TY - JOUR
T1 - Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services
T2 - The CanEngage Project protocol
AU - Harrison, Reema
AU - Walton, Merrilyn
AU - Manias, Elizabeth
AU - Wilson, Carlene
AU - Girgis, Afaf
AU - Chin, Melvin
AU - Leone, Desiree
AU - Seale, Holly
AU - Smith, Allan Ben
AU - Chauhan, Ashfaq
N1 - Funding Information:
This programme of work has been through two independent scientific peer review processed by (1) the National Health and Medical Research Council under the Ideas funding scheme (project number: 1180925) and (2) by Cancer Australia under the Supporting People with Cancer funding scheme, Round 11. Both schemes have competitively funded this research based on the scientific quality of the proposals and require progress reporting biannually. Throughout the project, study quality will be ensured by our project governance process, which is composed primarily of an external stakeholder reference group and an external consumer advisory group. The stakeholder reference group meets quarterly to provide independent oversight of the project processes and progress against milestones. The consumer advisory group meets biannually to provide specific review and advice of consumer involvement activities and project processes to ensure that we retain a consumer-centric approach.
Publisher Copyright:
© 2021 BMJ Publishing Group. All rights reserved.
PY - 2021/8/2
Y1 - 2021/8/2
N2 - Introduction Consumer engagement is central to high-quality cancer service delivery and is a recognised strategy to minimise healthcare-associated harm. Strategies developed to enhance consumer engagement specifically in relation to preventing healthcare harm include questioning health professionals, raising concerns about possible mistakes or risks in care and encouraging patients and caregivers to report suspected errors. Patients from ethnic minority backgrounds are particularly vulnerable to unsafe care, but current engagement strategies have not been developed specifically for (and with) this population. Using an adapted approach to experience-based codesign (EBCD) to support the target population, the aim of the project is to codesign consumer engagement interventions to increase consumer engagement and safety in New South Wales and Victorian cancer inpatient, outpatient and day procedure services. Methods and analysis A mixed-method project will be undertaken at six study sites. Our EBCD approach includes a preparatory phase in which we will provide training and support to the codesign participants, in addition to recruiting and training consumer cofacilitators for the codesign workshops. The project will follow the EBCD process of gathering and synthesising observational data from each cancer service, with interview data from consumers and staff. With the resulting in-depth understanding of the safety threats commonly experienced by ethnic minority consumers in each site, we will work through feedback events and codesign groups with consumers and staff to determine how they can be more involved with their care to minimise the potential for patient harm. Consumer engagement interventions will be coproduced in each of the six participating services that are tailored to the ethnic minority populations served. Ethics and dissemination Ethics approval has been obtained from the Western Sydney Local Health District Human Research Ethics Committee. The project will provide strategies for ethnic minority consumers to engage with cancer services to minimise healthcare-associated harm that may be applied to diverse healthcare settings.
AB - Introduction Consumer engagement is central to high-quality cancer service delivery and is a recognised strategy to minimise healthcare-associated harm. Strategies developed to enhance consumer engagement specifically in relation to preventing healthcare harm include questioning health professionals, raising concerns about possible mistakes or risks in care and encouraging patients and caregivers to report suspected errors. Patients from ethnic minority backgrounds are particularly vulnerable to unsafe care, but current engagement strategies have not been developed specifically for (and with) this population. Using an adapted approach to experience-based codesign (EBCD) to support the target population, the aim of the project is to codesign consumer engagement interventions to increase consumer engagement and safety in New South Wales and Victorian cancer inpatient, outpatient and day procedure services. Methods and analysis A mixed-method project will be undertaken at six study sites. Our EBCD approach includes a preparatory phase in which we will provide training and support to the codesign participants, in addition to recruiting and training consumer cofacilitators for the codesign workshops. The project will follow the EBCD process of gathering and synthesising observational data from each cancer service, with interview data from consumers and staff. With the resulting in-depth understanding of the safety threats commonly experienced by ethnic minority consumers in each site, we will work through feedback events and codesign groups with consumers and staff to determine how they can be more involved with their care to minimise the potential for patient harm. Consumer engagement interventions will be coproduced in each of the six participating services that are tailored to the ethnic minority populations served. Ethics and dissemination Ethics approval has been obtained from the Western Sydney Local Health District Human Research Ethics Committee. The project will provide strategies for ethnic minority consumers to engage with cancer services to minimise healthcare-associated harm that may be applied to diverse healthcare settings.
KW - adult oncology
KW - clinical governance
KW - qualitative research
KW - quality in health care
UR - http://www.scopus.com/inward/record.url?scp=85112033908&partnerID=8YFLogxK
U2 - 10.1136/bmjopen-2020-048389
DO - 10.1136/bmjopen-2020-048389
M3 - Article
C2 - 34341049
AN - SCOPUS:85112033908
SN - 2044-6055
VL - 11
JO - BMJ Open
JF - BMJ Open
IS - 8
M1 - e048389
ER -