Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset

Rasa Ruseckaite, Kerri Beckmann, Michael O'Callaghan, David Roder, Kim Moretti, John Zalcberg, Jeremy Millar, Sue Evans

Research output: Contribution to journalArticleOtherpeer-review

3 Citations (Scopus)

Abstract

Background: Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD).

Results: A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State.

Conclusions: The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.
Original languageEnglish
Article number37
Number of pages11
JournalBMC Research Notes
Volume9
DOIs
Publication statusPublished - 22 Jan 2016

Cite this

@article{3fe80cb8e58c4c118b6a3e7ff0a01f9a,
title = "Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset",
abstract = "Background: Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD).Results: A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State.Conclusions: The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.",
author = "Rasa Ruseckaite and Kerri Beckmann and Michael O'Callaghan and David Roder and Kim Moretti and John Zalcberg and Jeremy Millar and Sue Evans",
year = "2016",
month = "1",
day = "22",
doi = "10.1186/s13104-016-1855-3",
language = "English",
volume = "9",
journal = "BMC Research Notes",
issn = "1756-0500",
publisher = "Springer-Verlag London Ltd.",

}

Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset. / Ruseckaite, Rasa; Beckmann, Kerri; O'Callaghan, Michael; Roder, David; Moretti, Kim; Zalcberg, John; Millar, Jeremy; Evans, Sue.

In: BMC Research Notes, Vol. 9, 37, 22.01.2016.

Research output: Contribution to journalArticleOtherpeer-review

TY - JOUR

T1 - Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset

AU - Ruseckaite, Rasa

AU - Beckmann, Kerri

AU - O'Callaghan, Michael

AU - Roder, David

AU - Moretti, Kim

AU - Zalcberg, John

AU - Millar, Jeremy

AU - Evans, Sue

PY - 2016/1/22

Y1 - 2016/1/22

N2 - Background: Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD).Results: A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State.Conclusions: The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.

AB - Background: Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD).Results: A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State.Conclusions: The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.

UR - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4724115/pdf/13104_2016_Article_1855.pdf

U2 - 10.1186/s13104-016-1855-3

DO - 10.1186/s13104-016-1855-3

M3 - Article

VL - 9

JO - BMC Research Notes

JF - BMC Research Notes

SN - 1756-0500

M1 - 37

ER -