Adaptive equipment use by people with motor neuron disease in Australia: a prospective, observational consecutive cohort study

Karol A. Connors, Lisa M. Mahony, Prue Morgan

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Purpose: People with motor neuron sisease require adaptive equipment to enhance life quality. This study aimed to examine total and concurrent equipment items prescribed with phenotype consideration. Methods: A prospective, observational consecutive cohort study was undertaken. Data regarding Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, phenotype, symptom onset and Functional Independence Measure (inpatients only) was recorded. Equipment utilized was coded by therapist as: speech devices; transfer devices; mobility devices (including power wheelchairs); orthoses; activities of daily living equipment; assisted technology and home modification equipment. Results: Two hundred and seventy-three people with motor neuron disease participated, mean age 67 years, mean amyotrophic Lateral Sclerosis Functional Rating Scale-Revised score 32, a moderate level of disability. Equipment items per participant ranged from 0 to 20, median 5. The electric lift recliner chair was the most commonly used equipment item, used by 51.2% of the cohort. There was a statistically significant difference in equipment use between flail leg and bulbar (Md 11, 3 items, respectively; p = .005), and flail leg and cervical phenotypes (Md 11, 3.5 items respectively; p = .009). Conclusions: People with motor neuron disease have high equipment needs to optimize quality of life. Information regarding phenotype relative to equipment requirement, and most frequently prescribed equipment items can assist health-care providers anticipate equipment needs, burden and intensity for those with motor neuron disease.Implications for rehabilitationPeople with motor neuron disease have high concurrent equipment needs.Electric recliner lift chairs are the most frequently prescribed equipment item by those with motor neuron disease.There is variation in concurrent equipment needs relative to motor neuron disease phenotype.

Original languageEnglish
Pages (from-to)62-67
Number of pages6
JournalDisability and Rehabilitation: Assistive Technology
Volume14
Issue number1
DOIs
Publication statusPublished - 2019

Keywords

  • ALS
  • amyotrophic lateral sclerosis
  • assistive technology
  • MND

Cite this

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title = "Adaptive equipment use by people with motor neuron disease in Australia: a prospective, observational consecutive cohort study",
abstract = "Purpose: People with motor neuron sisease require adaptive equipment to enhance life quality. This study aimed to examine total and concurrent equipment items prescribed with phenotype consideration. Methods: A prospective, observational consecutive cohort study was undertaken. Data regarding Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, phenotype, symptom onset and Functional Independence Measure (inpatients only) was recorded. Equipment utilized was coded by therapist as: speech devices; transfer devices; mobility devices (including power wheelchairs); orthoses; activities of daily living equipment; assisted technology and home modification equipment. Results: Two hundred and seventy-three people with motor neuron disease participated, mean age 67 years, mean amyotrophic Lateral Sclerosis Functional Rating Scale-Revised score 32, a moderate level of disability. Equipment items per participant ranged from 0 to 20, median 5. The electric lift recliner chair was the most commonly used equipment item, used by 51.2{\%} of the cohort. There was a statistically significant difference in equipment use between flail leg and bulbar (Md 11, 3 items, respectively; p = .005), and flail leg and cervical phenotypes (Md 11, 3.5 items respectively; p = .009). Conclusions: People with motor neuron disease have high equipment needs to optimize quality of life. Information regarding phenotype relative to equipment requirement, and most frequently prescribed equipment items can assist health-care providers anticipate equipment needs, burden and intensity for those with motor neuron disease.Implications for rehabilitationPeople with motor neuron disease have high concurrent equipment needs.Electric recliner lift chairs are the most frequently prescribed equipment item by those with motor neuron disease.There is variation in concurrent equipment needs relative to motor neuron disease phenotype.",
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author = "Connors, {Karol A.} and Mahony, {Lisa M.} and Prue Morgan",
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Adaptive equipment use by people with motor neuron disease in Australia : a prospective, observational consecutive cohort study. / Connors, Karol A.; Mahony, Lisa M.; Morgan, Prue.

In: Disability and Rehabilitation: Assistive Technology, Vol. 14, No. 1, 2019, p. 62-67.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Adaptive equipment use by people with motor neuron disease in Australia

T2 - a prospective, observational consecutive cohort study

AU - Connors, Karol A.

AU - Mahony, Lisa M.

AU - Morgan, Prue

PY - 2019

Y1 - 2019

N2 - Purpose: People with motor neuron sisease require adaptive equipment to enhance life quality. This study aimed to examine total and concurrent equipment items prescribed with phenotype consideration. Methods: A prospective, observational consecutive cohort study was undertaken. Data regarding Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, phenotype, symptom onset and Functional Independence Measure (inpatients only) was recorded. Equipment utilized was coded by therapist as: speech devices; transfer devices; mobility devices (including power wheelchairs); orthoses; activities of daily living equipment; assisted technology and home modification equipment. Results: Two hundred and seventy-three people with motor neuron disease participated, mean age 67 years, mean amyotrophic Lateral Sclerosis Functional Rating Scale-Revised score 32, a moderate level of disability. Equipment items per participant ranged from 0 to 20, median 5. The electric lift recliner chair was the most commonly used equipment item, used by 51.2% of the cohort. There was a statistically significant difference in equipment use between flail leg and bulbar (Md 11, 3 items, respectively; p = .005), and flail leg and cervical phenotypes (Md 11, 3.5 items respectively; p = .009). Conclusions: People with motor neuron disease have high equipment needs to optimize quality of life. Information regarding phenotype relative to equipment requirement, and most frequently prescribed equipment items can assist health-care providers anticipate equipment needs, burden and intensity for those with motor neuron disease.Implications for rehabilitationPeople with motor neuron disease have high concurrent equipment needs.Electric recliner lift chairs are the most frequently prescribed equipment item by those with motor neuron disease.There is variation in concurrent equipment needs relative to motor neuron disease phenotype.

AB - Purpose: People with motor neuron sisease require adaptive equipment to enhance life quality. This study aimed to examine total and concurrent equipment items prescribed with phenotype consideration. Methods: A prospective, observational consecutive cohort study was undertaken. Data regarding Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, phenotype, symptom onset and Functional Independence Measure (inpatients only) was recorded. Equipment utilized was coded by therapist as: speech devices; transfer devices; mobility devices (including power wheelchairs); orthoses; activities of daily living equipment; assisted technology and home modification equipment. Results: Two hundred and seventy-three people with motor neuron disease participated, mean age 67 years, mean amyotrophic Lateral Sclerosis Functional Rating Scale-Revised score 32, a moderate level of disability. Equipment items per participant ranged from 0 to 20, median 5. The electric lift recliner chair was the most commonly used equipment item, used by 51.2% of the cohort. There was a statistically significant difference in equipment use between flail leg and bulbar (Md 11, 3 items, respectively; p = .005), and flail leg and cervical phenotypes (Md 11, 3.5 items respectively; p = .009). Conclusions: People with motor neuron disease have high equipment needs to optimize quality of life. Information regarding phenotype relative to equipment requirement, and most frequently prescribed equipment items can assist health-care providers anticipate equipment needs, burden and intensity for those with motor neuron disease.Implications for rehabilitationPeople with motor neuron disease have high concurrent equipment needs.Electric recliner lift chairs are the most frequently prescribed equipment item by those with motor neuron disease.There is variation in concurrent equipment needs relative to motor neuron disease phenotype.

KW - ALS

KW - amyotrophic lateral sclerosis

KW - assistive technology

KW - MND

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M3 - Article

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SP - 62

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JO - Disability and Rehabilitation: Assistive Technology

JF - Disability and Rehabilitation: Assistive Technology

SN - 1748-3107

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