Acceptability of opt-out consent in a hospital patient population

Daniel Boulos, Eric Morand, Michelle Foo, Janki Dhaval Trivedi, Ruth Lai, Rachel Huntersmith, Karen Zhang, Claire Brigid Stark, Suong Le

Research output: Contribution to journalArticleResearchpeer-review

4 Citations (Scopus)

Abstract

Research has been slow to leverage digitalised medical records as a data resource. Our study assessed patient acceptability of opt-out consent for secondary use of digital patient data. A questionnaire was distributed to patients in multiple languages and with an interpreter. Of 919 completed surveys, 33% were of non-English speaking background, 15% self-reported cognitive impairment and 3% were refugees. Opt-out consent was accepted in this diverse population; 87% of participants approved, or were indifferent to opt-out consent. Gender, employment and cognition status were not significant determinants of acceptability.

Original languageEnglish
Pages (from-to)84-87
Number of pages4
JournalInternal Medicine Journal
Volume48
Issue number1
DOIs
Publication statusPublished - 1 Jan 2018

Keywords

  • informed consent
  • opt-out
  • recruitment
  • research ethics

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