DemYouth: co-designing and enacting tools to support young people's engagement with people with dementia

Roisin McNaney, John Vines, Jamie Mercer, Leon Mexter, Daniel Welsh, Tony Young

Research output: Chapter in Book/Report/Conference proceedingConference PaperResearchpeer-review

15 Citations (Scopus)


There is a growing body of research examining the role of technology in supporting the care of - and relationships surrounding - people with dementia, yet little attention has been given to how this relates to younger family members. We conducted a qualitative study based on a series of 6 co-design workshops conducted with 14 young people who had personal experience with dementia. Initially, our workshops focused on understanding the difficulties that young people face when engaging, interacting and being with people with dementia. Initial analysis of workshop data informed the design of three digital tool concepts that were used as the basis for user enactment workshops. Our findings highlight the young people's desire to be more involved in their family discussions around dementia and a need for them to find new ways to connect with their loved ones with dementia. We offer a set of design considerations for future systems that support these needs and reflect on some of the complexities we faced around engaging young people in this difficult topic of discussion. Copyright is held by the owner/author(s).

Original languageEnglish
Title of host publicationProceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems
EditorsCliff Lampe, m.c. schraefel
Place of PublicationNew York NY USA
PublisherAssociation for Computing Machinery (ACM)
Number of pages13
ISBN (Electronic)9781450346559
Publication statusPublished - May 2017
Externally publishedYes
EventInternational Conference on Human Factors in Computing Systems 2017 - Colorado Convention Center, Denver, United States of America
Duration: 6 May 201711 May 2017
Conference number: 35th (Proceedings)


ConferenceInternational Conference on Human Factors in Computing Systems 2017
Abbreviated titleCHI 2017
CountryUnited States of America
Internet address


  • Co-design
  • Dementia
  • Mobile applications
  • Young people

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