TY - JOUR
T1 - Improving the lives of ethnically diverse family carers and people living with dementia using digital media resources – Protocol for the Draw-Care randomised controlled trial
AU - Thodis, Antonia
AU - Dang, Thu Ha
AU - Antoniades, Josefine
AU - Gilbert, Andrew S.
AU - Nguyen, Tuan
AU - Hlis, Danijela
AU - Gurgone, Mary
AU - Dow, Briony
AU - Cooper, Claudia
AU - Xiao, Lily Dongxia
AU - Wickramasinghe, Nilmini
AU - Ulapane, Nalika
AU - Varghese, Mathew
AU - Loganathan, Santosh
AU - Enticott, Joanne
AU - Mortimer, Duncan
AU - Brijnath, Bianca
N1 - Funding Information:
The author(s) disclosed the receipt of the following financial support for the research, authorship, and/or publication of this article: The study was funded by the Medical Research Future Fund (MRFF), Australian Government Department of Health [grant number APP2008065].
Funding Information:
The project received support from the Department of Mental Health and Substance Use, World Health Organization, the Dementia Australia, and the Federation of Ethnic Communities Council of Australia. The authors thank the co-design workshop participants in Phase I for sharing their lived experiences in a cultural context to adapt the stories depicted in the animated films and information sheets. We acknowledge the expertise of our technical collaborators in translation, animation, and website design.
Funding Information:
Bianca Brijnath is the Principal Investigator. Antonia Thodis is the Project Manager. Thu-Ha Dang is the Research Assistant. Josefine Antoniades, Claudia Cooper, Thu-Ha Dang, Briony Dow, Joanne Enticott, Andrew S Gilbert, Mary Gurgone, Danijela Hlis, Santosh Loganathan, Duncan Mortimer, Tuan Nguyen, Antonia Thodis, Nalika Ulapane, Mathew Varghese, Nilmini Wickramasinghe and Lily-Dongxia Xiao are members of the Executive Committee. The following organisations have contributed either financial or in-kind support to the Draw-Care project: Medical Research Future Fund (MRFF), Department of Mental Health and Substance Use, WHO, Dementia Australia, Federation of Ethnic Communities Council of Australia (FECCA) and NARI. Bianca Brijnath, Josefine Antoniades, Andrew S Gilbert, and Tuan Nguyen have received other grant funding from the MRFF and the NHMRC. All authors have no other relationships or activities or interests to disclose related to the content of this submission.
Publisher Copyright:
© The Author(s) 2023.
PY - 2023/1/1
Y1 - 2023/1/1
N2 - Objectives: Ethnically diverse family carers of people living with dementia (hereafter carers and people with dementia) experience more psychological distress than other carers. To reduce this inequality, culturally adapted, multilingual, evidence-based practical assistance is needed. This paper details the Draw-Care study protocol including a randomised control trial (RCT) to test the effectiveness of a digital intervention comprising a multilingual website, virtual assistant, animated films, and information, on the lives of carers and people with dementia in Australia. Methods: The Draw-Care intervention will be evaluated in a 12-week active waitlist parallel design RCT with 194 carers from Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, and Vietnamese-speaking language groups. Our intervention was based on the World Health Organization's (WHO) iSupport Lite online carer support messages and was co-designed with carers, people with dementia, service providers, and clinicians. Culturally adapted multilingual digital resources were created in nine languages and English. Results: In Phase I (2022), six co-design workshops with stakeholders and interviews with people with dementia informed the development of the intervention which will be trialled and evaluated in Phases II and III (2023 and 2024). Conclusions: Digital media content is a novel approach to providing cost-effective access to health care information. This study protocol details the three study phases including the RCT of a co-designed, culturally adapted, multilingual, digital intervention for carers and people with dementia to advance the evidence in dementia and digital healthcare research and help meet the needs of carers and people with dementia in Australia and globally.
AB - Objectives: Ethnically diverse family carers of people living with dementia (hereafter carers and people with dementia) experience more psychological distress than other carers. To reduce this inequality, culturally adapted, multilingual, evidence-based practical assistance is needed. This paper details the Draw-Care study protocol including a randomised control trial (RCT) to test the effectiveness of a digital intervention comprising a multilingual website, virtual assistant, animated films, and information, on the lives of carers and people with dementia in Australia. Methods: The Draw-Care intervention will be evaluated in a 12-week active waitlist parallel design RCT with 194 carers from Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, and Vietnamese-speaking language groups. Our intervention was based on the World Health Organization's (WHO) iSupport Lite online carer support messages and was co-designed with carers, people with dementia, service providers, and clinicians. Culturally adapted multilingual digital resources were created in nine languages and English. Results: In Phase I (2022), six co-design workshops with stakeholders and interviews with people with dementia informed the development of the intervention which will be trialled and evaluated in Phases II and III (2023 and 2024). Conclusions: Digital media content is a novel approach to providing cost-effective access to health care information. This study protocol details the three study phases including the RCT of a co-designed, culturally adapted, multilingual, digital intervention for carers and people with dementia to advance the evidence in dementia and digital healthcare research and help meet the needs of carers and people with dementia in Australia and globally.
KW - animation
KW - Australia
KW - carer
KW - dementia
KW - digital health
KW - ethnic minority
KW - iSupport Lite
UR - http://www.scopus.com/inward/record.url?scp=85174016312&partnerID=8YFLogxK
U2 - 10.1177/20552076231205733
DO - 10.1177/20552076231205733
M3 - Article
C2 - 37846403
AN - SCOPUS:85174016312
SN - 2055-2076
VL - 9
JO - Digital Health
JF - Digital Health
ER -
