Development of an electronic health message system to support recovery after stroke: Inspiring virtual enabled resources following vascular events (iVERVE)

Dominique A Cadilhac, Doreen Busingye, Jonathan C Li, Nadine E Andrew, Monique F Kilkenny, Amanda G Thrift, Vincent Thijs, Maree L Hackett, Ian I Kneebone, Natasha A Lannin, Alana Stewart, Ida Dempsey, Jan Cameron

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Purpose: Worldwide, stroke is a leading cause of disease burden. Many survivors have unmet needs after discharge from hospital. Electronic communication technology to support post-discharge care has not been used for patients with stroke. In this paper, we describe the development of a novel electronic messaging system designed for survivors of stroke to support their goals of recovery and secondary prevention after hospital discharge. Participants and methods: This was a formative evaluation study. The design was informed by a literature search, existing data from survivors of stroke, and behavior change theories. We established two working groups; one for developing the electronic infrastructure and the other (comprising researchers, clinical experts and consumer representatives) for establishing the patient-centered program. Following agreement on the categories for the goal-setting menu, we drafted relevant messages to support and educate patients. These messages were then independently reviewed by multiple topic experts. Concurrently, we established an online database to capture participant characteristics and then integrated this database with a purpose-built messaging system. We conducted alpha testing of the approach using the first 60 messages. Results: The initial goal-setting menu comprised 26 subcategories. Following expert review, another 8 goal subcategories were added to the secondary prevention category: managing cholesterol; smoking; physical activity; alcohol consumption; weight management; medication management; access to health professionals, and self-care. Initially, 455 health messages were created by members of working group 2. Following refinement and mapping to different goals by the project team, 980 health messages across the health goals and 69 general motivational messages were formulated. Seventeen independent reviewers assessed the messages and suggested adding 73 messages and removing 16 (2%). Overall, 1,233 messages (18 administrative, 69 general motivation and 1,146 health-related) were created. Conclusion: This novel electronic self-management support system is ready to be pilot tested in a randomized controlled trial in patients with stroke.

Original languageEnglish
Pages (from-to)1213-1224
Number of pages12
JournalPatient Preference and Adherence
Volume12
DOIs
Publication statusPublished - 11 Jul 2018

Keywords

  • e-health
  • Health promotion
  • Secondary prevention
  • Self-management
  • Stroke

Cite this

@article{7cdf0d6977674de296139191fda8d6a1,
title = "Development of an electronic health message system to support recovery after stroke: Inspiring virtual enabled resources following vascular events (iVERVE)",
abstract = "Purpose: Worldwide, stroke is a leading cause of disease burden. Many survivors have unmet needs after discharge from hospital. Electronic communication technology to support post-discharge care has not been used for patients with stroke. In this paper, we describe the development of a novel electronic messaging system designed for survivors of stroke to support their goals of recovery and secondary prevention after hospital discharge. Participants and methods: This was a formative evaluation study. The design was informed by a literature search, existing data from survivors of stroke, and behavior change theories. We established two working groups; one for developing the electronic infrastructure and the other (comprising researchers, clinical experts and consumer representatives) for establishing the patient-centered program. Following agreement on the categories for the goal-setting menu, we drafted relevant messages to support and educate patients. These messages were then independently reviewed by multiple topic experts. Concurrently, we established an online database to capture participant characteristics and then integrated this database with a purpose-built messaging system. We conducted alpha testing of the approach using the first 60 messages. Results: The initial goal-setting menu comprised 26 subcategories. Following expert review, another 8 goal subcategories were added to the secondary prevention category: managing cholesterol; smoking; physical activity; alcohol consumption; weight management; medication management; access to health professionals, and self-care. Initially, 455 health messages were created by members of working group 2. Following refinement and mapping to different goals by the project team, 980 health messages across the health goals and 69 general motivational messages were formulated. Seventeen independent reviewers assessed the messages and suggested adding 73 messages and removing 16 (2{\%}). Overall, 1,233 messages (18 administrative, 69 general motivation and 1,146 health-related) were created. Conclusion: This novel electronic self-management support system is ready to be pilot tested in a randomized controlled trial in patients with stroke.",
keywords = "e-health, Health promotion, Secondary prevention, Self-management, Stroke",
author = "Cadilhac, {Dominique A} and Doreen Busingye and Li, {Jonathan C} and Andrew, {Nadine E} and Kilkenny, {Monique F} and Thrift, {Amanda G} and Vincent Thijs and Hackett, {Maree L} and Kneebone, {Ian I} and Lannin, {Natasha A} and Alana Stewart and Ida Dempsey and Jan Cameron",
year = "2018",
month = "7",
day = "11",
doi = "10.2147/PPA.S154581",
language = "English",
volume = "12",
pages = "1213--1224",
journal = "Patient Preference and Adherence",
issn = "1177-889X",
publisher = "Dove Medical Press Ltd.",

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Development of an electronic health message system to support recovery after stroke : Inspiring virtual enabled resources following vascular events (iVERVE). / Cadilhac, Dominique A; Busingye, Doreen; Li, Jonathan C; Andrew, Nadine E; Kilkenny, Monique F; Thrift, Amanda G; Thijs, Vincent; Hackett, Maree L; Kneebone, Ian I; Lannin, Natasha A; Stewart, Alana; Dempsey, Ida; Cameron, Jan.

In: Patient Preference and Adherence, Vol. 12, 11.07.2018, p. 1213-1224.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Development of an electronic health message system to support recovery after stroke

T2 - Inspiring virtual enabled resources following vascular events (iVERVE)

AU - Cadilhac, Dominique A

AU - Busingye, Doreen

AU - Li, Jonathan C

AU - Andrew, Nadine E

AU - Kilkenny, Monique F

AU - Thrift, Amanda G

AU - Thijs, Vincent

AU - Hackett, Maree L

AU - Kneebone, Ian I

AU - Lannin, Natasha A

AU - Stewart, Alana

AU - Dempsey, Ida

AU - Cameron, Jan

PY - 2018/7/11

Y1 - 2018/7/11

N2 - Purpose: Worldwide, stroke is a leading cause of disease burden. Many survivors have unmet needs after discharge from hospital. Electronic communication technology to support post-discharge care has not been used for patients with stroke. In this paper, we describe the development of a novel electronic messaging system designed for survivors of stroke to support their goals of recovery and secondary prevention after hospital discharge. Participants and methods: This was a formative evaluation study. The design was informed by a literature search, existing data from survivors of stroke, and behavior change theories. We established two working groups; one for developing the electronic infrastructure and the other (comprising researchers, clinical experts and consumer representatives) for establishing the patient-centered program. Following agreement on the categories for the goal-setting menu, we drafted relevant messages to support and educate patients. These messages were then independently reviewed by multiple topic experts. Concurrently, we established an online database to capture participant characteristics and then integrated this database with a purpose-built messaging system. We conducted alpha testing of the approach using the first 60 messages. Results: The initial goal-setting menu comprised 26 subcategories. Following expert review, another 8 goal subcategories were added to the secondary prevention category: managing cholesterol; smoking; physical activity; alcohol consumption; weight management; medication management; access to health professionals, and self-care. Initially, 455 health messages were created by members of working group 2. Following refinement and mapping to different goals by the project team, 980 health messages across the health goals and 69 general motivational messages were formulated. Seventeen independent reviewers assessed the messages and suggested adding 73 messages and removing 16 (2%). Overall, 1,233 messages (18 administrative, 69 general motivation and 1,146 health-related) were created. Conclusion: This novel electronic self-management support system is ready to be pilot tested in a randomized controlled trial in patients with stroke.

AB - Purpose: Worldwide, stroke is a leading cause of disease burden. Many survivors have unmet needs after discharge from hospital. Electronic communication technology to support post-discharge care has not been used for patients with stroke. In this paper, we describe the development of a novel electronic messaging system designed for survivors of stroke to support their goals of recovery and secondary prevention after hospital discharge. Participants and methods: This was a formative evaluation study. The design was informed by a literature search, existing data from survivors of stroke, and behavior change theories. We established two working groups; one for developing the electronic infrastructure and the other (comprising researchers, clinical experts and consumer representatives) for establishing the patient-centered program. Following agreement on the categories for the goal-setting menu, we drafted relevant messages to support and educate patients. These messages were then independently reviewed by multiple topic experts. Concurrently, we established an online database to capture participant characteristics and then integrated this database with a purpose-built messaging system. We conducted alpha testing of the approach using the first 60 messages. Results: The initial goal-setting menu comprised 26 subcategories. Following expert review, another 8 goal subcategories were added to the secondary prevention category: managing cholesterol; smoking; physical activity; alcohol consumption; weight management; medication management; access to health professionals, and self-care. Initially, 455 health messages were created by members of working group 2. Following refinement and mapping to different goals by the project team, 980 health messages across the health goals and 69 general motivational messages were formulated. Seventeen independent reviewers assessed the messages and suggested adding 73 messages and removing 16 (2%). Overall, 1,233 messages (18 administrative, 69 general motivation and 1,146 health-related) were created. Conclusion: This novel electronic self-management support system is ready to be pilot tested in a randomized controlled trial in patients with stroke.

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KW - Health promotion

KW - Secondary prevention

KW - Self-management

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