Agreement between parentadolescent ratings on psychosocial outcome and qualityoflife following childhood traumatic brain injury

Laura Green, Celia Godfrey, Chery Soo, Vicki Anderson, Cathy Catroppa

Research output: Contribution to journalArticleResearchpeer-review

25 Citations (Scopus)

Abstract

Objective: This study investigated parentadolescent agreement in longterm psychosocial and qualityoflife (QoL) outcomes. The sample comprised adolescents aged 1518 years, who sustained childhood traumatic brain injury (TBI) between birth and 5 years of age. Methods: Thirtythree participants (17 adolescents with TBI and 16 TBI parentproxies) were involved in the study which compared parent and adolescent ratings on the Sydney Psychosocial Reintegration ScaleChild form (SPRSC) and the Pediatric QualityofLife Inventory (PedsQL). The questionnaires were administered through phone interviews. Results: As hypothesized, parentadolescent agreement was acceptable for psychosocial outcome (intraclass coefficient [ICC] of 0.844, p<0.001), whereas discrepancies were found for ratings of QoL (ICC of 0.506, p=0.092). Conclusion: The finding that parents and adolescents agree on psychosocial outcome is promising for those instances when the patient is unable to report; however, discrepancies regarding QoL suggest caution needs to be taken when interpreting parentrated QoL data.

Original languageEnglish
Pages (from-to)105-113
Number of pages9
JournalDevelopmental Neurorehabilitation
Volume15
Issue number2
DOIs
Publication statusPublished - Apr 2012
Externally publishedYes

Keywords

  • Agreement
  • Childhood TBI
  • Insight
  • PedsQL
  • Proxy
  • SPRSC

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