TY - JOUR
T1 - Genetic discrimination
T2 - introducing the Asian perspective to the debate
AU - Kim, Hannah
AU - Ho, Calvin W.L.
AU - Ho, Chih-Hsing
AU - Athira, P. S.
AU - Kato, Kazuto
AU - De Castro, Leonardo
AU - Kang, Hui
AU - Huxtable, Richard
AU - Zwart, Hub
AU - Ives, Jonathan
AU - Lee, Ilhak
AU - Joly, Yann
AU - Kim, So Yoon
N1 - Funding Information:
We wish to acknowledge the individuals who participated in the Korean Parliamentarian Forum on Global Health (KPFGH) conference entitled Genetic Discrimination in the World, on April 16 and 17, 2018 in Seoul and Professor Alastair V. Campbell for his discussion. We are also grateful for the PERSPECTIVE II project, funded by Genome Canada/Genome Quebec and Handi Xu for her editorial assistance. This study was supported by the 2018 International Research Collaboration Program (2018K2A9A1A01090613) and the 2020 Interdisciplinary Research Program (2020S1A5A2A03044010) funded by the National Research Foundation of Korea. This paper received the Early Career Research Award at the 2020 World Congress of Bioethics (June 19–21, 2020) with the title of “Genetic discrimination in Asia: A review of public policies, practices and incidents.”
Publisher Copyright:
© 2021, The Author(s).
PY - 2021
Y1 - 2021
N2 - Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.
AB - Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.
UR - http://www.scopus.com/inward/record.url?scp=85109144922&partnerID=8YFLogxK
U2 - 10.1038/s41525-021-00218-4
DO - 10.1038/s41525-021-00218-4
M3 - Review Article
C2 - 34210984
AN - SCOPUS:85109144922
SN - 2056-7944
VL - 6
JO - npj Genomic Medicine
JF - npj Genomic Medicine
IS - 1
M1 - 54
ER -