Aim: To examine the psychological and psychosocial service needs of mothers of children with craniofacial anomalies (CFAs). Methods: Mothers (n = 55) of children from newborn to 6 years with CFA completed self-report measures of psychological distress, quality of life and perceived social support. Results: Mothers’ psychological distress levels were significantly higher than those in a normative population. Mothers reported lower quality of life than the normative sample. Social support mediated the relationship between quality of life and psychological distress. While most mothers reported a willingness to receive formal psychological support for issues relating to their child's CFA, few had been offered such services. Conclusions: Mothers of children with CFAs may experience increased psychological distress in comparison with the general population. Increased social support may reduce the risk of psychological distress, thus enhancing quality of life among such mothers. The majority of mothers of children with CFAs in Australia may not be routinely offered psychological support services in spite of their elevated psychological risk.
- general paediatrics
- psychiatry/mental health