TY - JOUR
T1 - Information and decision support needs
T2 - A survey of women interested in receiving planned oocyte cryopreservation information
AU - Sandhu, Sherine
AU - Hickey, Martha
AU - Braat, Sabine
AU - Hammarberg, Karin
AU - Lew, Raelia
AU - Fisher, Jane
AU - Ledger, William
AU - Peate, Michelle
AU - on behalf of the Eggsurance Collaborative Group
N1 - Funding Information:
Throughout the paper we refer to access and use of planned oocyte cryopreservation by women. However, we acknowledge that oocyte cryopreservation may also be relevant to individuals who do not identify as women. We thank our participants, the Royal Women’s Hospital, Melbourne and the Eggsurance collaborative group (F Agresta, D Lieberman, R Anderson, R Norman, R Hart, L Johnson, J Michelmore, A Parle, F Summers and C Allingham) for their contribution to this study. M Peate is supported by a National Breast Cancer Foundation Early Career Fellowship (ECF-15-005), M Hickey is supported by a National Health and Medical Research Council Leadership Level 2 Investigator Grant, and J Fisher is supported by the Finkel Professorial Fellowship, funded by the Finkel Family Foundation.
Publisher Copyright:
© 2023, The Author(s).
PY - 2023/6
Y1 - 2023/6
N2 - Purpose: Identifying the information and decision support needs of women interested in receiving planned oocyte cryopreservation (POC) information. Methods: An online survey of Australian women, aged 18-45, interested in receiving POC information, proficient in English, with internet access. The survey covered POC information sources, information delivery preferences, POC and age-related infertility knowledge (study-specific scale), Decisional Conflict Scale (DCS), and time spent considering POC. Target sample size (n=120) was determined using a precision-based method. Results: Of 332 participants, 249 (75%) had considered POC, whilst 83 (25%) had not. Over half (54%) had searched for POC information. Fertility clinic websites were predominately used (70%). Most (73%) believed women should receive POC information between ages 19-30 years. Preferred information providers were fertility specialists (85%) and primary care physicians (81%). Other methods rated most useful to deliver POC information were online. Mean knowledge score was 8.9/14 (SD:2.3). For participants who had considered POC, mean DCS score was 57.1/100 (SD:27.2) and 78% had high decisional conflict (score >37.5). In regression, lower DCS scores were associated with every 1-point increase in knowledge score (-2.4; 95% CI [-3.9, -0.8]), consulting an IVF specialist (-17.5; [-28.0, -7.1]), and making a POC decision (-18.4; [-27.5, -9.3]). Median time to decision was 24-months (IQR: 12.0-36.0) (n=53). Conclusion: Women interested in receiving POC information had knowledge gaps, and wanted to be informed about the option by age 30 years from healthcare professionals and online resources. Most women who considered using POC had high decisional conflict indicating a need for decision support.
AB - Purpose: Identifying the information and decision support needs of women interested in receiving planned oocyte cryopreservation (POC) information. Methods: An online survey of Australian women, aged 18-45, interested in receiving POC information, proficient in English, with internet access. The survey covered POC information sources, information delivery preferences, POC and age-related infertility knowledge (study-specific scale), Decisional Conflict Scale (DCS), and time spent considering POC. Target sample size (n=120) was determined using a precision-based method. Results: Of 332 participants, 249 (75%) had considered POC, whilst 83 (25%) had not. Over half (54%) had searched for POC information. Fertility clinic websites were predominately used (70%). Most (73%) believed women should receive POC information between ages 19-30 years. Preferred information providers were fertility specialists (85%) and primary care physicians (81%). Other methods rated most useful to deliver POC information were online. Mean knowledge score was 8.9/14 (SD:2.3). For participants who had considered POC, mean DCS score was 57.1/100 (SD:27.2) and 78% had high decisional conflict (score >37.5). In regression, lower DCS scores were associated with every 1-point increase in knowledge score (-2.4; 95% CI [-3.9, -0.8]), consulting an IVF specialist (-17.5; [-28.0, -7.1]), and making a POC decision (-18.4; [-27.5, -9.3]). Median time to decision was 24-months (IQR: 12.0-36.0) (n=53). Conclusion: Women interested in receiving POC information had knowledge gaps, and wanted to be informed about the option by age 30 years from healthcare professionals and online resources. Most women who considered using POC had high decisional conflict indicating a need for decision support.
KW - decision making
KW - decision support
KW - Elective egg freezing
KW - fertility preservation
KW - information needs
KW - planned oocyte cryopreservation
UR - http://www.scopus.com/inward/record.url?scp=85152953073&partnerID=8YFLogxK
U2 - 10.1007/s10815-023-02796-x
DO - 10.1007/s10815-023-02796-x
M3 - Article
C2 - 37058261
AN - SCOPUS:85152953073
SN - 1058-0468
VL - 40
SP - 1265
EP - 1280
JO - Journal of Assisted Reproduction and Genetics
JF - Journal of Assisted Reproduction and Genetics
IS - 6
ER -