Abstract
Objective: To develop a question prompt list (QPL) for women with polycystic ovary syndrome (PCOS) and explore its acceptability and feasibility. Design: Nationwide online survey, interviews, and clinical pilot test. Setting: Australia. Patient(s): Two-hundred and forty-nine women online, 18 women in interviews, and 20 women in clinics. Intervention(s): A QPL for PCOS. Main Outcome Measure(s): From survey, women's likeliness to use a QPL and priority topics; from interview, QPL user-friendliness and associated feelings; from pilot, women's QPL use, perceived helpfulness, and intended future use. Result(s): Evidence-based guidelines and multidisciplinary experts informed the QPL development. Of 249 survey respondents, 66.7% to 68.7% reported difficulty communicating with health care providers about mood, weight management, and how PCOS affects daily life, and 85.8% indicated they were very likely to use a PCOS QPL. Women were interviewed to explore acceptability; the semistructured interviews (n = 18) revealed that the devised QPL was easy to understand, user-friendly, and encouraged information seeking and targeted question asking. The refined QPL was pilot-tested in a clinic setting to explore feasibility between 2016 and 2017: 60.0% of women asked 1 to 2 questions from the QPL, 20.0% asked several questions, and 10.0% reported the QPL helped them generate their own questions. Women agreed the QPL was helpful (95.0%) and that they would use the QPL again (90.0%). Conclusion(s): The PCOS QPL is acceptable and feasible, and may assist women in information seeking and targeted question asking.
| Original language | English |
|---|---|
| Pages (from-to) | 514-522 |
| Number of pages | 9 |
| Journal | Fertility and Sterility |
| Volume | 110 |
| Issue number | 3 |
| DOIs | |
| Publication status | Published - 1 Aug 2018 |
Keywords
- Information seeking behavior
- patient participation
- polycystic ovary syndrome
- question prompt list
Cite this
}
Development of a question prompt list for women with polycystic ovary syndrome. / Khan, Nadia N.; Vincent, Amanda; Boyle, Jacqueline A.; Burggraf, Millicent; Pillay, Monisha; Teede, Helena; Gibson-Helm, Melanie.
In: Fertility and Sterility, Vol. 110, No. 3, 01.08.2018, p. 514-522.Research output: Contribution to journal › Article › Research › peer-review
TY - JOUR
T1 - Development of a question prompt list for women with polycystic ovary syndrome
AU - Khan, Nadia N.
AU - Vincent, Amanda
AU - Boyle, Jacqueline A.
AU - Burggraf, Millicent
AU - Pillay, Monisha
AU - Teede, Helena
AU - Gibson-Helm, Melanie
PY - 2018/8/1
Y1 - 2018/8/1
N2 - Objective: To develop a question prompt list (QPL) for women with polycystic ovary syndrome (PCOS) and explore its acceptability and feasibility. Design: Nationwide online survey, interviews, and clinical pilot test. Setting: Australia. Patient(s): Two-hundred and forty-nine women online, 18 women in interviews, and 20 women in clinics. Intervention(s): A QPL for PCOS. Main Outcome Measure(s): From survey, women's likeliness to use a QPL and priority topics; from interview, QPL user-friendliness and associated feelings; from pilot, women's QPL use, perceived helpfulness, and intended future use. Result(s): Evidence-based guidelines and multidisciplinary experts informed the QPL development. Of 249 survey respondents, 66.7% to 68.7% reported difficulty communicating with health care providers about mood, weight management, and how PCOS affects daily life, and 85.8% indicated they were very likely to use a PCOS QPL. Women were interviewed to explore acceptability; the semistructured interviews (n = 18) revealed that the devised QPL was easy to understand, user-friendly, and encouraged information seeking and targeted question asking. The refined QPL was pilot-tested in a clinic setting to explore feasibility between 2016 and 2017: 60.0% of women asked 1 to 2 questions from the QPL, 20.0% asked several questions, and 10.0% reported the QPL helped them generate their own questions. Women agreed the QPL was helpful (95.0%) and that they would use the QPL again (90.0%). Conclusion(s): The PCOS QPL is acceptable and feasible, and may assist women in information seeking and targeted question asking.
AB - Objective: To develop a question prompt list (QPL) for women with polycystic ovary syndrome (PCOS) and explore its acceptability and feasibility. Design: Nationwide online survey, interviews, and clinical pilot test. Setting: Australia. Patient(s): Two-hundred and forty-nine women online, 18 women in interviews, and 20 women in clinics. Intervention(s): A QPL for PCOS. Main Outcome Measure(s): From survey, women's likeliness to use a QPL and priority topics; from interview, QPL user-friendliness and associated feelings; from pilot, women's QPL use, perceived helpfulness, and intended future use. Result(s): Evidence-based guidelines and multidisciplinary experts informed the QPL development. Of 249 survey respondents, 66.7% to 68.7% reported difficulty communicating with health care providers about mood, weight management, and how PCOS affects daily life, and 85.8% indicated they were very likely to use a PCOS QPL. Women were interviewed to explore acceptability; the semistructured interviews (n = 18) revealed that the devised QPL was easy to understand, user-friendly, and encouraged information seeking and targeted question asking. The refined QPL was pilot-tested in a clinic setting to explore feasibility between 2016 and 2017: 60.0% of women asked 1 to 2 questions from the QPL, 20.0% asked several questions, and 10.0% reported the QPL helped them generate their own questions. Women agreed the QPL was helpful (95.0%) and that they would use the QPL again (90.0%). Conclusion(s): The PCOS QPL is acceptable and feasible, and may assist women in information seeking and targeted question asking.
KW - Information seeking behavior
KW - patient participation
KW - polycystic ovary syndrome
KW - question prompt list
UR - http://www.scopus.com/inward/record.url?scp=85049029437&partnerID=8YFLogxK
U2 - 10.1016/j.fertnstert.2018.04.028
DO - 10.1016/j.fertnstert.2018.04.028
M3 - Article
VL - 110
SP - 514
EP - 522
JO - Fertility and Sterility
JF - Fertility and Sterility
SN - 0015-0282
IS - 3
ER -