Dissemination of Misinformative and Biased Information about Prostate Cancer on YouTube

Stacy Loeb, Shomik Sengupta, Mohit Butaney, Joseph N. Macaluso, Stefan W. Czarniecki, Rebecca Robbins, R. Scott Braithwaite, Lingshan Gao, Nataliya Byrne, Dawn Walter, Aisha Langford

Research output: Contribution to journalArticleResearchpeer-review

96 Citations (Scopus)

Abstract

YouTube is a social media platform with more than 1 billion users and >600 000 videos about prostate cancer. Two small studies examined the quality of prostate cancer videos on YouTube, but did not use validated instruments, examine user interactions, or characterize the spread of misinformation. We performed the largest, most comprehensive examination of prostate cancer information on YouTube to date, including the first 150 videos on screening and treatment. We used the validated DISCERN quality criteria for consumer health information and the Patient Education Materials Assessment Tool, and compared results for user engagement. The videos in our sample had up to 1.3 million views (average 45 223) and the overall quality of information was moderate. More videos described benefits (75%) than harms (53%), and only 50% promoted shared decision-making as recommended in current guidelines. Only 54% of the videos defined medical terms and few provided summaries or references. There was a significant negative correlation between scientific quality and viewer engagement (views/month p = 0.004; thumbs up/views p = 0.015). The comments section underneath some videos contained advertising and peer-to-peer medical advice. A total of 115 videos (77%) contained potentially misinformative and/or biased content within the video or comments section, with a total reach of >6 million viewers. Patient summary: Many popular YouTube videos about prostate cancer contained biased or poor-quality information. A greater number of views and thumbs up on YouTube does not mean that the information is trustworthy. Many of the top YouTube videos on prostate cancer contain biased or misinformative content. User engagement was higher for videos with a lower quality of information. Prostate cancer providers, researchers, and organizations should continue to create evidence-based content that is of interest to viewers to help balance what patients and their families access.

Original languageEnglish
Pages (from-to)564-567
Number of pages4
JournalEuropean Urology
Volume75
Issue number4
DOIs
Publication statusPublished - Apr 2019

Keywords

  • Dissemination
  • Misinformation
  • Prostate cancer
  • Social media
  • YouTube

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