Designing video stories around the lived experience of severe mental illness

Mahsa Honary; Roisin McNaney; Fiona Lobban

doi:10.1145/3240167.3240188

Designing video stories around the lived experience of severe mental illness

Mahsa Honary, Roisin McNaney, Fiona Lobban

Research output: Chapter in Book/Report/Conference proceeding › Conference Paper › Research

2 Citations (Scopus)

Abstract

Caregivers of people experiencing severe mental illness (SMI) report a multitude of psychosocial impacts, including feelings of loneliness and isolation, distress, societal stigma and prejudice around mental health. We describe the design of a series of video stories, performed by actors, which were based on the lived experiences of caregivers and people with SMI. We conducted a series of in-depth qualitative interviews with 11 participants, which formed the basis for the video content. We then worked alongside two caregivers (as advisors), at each stage of the production process, to develop a set of 45 video stories, using personas in our process. Through a discussion of our creative process, we offer a set of considerations for future researchers wishing to develop relatable and empathic digital content for online information provision and support tools. In addition, we offer a set of reflections around the complex ethical challenges underpinning this design space.

Original language	English
Title of host publication	Proceedings of the 10th Nordic Conference on Human-Computer Interaction
Editors	Alma Leora Culén, Marianna Obrist, Erik Stolterman
Place of Publication	New York NY USA
Publisher	Association for Computing Machinery (ACM)
Pages	25-38
Number of pages	14
ISBN (Electronic)	9781450364379
DOIs	https://doi.org/10.1145/3240167.3240188
Publication status	Published - 2018
Externally published	Yes
Event	Norwegian Computer Human Interaction 2018 - Oslo, Norway Duration: 1 Oct 2018 → 3 Oct 2018 Conference number: 10th http://www.nordichi2018.org/ (Website) https://dl.acm.org/doi/proceedings/10.1145/3240167 (Proceedings) http://www.nordichi2018.org (Website)

Conference

Conference	Norwegian Computer Human Interaction 2018
Abbreviated title	NordiCHI 2018
Country	Norway
City	Oslo
Period	1/10/18 → 3/10/18
Internet address	http://www.nordichi2018.org/ (Website) https://dl.acm.org/doi/proceedings/10.1145/3240167 (Proceedings) http://www.nordichi2018.org (Website)

Keywords

Digital stories
Experience sharing
Severe mental illness
User-centered design
Video stories

Access to Document

10.1145/3240167.3240188

314360215-oaFinal published version, 1.08 MB

Link to publication in Scopus

Cite this

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title = "Designing video stories around the lived experience of severe mental illness",

abstract = "Caregivers of people experiencing severe mental illness (SMI) report a multitude of psychosocial impacts, including feelings of loneliness and isolation, distress, societal stigma and prejudice around mental health. We describe the design of a series of video stories, performed by actors, which were based on the lived experiences of caregivers and people with SMI. We conducted a series of in-depth qualitative interviews with 11 participants, which formed the basis for the video content. We then worked alongside two caregivers (as advisors), at each stage of the production process, to develop a set of 45 video stories, using personas in our process. Through a discussion of our creative process, we offer a set of considerations for future researchers wishing to develop relatable and empathic digital content for online information provision and support tools. In addition, we offer a set of reflections around the complex ethical challenges underpinning this design space.",

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booktitle = "Proceedings of the 10th Nordic Conference on Human-Computer Interaction",

publisher = "Association for Computing Machinery (ACM)",

address = "United States of America",

note = "Norwegian Computer Human Interaction 2018, NordiCHI 2018 ; Conference date: 01-10-2018 Through 03-10-2018",

url = "http://www.nordichi2018.org/, https://dl.acm.org/doi/proceedings/10.1145/3240167, http://www.nordichi2018.org",

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Honary, M, McNaney, R & Lobban, F 2018, Designing video stories around the lived experience of severe mental illness. in A Leora Culén, M Obrist & E Stolterman (eds), Proceedings of the 10th Nordic Conference on Human-Computer Interaction. Association for Computing Machinery (ACM), New York NY USA, pp. 25-38, Norwegian Computer Human Interaction 2018, Oslo, Norway, 1/10/18. https://doi.org/10.1145/3240167.3240188

Designing video stories around the lived experience of severe mental illness. / Honary, Mahsa; McNaney, Roisin; Lobban, Fiona.

Proceedings of the 10th Nordic Conference on Human-Computer Interaction. ed. / Alma Leora Culén; Marianna Obrist; Erik Stolterman. New York NY USA : Association for Computing Machinery (ACM), 2018. p. 25-38.

Research output: Chapter in Book/Report/Conference proceeding › Conference Paper › Research

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