Connecting those that care: designing for transitioning, talking, belonging and escaping

Kiel Long; Lyndsey Bakewell; Róisín McNaney; Konstantina Vasileiou; Mark Atkinson; Manuela Barreto; Julie Barnett; Mike Wilson; Shaun Lawson; John Vines

doi:10.1145/3025453.3025715

Connecting those that care: designing for transitioning, talking, belonging and escaping

Kiel Long, Lyndsey Bakewell, Róisín McNaney, Konstantina Vasileiou, Mark Atkinson, Manuela Barreto, Julie Barnett, Mike Wilson, Shaun Lawson, John Vines

Research output: Chapter in Book/Report/Conference proceeding › Conference Paper › Research › peer-review

31 Citations (Scopus)

Abstract

Care provision in many nations increasingly relies on the work of informal, or non-professional, carers. Often these carers experience substantial disruptions and reductions to their own sociality, weakened social support networks and, ultimately, a heightened risk of social isolation. We describe a qualitative study, comprised of interviews, design workshops and probes, that investigated the social and community support practices of carers. Our findings highlight issues related to becoming and recognising being a carer, and feelings of being ignored by, and isolated from, others. We also note the benefits that sharing between carers can bring, and routes to coping and relaxing from the burdens of care. We conclude with design considerations for facilitating new forms of digitally mediated support that connect those that care, emphasising design qualities related to transitioning, talking, belonging and escaping.

Original language	English
Title of host publication	Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems
Editors	Cliff Lampe, m.c. schraefel
Place of Publication	New York NY USA
Publisher	Association for Computing Machinery (ACM)
Pages	1339-1351
Number of pages	13
ISBN (Electronic)	9781450346559
DOIs	https://doi.org/10.1145/3025453.3025715
Publication status	Published - May 2017
Externally published	Yes
Event	International Conference on Human Factors in Computing Systems 2017 - Colorado Convention Center, Denver, United States of America Duration: 6 May 2017 → 11 May 2017 Conference number: 35th https://chi2017.acm.org/ https://dl.acm.org/doi/proceedings/10.1145/3025453 (Proceedings)

Conference

Conference	International Conference on Human Factors in Computing Systems 2017
Abbreviated title	CHI 2017
Country/Territory	United States of America
City	Denver
Period	6/05/17 → 11/05/17
Internet address	https://chi2017.acm.org/ https://dl.acm.org/doi/proceedings/10.1145/3025453 (Proceedings)

Keywords

Carers
Co-design
Informal care
Qualitative study

Access to Document

10.1145/3025453.3025715

314456632-oaFinal published version, 3.57 MB

Cite this

Long, K., Bakewell, L., McNaney, R., Vasileiou, K., Atkinson, M., Barreto, M., Barnett, J., Wilson, M., Lawson, S., & Vines, J. (2017). Connecting those that care: designing for transitioning, talking, belonging and escaping. In C. Lampe, & M. C. schraefel (Eds.), Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (pp. 1339-1351). Association for Computing Machinery (ACM). https://doi.org/10.1145/3025453.3025715

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title = "Connecting those that care: designing for transitioning, talking, belonging and escaping",

abstract = "Care provision in many nations increasingly relies on the work of informal, or non-professional, carers. Often these carers experience substantial disruptions and reductions to their own sociality, weakened social support networks and, ultimately, a heightened risk of social isolation. We describe a qualitative study, comprised of interviews, design workshops and probes, that investigated the social and community support practices of carers. Our findings highlight issues related to becoming and recognising being a carer, and feelings of being ignored by, and isolated from, others. We also note the benefits that sharing between carers can bring, and routes to coping and relaxing from the burdens of care. We conclude with design considerations for facilitating new forms of digitally mediated support that connect those that care, emphasising design qualities related to transitioning, talking, belonging and escaping. ",

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author = "Kiel Long and Lyndsey Bakewell and R{\'o}is{\'i}n McNaney and Konstantina Vasileiou and Mark Atkinson and Manuela Barreto and Julie Barnett and Mike Wilson and Shaun Lawson and John Vines",

year = "2017",

month = may,

doi = "10.1145/3025453.3025715",

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booktitle = "Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems",

publisher = "Association for Computing Machinery (ACM)",

address = "United States of America",

note = "International Conference on Human Factors in Computing Systems 2017, CHI 2017 ; Conference date: 06-05-2017 Through 11-05-2017",

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Long, K, Bakewell, L, McNaney, R, Vasileiou, K, Atkinson, M, Barreto, M, Barnett, J, Wilson, M, Lawson, S & Vines, J 2017, Connecting those that care: designing for transitioning, talking, belonging and escaping. in C Lampe & MC schraefel (eds), Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery (ACM), New York NY USA, pp. 1339-1351, International Conference on Human Factors in Computing Systems 2017, Denver, Colorado, United States of America, 6/05/17. https://doi.org/10.1145/3025453.3025715

Connecting those that care: designing for transitioning, talking, belonging and escaping. / Long, Kiel; Bakewell, Lyndsey; McNaney, Róisín et al.
Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ed. / Cliff Lampe; m.c. schraefel. New York NY USA: Association for Computing Machinery (ACM), 2017. p. 1339-1351.

Research output: Chapter in Book/Report/Conference proceeding › Conference Paper › Research › peer-review

TY - GEN

T1 - Connecting those that care

T2 - International Conference on Human Factors in Computing Systems 2017

AU - Long, Kiel

AU - Bakewell, Lyndsey

AU - McNaney, Róisín

AU - Vasileiou, Konstantina

AU - Atkinson, Mark

AU - Barreto, Manuela

AU - Barnett, Julie

AU - Wilson, Mike

AU - Lawson, Shaun

AU - Vines, John

N1 - Conference code: 35th

PY - 2017/5

Y1 - 2017/5

N2 - Care provision in many nations increasingly relies on the work of informal, or non-professional, carers. Often these carers experience substantial disruptions and reductions to their own sociality, weakened social support networks and, ultimately, a heightened risk of social isolation. We describe a qualitative study, comprised of interviews, design workshops and probes, that investigated the social and community support practices of carers. Our findings highlight issues related to becoming and recognising being a carer, and feelings of being ignored by, and isolated from, others. We also note the benefits that sharing between carers can bring, and routes to coping and relaxing from the burdens of care. We conclude with design considerations for facilitating new forms of digitally mediated support that connect those that care, emphasising design qualities related to transitioning, talking, belonging and escaping.

AB - Care provision in many nations increasingly relies on the work of informal, or non-professional, carers. Often these carers experience substantial disruptions and reductions to their own sociality, weakened social support networks and, ultimately, a heightened risk of social isolation. We describe a qualitative study, comprised of interviews, design workshops and probes, that investigated the social and community support practices of carers. Our findings highlight issues related to becoming and recognising being a carer, and feelings of being ignored by, and isolated from, others. We also note the benefits that sharing between carers can bring, and routes to coping and relaxing from the burdens of care. We conclude with design considerations for facilitating new forms of digitally mediated support that connect those that care, emphasising design qualities related to transitioning, talking, belonging and escaping.

KW - Carers

KW - Co-design

KW - Informal care

KW - Qualitative study

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DO - 10.1145/3025453.3025715

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EP - 1351

BT - Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems

A2 - Lampe, Cliff

A2 - schraefel, m.c.

PB - Association for Computing Machinery (ACM)

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ER -

Long K, Bakewell L, McNaney R, Vasileiou K, Atkinson M, Barreto M et al. Connecting those that care: designing for transitioning, talking, belonging and escaping. In Lampe C, schraefel MC, editors, Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. New York NY USA: Association for Computing Machinery (ACM). 2017. p. 1339-1351 doi: 10.1145/3025453.3025715

Connecting those that care: designing for transitioning, talking, belonging and escaping

Abstract

Conference

Keywords

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