TY - JOUR
T1 - Ethical Issues in Photovoice Studies involving Key Populations
T2 - A Scoping Review
AU - Ng, Chong Guan
AU - Ting, Sing Qin
AU - Saifi, Rumana Akhter
AU - Kamarulzaman, Adeeba Bt
N1 - Funding Information:
This work was supported by the Fogarty International Center of the United States, National Institutes of Health (Grant R25TW010891) in collaboration with the Berman Institute of Bioethics, Johns Hopkins University, and Faculty of Medicine, University of Malaya, Malaysia.
Publisher Copyright:
© 2023, The Author(s).
PY - 2024/1
Y1 - 2024/1
N2 - Photovoice, a community-based participatory research method, employs images and words to convey participants' needs, concerns, and desires. It proves particularly valuable in researching marginalized communities who face elevated health risks, disease transmission, and social and health disparities. This paper seeks to investigate the ethical considerations inherent in photovoice research projects. We conducted an extensive literature review spanning four databases to identify pertinent photovoice studies. Ethical issues from the selected articles were identified, categorized, and summarized. Our analysis of twenty-five photovoice studies uncovered various ethical concerns, which had been grouped into informed consent, participant safety and disclosure, privacy and confidentiality, misrepresentation, power dynamics, and compensation. In essence, our findings underscore the importance of addressing these ethical concerns to uphold the rights and autonomy of participants, even as photovoice research strives for authenticity, inclusivity, and empowerment.
AB - Photovoice, a community-based participatory research method, employs images and words to convey participants' needs, concerns, and desires. It proves particularly valuable in researching marginalized communities who face elevated health risks, disease transmission, and social and health disparities. This paper seeks to investigate the ethical considerations inherent in photovoice research projects. We conducted an extensive literature review spanning four databases to identify pertinent photovoice studies. Ethical issues from the selected articles were identified, categorized, and summarized. Our analysis of twenty-five photovoice studies uncovered various ethical concerns, which had been grouped into informed consent, participant safety and disclosure, privacy and confidentiality, misrepresentation, power dynamics, and compensation. In essence, our findings underscore the importance of addressing these ethical concerns to uphold the rights and autonomy of participants, even as photovoice research strives for authenticity, inclusivity, and empowerment.
KW - HIV
KW - Marginalized communities
KW - Photovoice
KW - Stigma
UR - http://www.scopus.com/inward/record.url?scp=85176419296&partnerID=8YFLogxK
U2 - 10.1007/s41649-023-00264-3
DO - 10.1007/s41649-023-00264-3
M3 - Review Article
C2 - 38213991
AN - SCOPUS:85176419296
SN - 1793-8759
VL - 16
SP - 109
EP - 129
JO - Asian Bioethics Review
JF - Asian Bioethics Review
IS - 1
ER -