Erfassung und Verarbeitung von persönlichen Daten zur Evaluation von Krebsfrüherkennungsprogrammen - Ergebnisse einer Bevölkerungsbefragung im Kontext des Krebsfrüherkennungs- und -registergesetzes

F. Greiner; S. Nolte; A. Waldmann; A. Katalinic; E. W. Breitbart

doi:10.1055/s-0033-1355420

Erfassung und Verarbeitung von persönlichen Daten zur Evaluation von Krebsfrüherkennungsprogrammen - Ergebnisse einer Bevölkerungsbefragung im Kontext des Krebsfrüherkennungs- und -registergesetzes

Translated title of the contribution: Collection and processing of personal data to evaluate cancer screening programmes - Results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries

F. Greiner
, S. Nolte
, A. Waldmann
, A. Katalinic
, E. W. Breitbart

Research output: Contribution to journal › Article › Research › peer-review

2 Citations (Scopus)

Abstract

In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regisÂ-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.

Translated title of the contribution	Collection and processing of personal data to evaluate cancer screening programmes - Results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries
Original language	German
Pages (from-to)	751-753
Number of pages	3
Journal	Gesundheitswesen
Volume	75
Issue number	11
DOIs	https://doi.org/10.1055/s-0033-1355420
Publication status	Published - 18 Oct 2013
Externally published	Yes

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

data privacy
early detection
evaluation
German National Cancer Plan
record linkage
screening

Access to Document

10.1055/s-0033-1355420

Cite this

@article{9dd5ae0d944c42bd960bdc239a87824e,

title = "Erfassung und Verarbeitung von pers{\"o}nlichen Daten zur Evaluation von Krebsfr{\"u}herkennungsprogrammen - Ergebnisse einer Bev{\"o}lkerungsbefragung im Kontext des Krebsfr{\"u}herkennungs- und -registergesetzes",

abstract = "In a representative German sample, 62.1\% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90\% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regis{\^A}-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.",

keywords = "data privacy, early detection, evaluation, German National Cancer Plan, record linkage, screening",

author = "F. Greiner and S. Nolte and A. Waldmann and A. Katalinic and Breitbart, \{E. W.\}",

year = "2013",

month = oct,

day = "18",

doi = "10.1055/s-0033-1355420",

language = "German",

volume = "75",

pages = "751--753",

journal = "Gesundheitswesen",

issn = "0941-3790",

publisher = "Thieme Publishing Group",

number = "11",

}

Erfassung und Verarbeitung von persönlichen Daten zur Evaluation von Krebsfrüherkennungsprogrammen - Ergebnisse einer Bevölkerungsbefragung im Kontext des Krebsfrüherkennungs- und -registergesetzes. / Greiner, F.; Nolte, S.; Waldmann, A. et al.
In: Gesundheitswesen, Vol. 75, No. 11, 18.10.2013, p. 751-753.

Research output: Contribution to journal › Article › Research › peer-review

TY - JOUR

T1 - Erfassung und Verarbeitung von persönlichen Daten zur Evaluation von Krebsfrüherkennungsprogrammen - Ergebnisse einer Bevölkerungsbefragung im Kontext des Krebsfrüherkennungs- und -registergesetzes

AU - Greiner, F.

AU - Nolte, S.

AU - Waldmann, A.

AU - Katalinic, A.

AU - Breitbart, E. W.

PY - 2013/10/18

Y1 - 2013/10/18

N2 - In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regisÂ-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.

AB - In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regisÂ-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.

KW - data privacy

KW - early detection

KW - evaluation

KW - German National Cancer Plan

KW - record linkage

KW - screening

UR - https://www.scopus.com/pages/publications/84889096780

U2 - 10.1055/s-0033-1355420

DO - 10.1055/s-0033-1355420

M3 - Article

C2 - 24142370

AN - SCOPUS:84889096780

SN - 0941-3790

VL - 75

SP - 751

EP - 753

JO - Gesundheitswesen

JF - Gesundheitswesen

IS - 11

ER -

Erfassung und Verarbeitung von persönlichen Daten zur Evaluation von Krebsfrüherkennungsprogrammen - Ergebnisse einer Bevölkerungsbefragung im Kontext des Krebsfrüherkennungs- und -registergesetzes

Abstract

UN SDGs

Keywords

Access to Document

Other files and links

Cite this