Genetic discrimination: introducing the Asian perspective to the debate

Hannah Kim, Calvin W.L. Ho, Chih-Hsing Ho, P. S. Athira, Kazuto Kato, Leonardo De Castro, Hui Kang, Richard Huxtable, Hub Zwart, Jonathan Ives, Ilhak Lee, Yann Joly, So Yoon Kim

Research output: Contribution to journalReview ArticleResearchpeer-review

18 Citations (Scopus)

Abstract

Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.

Original languageEnglish
Article number54
Number of pages8
Journalnpj Genomic Medicine
Volume6
Issue number1
DOIs
Publication statusPublished - 2021
Externally publishedYes

Cite this