Acceptability of opt-out consent in a hospital patient population

Daniel Boulos, Eric Morand, Michelle Foo, Janki Dhaval Trivedi, Ruth Lai, Rachel Huntersmith, Karen Zhang, Claire Brigid Stark, Suong Le

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Research has been slow to leverage digitalised medical records as a data resource. Our study assessed patient acceptability of opt-out consent for secondary use of digital patient data. A questionnaire was distributed to patients in multiple languages and with an interpreter. Of 919 completed surveys, 33% were of non-English speaking background, 15% self-reported cognitive impairment and 3% were refugees. Opt-out consent was accepted in this diverse population; 87% of participants approved, or were indifferent to opt-out consent. Gender, employment and cognition status were not significant determinants of acceptability.

Original languageEnglish
Pages (from-to)84-87
Number of pages4
JournalInternal Medicine Journal
Volume48
Issue number1
DOIs
Publication statusPublished - 1 Jan 2018

Keywords

  • informed consent
  • opt-out
  • recruitment
  • research ethics

Cite this

Boulos, Daniel ; Morand, Eric ; Foo, Michelle ; Trivedi, Janki Dhaval ; Lai, Ruth ; Huntersmith, Rachel ; Zhang, Karen ; Stark, Claire Brigid ; Le, Suong. / Acceptability of opt-out consent in a hospital patient population. In: Internal Medicine Journal. 2018 ; Vol. 48, No. 1. pp. 84-87.
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Boulos, D, Morand, E, Foo, M, Trivedi, JD, Lai, R, Huntersmith, R, Zhang, K, Stark, CB & Le, S 2018, 'Acceptability of opt-out consent in a hospital patient population' Internal Medicine Journal, vol. 48, no. 1, pp. 84-87. https://doi.org/10.1111/imj.13666

Acceptability of opt-out consent in a hospital patient population. / Boulos, Daniel; Morand, Eric; Foo, Michelle; Trivedi, Janki Dhaval; Lai, Ruth; Huntersmith, Rachel; Zhang, Karen; Stark, Claire Brigid; Le, Suong.

In: Internal Medicine Journal, Vol. 48, No. 1, 01.01.2018, p. 84-87.

Research output: Contribution to journalArticleResearchpeer-review

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