Projects per year
Abstract
Living with a life-long medical condition or a serious disease requires a lot of research skills on how to access the best quality information to inform better decision-making of healthcare consumers. Relatives, friends, and carers are often sharing the stress and responsibility of looking after the healthcare of consumers. They feel personally responsible for meeting not only physical, but also information needs of people they care for. With the internet being almost a default source of a wide variety of information, and health information in particular, this interview-based chapter reflects on what are the opportunities and challenges for information and communication technology (ICT) researchers who aim to address the personalized needs for quality healthcare information provision. Professor Frada Burstein is a leading information technology researcher specializing in smart information portals in health care. Her research has contributed to the transformations in web-based information systems architecture to empower patients. She was named the ICT Educator of the Year for her pioneering work in knowledge management and ICT education. In this interview with Grant Meredith, she reveals how her intense experiences caring for her father led her to focus her intelligent systems research toward health care.
Original language | English |
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Title of host publication | Research Partners with Lived Experience |
Subtitle of host publication | Stories from Patients and Survivors |
Editors | Andrew Stranieri, Grant Meredith, Selena Firmin |
Place of Publication | Singapore Singapore |
Publisher | Springer |
Chapter | 7 |
Pages | 91-102 |
Number of pages | 12 |
ISBN (Electronic) | 9789819700332 |
ISBN (Print) | 9789819700325 |
DOIs | |
Publication status | Published - 2024 |
Keywords
- Digital repositories
- Information needs
- Personalized healthcare
Projects
- 2 Finished
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Breast Cancer Knowledge Online (BCKOnline) Portal
Burstein, F. (Primary Chief Investigator (PCI)) & Fisher, J. L. (Chief Investigator (CI))
1/02/11 → 20/12/11
Project: Research
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Extending the functionality, sustainability and usefulness of the Breast Cancer Knowledge Online Portal (BCKOnline)
Fisher, J. L. (Primary Chief Investigator (PCI)), Burstein, F. (Chief Investigator (CI)) & McKemmish, S. (Chief Investigator (CI))
Trustee for Helen Macpherson Smith Trust
5/01/10 → 31/12/11
Project: Research