TY - JOUR
T1 - Development of a discussion tool to enable well-being by providing choices for people with dementia
T2 - A qualitative study incorporating codesign and participatory action research
AU - Goeman, Dianne Patricia
AU - Dickins, Marissa
AU - Iliffe, Steve
AU - Pond, Dimity
AU - O'Keefe, Fleur
PY - 2017/11/1
Y1 - 2017/11/1
N2 - Objective To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. Methods A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. Results Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions. They also deemed a discussion tool to facilitate negotiation of risk was acceptable and responses informed the tool development. Twenty-two participants provided feedback that was used to refine the final version. Conclusion Our discussion tool enables choices for people with dementia by focusing on abilities rather than deficits and assists health professionals to deliver person-centred care. Flash cards prompt concerns and the tool provides a range of strategies to address these issues.
AB - Objective To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. Methods A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. Results Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions. They also deemed a discussion tool to facilitate negotiation of risk was acceptable and responses informed the tool development. Twenty-two participants provided feedback that was used to refine the final version. Conclusion Our discussion tool enables choices for people with dementia by focusing on abilities rather than deficits and assists health professionals to deliver person-centred care. Flash cards prompt concerns and the tool provides a range of strategies to address these issues.
KW - dementia
KW - quality in health care
UR - http://www.scopus.com/inward/record.url?scp=85049245352&partnerID=8YFLogxK
U2 - 10.1136/bmjopen-2017-017672
DO - 10.1136/bmjopen-2017-017672
M3 - Article
C2 - 29138202
AN - SCOPUS:85049245352
SN - 2044-6055
VL - 7
JO - BMJ Open
JF - BMJ Open
IS - 11
M1 - e017672
ER -