)
1/01/14 → 31/12/17
Project: Research
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Understanding stroke care health service utilisation beyond the acute hospital setting
Andrew, N. (Primary Chief Investigator (PCI))
NHMRC - National Health and Medical Research Council (Australia)
1/01/14 → 31/12/17
Project: Research