Implementation and utilisation of disease registries in primary care

Clare Liddy, William Hogg, Grant Mervyn Russell

Research output: Contribution to journalArticleResearchpeer-review


Disease registries can improve outcomes for patients living with chronic disease. We evaluated the feasibility of implementing a cardiovascular disease registry in two Ontario primary care practices (one with paper-based medical records, one with electronic medical records). Outreach facilitators supported the implementation of the web-based registry. We used a case study approach incorporating qualitative evaluation methods (facilitator narratives and interviews with physicians, nurses, practice administrative staff, and software developers). Both practices indicated that their expectations were not met by the software. Several themes emerged regarding implementation: presence of a practice champion, practice characteristics, IT use and support, communication style, and availability of resources throughout the registry's implementation and use. The complexities and challenges associated with the adoption of new technology in primary care should not be underestimated. It is important to both design registries specific to primary care and tailor them to the needs and expectations of individual practices.

Original languageEnglish
Pages (from-to)239-253
Number of pages15
JournalInternational Journal of Healthcare Technology and Management
Issue number4
Publication statusPublished - 2014


  • Adoption of technology
  • Cardiovascular disease
  • Chronic disease
  • Clinical information system
  • Disease registry
  • Implementation
  • Practice facilitation
  • Primary care

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