@article{d5cbe96862cf4f429e57ddbb8284efc1,
title = "Establishing a global quality of care benchmark report",
abstract = "Background: The Movember funded TrueNTH Global Registry (TNGR) aims to improve care by collecting and analysing a consistent dataset to identify variation in disease management, benchmark care delivery in accordance with best practice guidelines and provide this information to those in a position to enact change. We discuss considerations of designing and implementing a quality of care report for TNGR. Methods: Eleven working group sessions were held prior to and as reports were being built with representation from clinicians, data managers and investigators contributing to TNGR. The aim of the meetings was to understand current data display approaches, share literature review findings and ideas for innovative approaches. Preferred displays were evaluated with two surveys (survey 1: 5 clinicians and 5 non-clinicians, 83% response rate; survey 2: 17 clinicians and 18 non-clinicians, 93% response rate). Results: Consensus on dashboard design and three data-display preferences were achieved. The dashboard comprised two performance summary charts; one summarising site{\textquoteright}s relative quality indicator (QI) performance and another to summarise data quality. Binary outcome QIs were presented as funnel plots. Patient-reported outcome measures of function score and the extent to which men were bothered by their symptoms were presented in bubble plots. Time series graphs were seen as providing important information to supplement funnel and bubble plots. R Markdown was selected as the software program principally because of its excellent analytic and graph display capacity, open source licensing model and the large global community sharing program code enhancements. Conclusions: International collaboration in creating and maintaining clinical quality registries has allowed benchmarking of process and outcome measures on a large scale. A registry report system was developed with stakeholder engagement to produce dynamic reports that provide user-specific feedback to 132 participating sites across 13 countries.",
keywords = "benchmarking, data display, data science, international registry, quality indicators (health care), R Markdown",
author = "Fanny Sampurno and Justin Cally and Opie, {Jacinta L.} and Ashwini Kannan and Millar, {Jeremy L.} and Antonio Finelli and Vickers, {Andrew J.} and Moore, {Caroline M.} and Christoph Kowalski and Claire Foster and Barocas, {Dan A.} and David Galvin and {Van Basten}, {Jean Paul} and Gore, {John L.} and Julia Ferencz and Lawson, {Keith A.} and Ghani, {Khurshid R.} and Lorna Kwan and Olli Saarela and Connor, {Sarah E.} and Sebastian Dieng and Susan Linsell and Soeterik, {Timo F.W.} and Paul Villanti and Litwin, {Mark S.} and Evans, {Sue M.}",
note = "Funding Information: We would like to thank Mr Arturo Ramos Santracruz, Ms Anh Tran and Ms. Shu-Yu Tew for their contribution in the development of the TrueNTH Global Registry Quality of Care report. We acknowledged Helix Team at Monash University, Melbourne, Australia in assisting the development of the ?Report? page in the TrueNTH Global Registry web portal. This work was also supported by the Monash eResearch Centre and Helix at Monash University and by using the Monash University hosted Secure eResearch Platform (formerly known as Safe Haven). The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Movember Foundation. Funding Information: We would like to thank Mr Arturo Ramos Santracruz, Ms Anh Tran and Ms. Shu-Yu Tew for their contribution in the development of the TrueNTH Global Registry Quality of Care report. We acknowledged Helix Team at Monash University, Melbourne, Australia in assisting the development of the {\textquoteleft}Report{\textquoteright} page in the TrueNTH Global Registry web portal. This work was also supported by the Monash eResearch Centre and Helix at Monash University and by using the Monash University hosted Secure eResearch Platform (formerly known as Safe Haven). Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Movember Foundation. Publisher Copyright: {\textcopyright} The Author(s) 2021. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",
year = "2021",
doi = "10.1177/14604582211015704",
language = "English",
volume = "27",
journal = "Health Informatics Journal",
issn = "1460-4582",
publisher = "SAGE Publications Ltd",
number = "2",
}