Controlling futures? Online genetic testing and neurodegenerative disease: Comment on “personal genomic testing, genetic inheritance, and uncertainty”

Narelle Warren; John Grant Gardner

doi:10.1007/s11673-017-9820-y

Controlling futures? Online genetic testing and neurodegenerative disease: Comment on “personal genomic testing, genetic inheritance, and uncertainty”

Research output: Contribution to journal › Article › Other › peer-review

Abstract

Online personalized genetic testing services offer accessible and convenient options for satisfying personal curiosity about health and obtaining answers about one’s genetic provenance. They are especially attractive to healthy people who wish to learn about their future risk of disease, as Paul Mason’s (2017) case study of “Jordan” illustrates. In this response, we consider how online genetic testing services are used by people diagnosed with a common neurodegenerative disease, Parkinson’s disease, to gain a sense of certainty regarding the future.

Original language	English
Pages (from-to)	593–594
Number of pages	2
Journal	Journal of Bioethical Inquiry
Volume	14
DOIs	https://doi.org/10.1007/s11673-017-9820-y
Publication status	Published - 2017

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Genetic testing
Heredity
Neurodegenerative disease
Parkinson’s disease
Uncertainty

Access to Document

10.1007/s11673-017-9820-y

Cite this

@article{8649fa5e529f41028cdc79828254ea94,

title = "Controlling futures? Online genetic testing and neurodegenerative disease: Comment on “personal genomic testing, genetic inheritance, and uncertainty”",

abstract = "Online personalized genetic testing services offer accessible and convenient options for satisfying personal curiosity about health and obtaining answers about one{\textquoteright}s genetic provenance. They are especially attractive to healthy people who wish to learn about their future risk of disease, as Paul Mason{\textquoteright}s (2017) case study of “Jordan” illustrates. In this response, we consider how online genetic testing services are used by people diagnosed with a common neurodegenerative disease, Parkinson{\textquoteright}s disease, to gain a sense of certainty regarding the future.",

keywords = "Genetic testing, Heredity, Neurodegenerative disease, Parkinson{\textquoteright}s disease, Uncertainty",

author = "Narelle Warren and Gardner, \{John Grant\}",

year = "2017",

doi = "10.1007/s11673-017-9820-y",

language = "English",

volume = "14",

pages = "593–594",

journal = "Journal of Bioethical Inquiry",

issn = "1176-7529",

publisher = "Springer",

}

TY - JOUR

T1 - Controlling futures? Online genetic testing and neurodegenerative disease

T2 - Comment on “personal genomic testing, genetic inheritance, and uncertainty”

AU - Warren, Narelle

AU - Gardner, John Grant

PY - 2017

Y1 - 2017

N2 - Online personalized genetic testing services offer accessible and convenient options for satisfying personal curiosity about health and obtaining answers about one’s genetic provenance. They are especially attractive to healthy people who wish to learn about their future risk of disease, as Paul Mason’s (2017) case study of “Jordan” illustrates. In this response, we consider how online genetic testing services are used by people diagnosed with a common neurodegenerative disease, Parkinson’s disease, to gain a sense of certainty regarding the future.

AB - Online personalized genetic testing services offer accessible and convenient options for satisfying personal curiosity about health and obtaining answers about one’s genetic provenance. They are especially attractive to healthy people who wish to learn about their future risk of disease, as Paul Mason’s (2017) case study of “Jordan” illustrates. In this response, we consider how online genetic testing services are used by people diagnosed with a common neurodegenerative disease, Parkinson’s disease, to gain a sense of certainty regarding the future.

KW - Genetic testing

KW - Heredity

KW - Neurodegenerative disease

KW - Parkinson’s disease

KW - Uncertainty

UR - https://www.scopus.com/pages/publications/85035774028

U2 - 10.1007/s11673-017-9820-y

DO - 10.1007/s11673-017-9820-y

M3 - Article

AN - SCOPUS:85035774028

SN - 1176-7529

VL - 14

SP - 593

EP - 594

JO - Journal of Bioethical Inquiry

JF - Journal of Bioethical Inquiry

ER -

Controlling futures? Online genetic testing and neurodegenerative disease: Comment on “personal genomic testing, genetic inheritance, and uncertainty”

Abstract

UN SDGs

Keywords

Access to Document

Other files and links

Cite this