A telephone survey of factors affecting willingness to participate in health research surveys

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Background: In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people s stated willingness to participate in health research. Results: The majority of participants (61 ) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Participants from previous studies, older people and women were the groups most willing to participate. Younger men preferred online surveys, older people a written questionnaire, and few participants in any age and sex groups preferred a telephone questionnaire. Conclusion: Despite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics.
Original languageEnglish
Pages (from-to)1 - 11
Number of pages11
JournalBMC Public Health
Volume15
Issue number1 Article No: 1017
DOIs
Publication statusPublished - 2015

Cite this

@article{df1ac654f2e743f196a13da80bf544fc,
title = "A telephone survey of factors affecting willingness to participate in health research surveys",
abstract = "Background: In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people s stated willingness to participate in health research. Results: The majority of participants (61 ) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Participants from previous studies, older people and women were the groups most willing to participate. Younger men preferred online surveys, older people a written questionnaire, and few participants in any age and sex groups preferred a telephone questionnaire. Conclusion: Despite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics.",
author = "Glass, {Deborah Catherine} and Kelsall, {Helen L} and Slegers, {Claudia Marie} and Forbes, {Andrew Benjamin} and Beatrice Loff and Zion, {Deborah Ruth} and Lin Fritschi",
year = "2015",
doi = "10.1186/s12889-015-2350-9",
language = "English",
volume = "15",
pages = "1 -- 11",
journal = "BMC Public Health",
issn = "1471-2458",
publisher = "BioMed Central",
number = "1 Article No: 1017",

}

A telephone survey of factors affecting willingness to participate in health research surveys. / Glass, Deborah Catherine; Kelsall, Helen L; Slegers, Claudia Marie; Forbes, Andrew Benjamin; Loff, Beatrice; Zion, Deborah Ruth; Fritschi, Lin.

In: BMC Public Health, Vol. 15, No. 1 Article No: 1017, 2015, p. 1 - 11.

Research output: Contribution to journalArticleResearchpeer-review

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AU - Glass, Deborah Catherine

AU - Kelsall, Helen L

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AU - Forbes, Andrew Benjamin

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AU - Zion, Deborah Ruth

AU - Fritschi, Lin

PY - 2015

Y1 - 2015

N2 - Background: In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people s stated willingness to participate in health research. Results: The majority of participants (61 ) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Participants from previous studies, older people and women were the groups most willing to participate. Younger men preferred online surveys, older people a written questionnaire, and few participants in any age and sex groups preferred a telephone questionnaire. Conclusion: Despite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics.

AB - Background: In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people s stated willingness to participate in health research. Results: The majority of participants (61 ) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Participants from previous studies, older people and women were the groups most willing to participate. Younger men preferred online surveys, older people a written questionnaire, and few participants in any age and sex groups preferred a telephone questionnaire. Conclusion: Despite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics.

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