Development of a discussion tool to enable well-being by providing choices for people with dementia

A qualitative study incorporating codesign and participatory action research

Dianne Patricia Goeman, Marissa Dickins, Steve Iliffe, Dimity Pond, Fleur O'Keefe

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Objective To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. Methods A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. Results Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions. They also deemed a discussion tool to facilitate negotiation of risk was acceptable and responses informed the tool development. Twenty-two participants provided feedback that was used to refine the final version. Conclusion Our discussion tool enables choices for people with dementia by focusing on abilities rather than deficits and assists health professionals to deliver person-centred care. Flash cards prompt concerns and the tool provides a range of strategies to address these issues.

Original languageEnglish
Article numbere017672
Number of pages9
JournalBMJ Open
Volume7
Issue number11
DOIs
Publication statusPublished - 1 Nov 2017

Keywords

  • dementia
  • quality in health care

Cite this

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abstract = "Objective To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. Methods A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. Results Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions. They also deemed a discussion tool to facilitate negotiation of risk was acceptable and responses informed the tool development. Twenty-two participants provided feedback that was used to refine the final version. Conclusion Our discussion tool enables choices for people with dementia by focusing on abilities rather than deficits and assists health professionals to deliver person-centred care. Flash cards prompt concerns and the tool provides a range of strategies to address these issues.",
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Development of a discussion tool to enable well-being by providing choices for people with dementia : A qualitative study incorporating codesign and participatory action research. / Goeman, Dianne Patricia; Dickins, Marissa; Iliffe, Steve; Pond, Dimity; O'Keefe, Fleur.

In: BMJ Open, Vol. 7, No. 11, e017672, 01.11.2017.

Research output: Contribution to journalArticleResearchpeer-review

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T1 - Development of a discussion tool to enable well-being by providing choices for people with dementia

T2 - A qualitative study incorporating codesign and participatory action research

AU - Goeman, Dianne Patricia

AU - Dickins, Marissa

AU - Iliffe, Steve

AU - Pond, Dimity

AU - O'Keefe, Fleur

PY - 2017/11/1

Y1 - 2017/11/1

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AB - Objective To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. Methods A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. Results Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions. They also deemed a discussion tool to facilitate negotiation of risk was acceptable and responses informed the tool development. Twenty-two participants provided feedback that was used to refine the final version. Conclusion Our discussion tool enables choices for people with dementia by focusing on abilities rather than deficits and assists health professionals to deliver person-centred care. Flash cards prompt concerns and the tool provides a range of strategies to address these issues.

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