TY - JOUR
T1 - Advanced Care Directives in Residential Aged Care for Residents with Major Neuro-Cognitive Disorders (Dementia)
T2 - A Scoping Review
AU - Hormazábal-Salgado, Raúl
AU - Osman, Abdi D.
AU - Poblete-Troncoso, Margarita
AU - Whitehead, Dean
AU - Hills, Danny
N1 - Publisher Copyright:
© 2023 Taylor & Francis Group, LLC.
PY - 2024
Y1 - 2024
N2 - The aim of this review was to identify, assess, collate, and analyze existing research that has made a direct contribution to aiding understanding of the ethical and decision-making issues related to the use of advance care directives for people with dementia and/or other major neurocognitive disorders and/or their surrogate decision-makers on treatment. The Web of Science, Scopus, PubMed, CINAHL, Academic Search Ultimate, and MEDLINE databases were searched between August and September 2021 and July to November 2022 limited to primary studies written in English, Spanish, or Portuguese. Twenty-eight studies of varying quality that addressed related thematic areas were identified. These themes being support for autonomy in basic needs (16%), making decisions ahead/planning ahead and upholding these decisions (52%), and support in decision-making for carers (32%). Advance care directives are an important mechanism for documenting treatment preferences in patient care planning. However, the available literature on the topic is limited in both quantity and quality. Recommendations for practice include involving decision makers, promoting educational interventions, exploring how they are used and implemented, and promoting the active involvement of social workers within the healthcare team.
AB - The aim of this review was to identify, assess, collate, and analyze existing research that has made a direct contribution to aiding understanding of the ethical and decision-making issues related to the use of advance care directives for people with dementia and/or other major neurocognitive disorders and/or their surrogate decision-makers on treatment. The Web of Science, Scopus, PubMed, CINAHL, Academic Search Ultimate, and MEDLINE databases were searched between August and September 2021 and July to November 2022 limited to primary studies written in English, Spanish, or Portuguese. Twenty-eight studies of varying quality that addressed related thematic areas were identified. These themes being support for autonomy in basic needs (16%), making decisions ahead/planning ahead and upholding these decisions (52%), and support in decision-making for carers (32%). Advance care directives are an important mechanism for documenting treatment preferences in patient care planning. However, the available literature on the topic is limited in both quantity and quality. Recommendations for practice include involving decision makers, promoting educational interventions, exploring how they are used and implemented, and promoting the active involvement of social workers within the healthcare team.
KW - Advance care planning
KW - advance directives
KW - decision-making
KW - dementia
KW - personal autonomy
UR - https://www.scopus.com/pages/publications/85163792794
U2 - 10.1080/15524256.2023.2229041
DO - 10.1080/15524256.2023.2229041
M3 - Article
C2 - 37382889
AN - SCOPUS:85163792794
SN - 1552-4256
VL - 20
SP - 83
EP - 114
JO - Journal of Social Work in End-of-Life & Palliative Care
JF - Journal of Social Work in End-of-Life & Palliative Care
IS - 1
ER -