Family quality of life: A key outcome in early childhood intervention services—a scoping review

Anoo Bhopti, Ted Brown, Primrose Lentin

Research output: Contribution to journalReview ArticleResearchpeer-review

9 Citations (Scopus)

Abstract

A scoping review was conducted to identify factors influencing the quality of life of families of children with disability. The review also explored the scales used to measure family quality of life (FQOL) as an outcome in early childhood intervention services (ECIS). Multiple databases were searched from 2000 to 2013 to include studies pertinent to ECIS. Results were charted and summarized based on scoping methodology. Eighteen articles were chosen for the review based on the selection criteria. Results were summarized as five factors that affect FQOL, namely, (a) disability-related support, (b) family interactions/family relationships, (c) overall well-being, (d) support from services, and (e) severity and type of disability. The review also identified two FQOL scales that were used most frequently within ECIS: (a) the Beach Center Family Quality of Life Survey, and (b) Family Quality of Life Survey: Main Caregivers of People With Intellectual or Developmental Disabilities. It is recommended that those responsible for evaluation decisions within ECIS programs should consider using a FQOL scale to measure family outcomes. Furthermore, professionals working with families within ECIS should consider the factors affecting FQOL to further enhance their service provision.

Original languageEnglish
Pages (from-to)191-211
Number of pages21
JournalJournal of Early Intervention
Volume38
Issue number4
DOIs
Publication statusPublished - 1 Dec 2016

Keywords

  • child with disability
  • early childhood intervention
  • ECIS
  • family
  • family quality of life
  • FQOL
  • scoping review

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